Registration for the DTRF “Together We Will” Virtual Weekend (Sept 24-26) OPENS June 7th, marking the start of our summer-long #RFAVirtualChallenge fundraiser! DTRF.org/weekend Together we will… ADVANCE RESEARCH CONNECT EMPOWER OURSELVES FUND A CURE #DTRFWeekend2021

The Desmoid Foundation ONLUS - Italia Desmoid Foundation Italy, in collaboration with the Fondazione IRCCS Istituto Nazionale dei Tumori, has launched a survey to study the correlation between desmoid tumors and pregnancy. Learn more: bit.ly/3gzE5ge #desmoid #aggressivefibromatosis #pregnancy

#Desmoid tumors were once again a topic of discussion & award-winning research at #ASCO21. We extend our gratitude to the physicians & scientists around the globe working to find answers. View the ASCO abstracts & presentations on #desmoid tumors at meetings.asco.org/abstracts-pres…

Congratulations to all who worked on this study! 🥳 #ASCO21 #DesmoidTumourAwareness #DesmoidFibromatosis #AggressiveFibromatosis #SupportResearch #RareDisease #DesmoidTumor

Are you a patient diagnosed with a #DesmoidTumour BEFORE or DURING #pregnancy? If your answer is YES, please consider taking part in this important study. Find out more and register via the Desmoid Foundation ONLUS - Italia website at desmoidfoundation.org/en #DesmoidFibromatosis #SupportResearch

#ASCO21 presentation " Patient Reported Outcomes in Desmoid type Fibromatosis" Thank you to all who worked on this and congratulations on winning the Conquer Cancer Merit Award 🌟 #DesmoidTypeFibromatosis #DesmoidTumour #DesmoidFibromatosis #DesmoidTumor #BenignIsNotFine

A really important campaign from Teenage Cancer Trust - improving the provision of specialist psychological support is long overdue.

What perfect timing! We just concluded #DrugRepo21 and now we're marching into #Red4Research! Show your support by wearing something red♥️ and tag us in your photos! Three cheers for #Research, #Innovation and #DrugRepurposing 🙌👏

This is a common issue for many with chronic/lifelong conditions. It’s great to see something being done to combat those risks.

Share your support by wearing red! #Red4Research

** INTERNATIONAL STUDY: DESMOID TUMOR AND FERTILITY ** Are you a woman who was diagnosed with desmoid tumor DURING your #Fertile age? If the answer is YES, go to desmoidfoundation.org/.../desmoid-tu… and fill out the questionnaire! Scientific research starts with us! #df #desmoid #desmoide

It’s that time of year again & The Malcolm Whales Foundation are embarking on their annual #DorsetWalk21! Please follow, like, share and donate! This is an amazing cause very close to our hearts after they helped fund our #DFPC21 patient conference last year. #Support #Donate #Share

Register today for the #DTRFWeekend2021 (Sept. 24-26) and the summer-long #RFAVirtualChallenge at DTRF.org/weekend! Together we will… 🧩 CONNECT (9/24) 🧩 ADVANCE RESEARCH (9/24) 🧩 EMPOWER OURSELVES (9/25) 🧩 FUND A CURE (June-Sept & 9/26) #DesmoidTumourAwareness

** INTERNATIONAL STUDY: DESMOID TUMOUR AND FERTILITY ** Desmoid Foundation ONLUS - Italia are looking for women to take part in an international study into #DesmoidTumour’s & fertility. Scientific research starts with us! Find out more including links to take part below. #DesmoidFibromatosis

This is an event not to be missed for #DesmoidFibromatosis patients, carers & professionals! We can’t wait to take part again virtually this year! #DesmoidCommunity Look out soon for our annual RFA fundraiser for the DTRF too! #FundACure #DesmoidWarriors #DesmoidUnitedUK

September is 💙DESMOID TUMOUR AWARENESS MONTH #DesmoidTumourAwarenessMonth #DesmoidTumorAwarenessMonth #DesmoidTumour #DesmoidFibromatosis #Desmoid #DesmoidTypeFibromatosis #DesmoidTumor

Check out these #RFAChallengers who hit the 2nd #RFAVirtualChallenge Fundraising Milestone! With only 3.5 weeks to go, WE STILL NEED YOU to become an #RFAChallenger! Whether you raise $100 or $1K, TOGETHER we can advance #desmoid tumor research in 2022! DTRF.org/rfa

💙September is Desmoid Tumour Awareness Month 💙#DesmoidAwarenessMonth #DesmoidTumourAwarenessMonth #DesmoidTumorAwarenessMonth #DesmoidFibromatosis #Desmoid #AggressiveFibromatosis

St Mark's Hospital new #stoma #book will be a vital read for both #patients and #healthcare professionals, providing stoma patients with detailed information on stoma care and empowering them to independently care for their stoma on a daily basis. bit.ly/3yX8RqA

The perfect accessory this festival season! 🎉 💃🏻