Whitney Dafoe
@dafoewhitney
Severe ME/CFS patient and advocate. Photographer, filmmaker, artist, creative. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊
ID: 1207749153150758912
https://lnk.bio/whitneydafoe 19-12-2019 19:46:58
1,1K Tweet
10,10K Followers
42 Following
Whitney Dafoe My feed shows me such a contrast today.. Matthew Hodson who lives a full life with HIV due to the (eventual after much stigma) investment in research for treatments, followed by Whitney Dafoe who like many lives with severe #ME awaiting the much needed research
Tracey Burgess Sam Liccardo NIH The biggest slap in the face is that Ron has gotten million$$$ of NIH-funded grants over his lifelong career in genetics...until he asked for money to find answers for ME/CFS. Those were denied. Never a good reason why.
This LACK of protocol in our NHMESS hospitals for SEVERE M.E. is a murderous disgrace & I will NOT mince my words. Let’s get ME Foggy Dog letter ✉️ trending #meawarenesshour #MURDERinME SIGN ✍️ 🔻🔻🔻 organise.network/actions/petiti… #pwME
Can the ME Community help ME Foggy Dog get more signatures on this petition and get it trending during ME Awareness hour this evening? ow.ly/3yKp50TfbNS #MyalgicEncephalomyelitis #VerySevereME #SevereME