🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

PMPRB Heads up! Likely another 6 months delay in draconian and unreasonable drug pricing changes that would restrict Canadian patient access to important new drugs. Expect announcement today. But we cannot rest until changes repealed.

📢"Come and join us!" Durhane Wong-Rieger, Chair of RDI's Council, invites you to the KICK-OFF of a year of transformative international policy actions paving the way for a brighter future for PLWRD! 👉bit.ly/35QhD0X #RareExpoDubai ONLINE 28 Feb CORD

Great Discussion this Morning #Canada4Rare #RareDiseaseDay Thank you Life Sciences Ontario

In just 5 seconds, you can help save the lives of Canadians living with rare diseases. Sign CORD petition. Send a message to your government representative: hriportal.ca/canada4rare-in…

Planning Smart Webinar Series! There's still time to register for next week's Webinars! National Organization for Rare Disorders (NORD) CanMPSSociety Defeat Duchenne Canada CanPKU+ Registration:raredisorders.ca/webinar-series…

So looking forward to moderating this important webinar with Bill Dempster next week! Registration:lnkd.in/ey6zaGkE #Canada4Rare

.CORD and @rarediseasesint stand with the global rare disease community at #HLPF. I will deliver Key Messages to #rarediseases community at the Formal Side-Event on #gender and #rarediseases 👉 6 July 2022, ONLINE bit.ly/3xNuOKh

🚨📢CORD calls for First Ministers to address the urgent need for a Rare Disease National Plan #Canada4Rare #cdnpoli #cdnhealth #COF2022

🚨📢CORD calls for First Ministers to address the urgent need for a Rare Disease National Plan #cdnpoli #cdnhealth #Canada4Rare #COF202

🚨WANTED: Canadian solutions for rare disorders🚨 Too many Canadians with rare diseases can’t get diagnosed or access to care. Strong 🇨🇦 federal and provincial rare disease strategies will help ‼️ bit.ly/3CCfzrJ #Canada4Rare #CdnPoli #ONPoli #CdnHealth #RareDiseases

URGENT! 🇨🇦WE NEED YOU🇨🇦 patients/caregivers in Canada to SHARE YOUR EXPERIENCE & VIEWS in CORD community survey 👉 tinyurl.com/CORD2022Englis… This will help healthcare leaders understand what Canadian rare disease patients are experiencing & expect!

When CORD’ Durhane Wong-Rieger held a press conference on hemophilia, only one journalist showed up. But that one reporter made a difference. “It went from being this an issue that nobody knew about to being front page issue.” nationalpress.org/topic/rare-dis…

Download here our agenda for the First Latin American Congress on Rare Diseases, which was designed to further knowledge and engagement in the rare disease ecosystem, forming the groundwork for stakeholders to take action at multiple levels. +

Ottawa to spend $1.5 billion to improve access to drugs for rare diseases cp24.com/lifestyle/otta… via CP24

🚨Attn Canadians w #rarediseases: CORD needs your help to ensure the National Strategy for Drugs for Rare Diseases is successful. Please sign this petition from MP Chris Lewis Essex to make it happen: petitions.ourcommons.ca/en/Petition/De… #cdnhealth #cdnpoli

WOW! THANK YOU to everyone who has signed the petition to help ensure the National Strategy for Drugs for Rare Diseases is successful. We have reached over 500 signatures in just over a week! LET’S DOUBLE THIS BY NEXT WEEK. PLS SIGN HERE 👉 petitions.ourcommons.ca/en/Petition/De…

Thrilled to participate at @CADTH_ACMTS #CADTHSymp panel in front of a packed room -> need patients as full partner for Health Canada and PHAC drugs for #RareDiseases strategy #CdnHealth #Canada4Rare Durhane Wong-Rieger

👏THANK YOU to everyone who has signed the petition to help ensure the National Strategy for Drugs for Rare Diseases is successful. We have reached over 1000 signatures! Let's keep the momentum going! 🇨🇦PLS SIGN HERE 👉 lnkd.in/g7_tZ8KZ

We’re sounding the alarm on the EU Joint Clinical Assessment. 🚨 The methodology proposed by EUnetHTA-21 would have rejected 90% of the cell & gene therapies authorized in the EU. ARM is issuing an urgent call to action to modernize the JCA’s framework. 1/4

🙌THANK YOU🙌 to everyone who has signed the petition to help ensure the success of the National Strategy for Drugs for Rare Diseases. Your support is incredible! We've already reached over 1900 signatures! Let's break 2000 by next week! 🇨🇦PLS SIGN HERE petitions.ourcommons.ca/en/Petition/De…