A really interesting topic! We wait for your updates! #df #desmoidfoundation #dtrf #desmoid #RareDisease #RECIST

** 𝐂𝐀𝐌𝐏𝐀𝐆𝐍𝐀 𝐒𝐎𝐂𝐈 𝟐𝟎𝟐𝟐 ** Sono aperte le iscrizioni soci per la Desmoid Foundation ONLUS, a supporto dei pazienti affetti da tumore #desmoide e Sindrome di Gardner❤️ Per saperne di più, visitate il nostro sito web: desmoidfoundation.org #desmoid #RareDisease

Thanks to Dr. Chiara Colombo and Dr. Costanza Figura for their participation at the 12th annual conference SPAGN.It was a meeting full of important informations and updates for #desmoid tumor. Thanks to Christina, Michi and all SPAGN staff for organizing it!

Register to Desmoid Tumor Research Foundation Int'l Desmoid Tumor Research Workshop Dr. Alessandro Gronchi will attend and speak about active surveillance in #desmoid tumors #df #desmoidfoundation #dtrf #

At ESMO2022 Dr. Bernd Kapser showed the good results of #Nirogacestat in #desmoid tumors! #df #esmo #RareDisease #desmoidfoundation

Desmoid tumors: Active surveillance in desmoid fibromatosis. bit.ly/3SrAGBB

3 December - International Day of Persons with Disabilities We are close to all patients with invisible disabilities, as all patients with #cancer. #desmoid #tumor is a rare disease and it's often an invisible #disease. But no one has to be let alone. Let's be kind always!

✏️Novità: dal 15 gennaio anche i Pazienti presi in carico dalla Chirurgia dei #Sarcomi potranno usufruire del servizio di #telemedicina 🖥️ Per maggiori informazioni in merito: istitutotumori.mi.it/pagina-articol… Istituto Tumori Alessandro Gronchi Marco Fiore, MD, FACS, FEBSh #ChiaraColombo Stefano Radaelli Dario Callegaro

Thank you to Italian Sarcoma Group to invite us to join more than 60 specialists in #desmoid tumor to speak about #cryoablation, systemic #therapies and #patient perception, #pregnancy and #nirogacestat. We sincerely thank each of these doctors! #df #isg #RareDisease

Wonderful multidisciplinary discussions today Global #desmoid consensus meeting Istituto Tumori in Milan Desmoid Tumor Research Foundation Desmoid Foundation ONLUS - Italia SOS DESMOIDE Sarcoma Foundation of America Italian Sarcoma Group

And after the successful day of the consensus meeting of desmoid tumor working group, today is the Italian desmoid patients’ day at ⁦Istituto Tumori⁩ ⁦Chirurgia dei Sarcomi INT⁩ Pregnancy, Surveillance, Cryotherapy, New drugs and more. ⁦CTOS⁩ ⁦⁦Desmoid Foundation ONLUS - Italia⁩

Thank you to SOS DESMOIDE , SPAGN , Desmoid Tumor Research Foundation for helping us to make this important event possible! #desmoidtumor #globalconsensusmeeting2023

👏👏👏 Chirurgia dei Sarcomi INT

A beautiful best practice work of collaboration between physicians and PAOs Marco Fiore, MD, FACS, FEBSh Alessandro Gronchi Chirurgia dei Sarcomi INT 💪

Special thanks to Pamela Musaio for the book explaining Rare tumors and inclusivity to kids in the schools and thanks to Sarcoma UniTo lab for the fantastic work carried out with passion and excellence! 👏👏👏

👏👏👏

Amazing day with Desmoid tumor community for SPAGN annual meeting in Rome #togetherwearestronger 🤙 SOS DESMOIDE Quiró @Enrikared giuliapersonenii

We’re so proud to have these extraordinary doctors at our side 🙏 Giacomo G Baldi @marcovitellaro Sandro Pasquali giuliapersonenii @Enrikared Marilena Ferreri