Down with Arthritis
@downarthritis
Advocacy group for children & adults w/ Down Syndrome Associated Arthritis. 1 in 50 kids with DS have Arthritis. Currently 5 year waiting list for Paeds Rheum.
ID: 1383178272012374018
16-04-2021 21:59:43
854 Tweet
399 Followers
1,1K Following
We are delighted to announce two Step Down facilities in Cabinteely & Deansgrange, they’re registered on the official Changing Places Toilets Map changingplaces.ie/find-changing-… There are 6 more in DunLaoghaireTown.ie to be registered. Stay posted for more updates. #WeAllGottaGo 
Huge thanks to Dún Laoghaire-Rathdown County Council on another registration of a new Changing Places Toilet at the Happy Out Café at the Dunlaoghaire baths registered on the official changingplaces.ie/find-changing-… #WeAllGottaGo #incLOOsion
Another step down facility has recently been registered in dlr LexIcon Venue in DunLaoghaireTown.ie thanks to Dún Laoghaire-Rathdown County Council 🙏 #WeAllGottaGo #incLOOsion Find it on the official map changingplaces.ie/find-changing-…
Happy birthday Dr Tom Clonan 🎂
My letter is in the The Irish Times today re medicine shortages An Bhanríon Alocin HSE Ireland HPRA Irish Pharmacy Union Children's Health Ireland Department of Health Stephen Donnelly irishtimes.com/opinion/letter…
And yet another registration today for Loughlinstown Leisure Centre from Dún Laoghaire-Rathdown County Council It’s a step down facility. It’s on the Changing Places Ireland official map changingplaces.ie/find-changing-… #WeAllGottaGo #incLOOsion
Maladministration in healthcare has devastating effects, particularly in the mismanagement of spinal surgery waitlists. Stephen Donnelly Simon Harris TD Children's Health Ireland must urgently address the children not listed as per national protocol. We’ve asked for: 1. Parents to be
Dr Tom Clonan & I were interviewed regarding the piece that Colin Farrell released a few weeks ago. It’s all about how supports stop at age 18 for our young adults with intellectual disability / Autism. Irish Daily Mirror The truth is that all of our adults need more support as they age.
Super informative presentation from Laura Durcan on how medical care has changed since 2006 Highlighting risks of ED ‘overflow’ Pop. Increase 1 million, less beds, older patients 👀 at the trolley numbers 🤨 Royal College of Physicians of Ireland #healthcare
🙏Amy Donohoe Children in Hospital Ireland for highlighting this issue for many families, long hospital stays are tough financially as well as emotionally/physically 💔😓 The Scoliosis Advocacy Network #BackUs HeartChildren The Jack and Jill Children's Foundation LauraLynn, Ireland's Children's Hospice Childhood Cancer Ireland independent.ie/irish-news/my-… Irish Independent RT
Important pre-budget submission for families who need some financial support for non-medical expenses when a child is in hospital long term or regularly. Heather Humphreys Department of Social Protection Family Carers Ireland Down Syndrome IRL The Down Syndrome Centre AsIAm Down Syndrome Limerick Anne Rabbitte TD HSE Ireland
Tomorrow at Dáil Éireann 🙏 Bernard Durkan TD James Lawless Réada Cronin TD Catherine Murphy Holly Cairns TD Regina Doherty MEP Richard Boyd Barrett Ivana Bacik #BackUs