Dr Ian Frayling πΊπ¦ #LongCovid
@Doctor_IMF
Past-President Association of Clinical Pathologists, patient, retd NHS. I usually do hereditary cancer. Trustee of @Long_Covid Support. Views my own.
ID:2974929028
12-01-2015 16:10:22
10,2K Tweets
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The proudest moment of my professional life. To win #teamscirnce AACR 2024 is beyond amazing. I cannot thank Emma Crosbie, Prof Evanβs and the team everything. So proud to have impacted the care of #lynchsyndrome carriers. We do it for the patients. UoM Biology, Medicine and Health The Centre for Reproductive Health
Sir John Burn Kevin Monahan neil ryan Dr Ian Frayling πΊπ¦ #LongCovid Lauramonje π Tristan Snowsill Kelly Kohut Dr Kelly Lloyd Neil Rajan if I have missed you off my list I apologise but feel free to comment below ππ₯πΎπ
Thanks to everyone involved in Lynch Syndrome genetics 𧬠( delia hollingworth )
We just want to do a shout-out and say a huge βthank youβ to our fantastic Trustees & Members who were involved in this work - Ruairidh Milne, Margaret O'Hara, Jo D π, Mike Ormerod & Dr Ian Frayling πΊπ¦ #LongCovid.
We know when you have #LongCovid how much work like this takes out of you, so thank you all.π
Lynch Syndrome UK well done & thank you for another fantastic conference on Saturday at U of Warwick. An inspiring gathering of dedicated people with #lynchsyndrome , researchers and clinicians with shared goals to improve knowledge, care experience and outcomes for families.
Our microclots methods finding traction! Prof Doug Kell CBE #FBPE #FBPAπΆπͺπΊ
Amyloid-Fibrinogen Aggregates ('Microclots') Predict Risks of Disseminated Intravascular Coagulation and Mortality
PDF: ashpublications.org/bloodadvances/β¦
Maybe Vaughan Gething and Welsh Government will now sit up, take notice and do something, such as providing medical Consultant-led #LongCovid clinics. If they don't then they will be discriminating against those disabled by #LongCovid
UK Covid-19 Inquiry
Long Covid Support π
Dr Ian Frayling πΊπ¦ #LongCovid Long Covid Support π There was a deliberate, concerted effort on Friday to poison public perception through the media. Even if corrections/retractions are made, the damage is already done. LC advocates don't have journalists in our pockets like these people do. We need scientists/Drs to speak up.
Today is #LongCovidAwarenessDay . My promise to patients who are desperate for acknowledgment and care: we will not stop until we have accessible diagnostics and accepted treatments. #noplaceforminimizers
whn.global/scientific/speβ¦
It's #LongCovidAwarenessDay . Why not listen to the latest EBNursingBMJ podcast by two of our trustees - Dr Michaela Barnard and Dr Alison Twycross RN: ebnbmj.podbean.com/e/reflections-β¦
#ConfrontLongCovid #CareForThoseWhoCared
Re lack of testing capacity in π΄σ §σ ’σ ·σ ¬σ ³σ Ώ & premature discharge of elderly.
The UK Covid-19 Inquiry should look into what happened to the negotiations with Roche by Gething that fell through. He said then wasn't the time to ask questions. Now is.
#WalesLive
Long Covid Support π
Covid-19 Bereaved Families for Justice Cymru
π£π¨ From our charity Advisor Ziyad Al-Aly, MD:
βThe world must not turn its back on people suffering from #LongCovid .
Long Covid is a global health crisis.
Addressing Long Covid is not only a moral imperative, it is an economic imperative.β
#ConfrontLongCovid
#LongCovid AwarenessDay
π
I'm the original subject in the first study by Prof Cummings on the effect of #LongCovid on language & cognition.
Cummings, L.
Int J Language Studies
15(3), 1-24. ISSN
2157-4898
researchgate.net/publication/35β¦
RCSLT π
Systems Immunity Research Institute
Long Covid Support π
We've just published our latest long covid story - Dianaβs Story - Click the link to read all the detail #LongCovid
shh-uk.org/dianas-story/
The Association of Clinical Pathologists Dr Ian Frayling πΊπ¦ #LongCovid pathologist.barbie Dr Suzy Lishman CBE π©π»βπ¬ Lovely to be in Cardiff for the The Association of Clinical Pathologists Council Meeting. Great venue, great food, great company. π