Thrilled to be apart of the FTD Research Roundtable here in DC! Thank you The AFTD for gathering scientists, nonprofits, industry, and patients in one space to discuss the path forward! Thrilled to be able to hear insight from members of our SAB in the program!

Starting day 2 of the The AFTD research Roundtable!

Michelle Campbell at the FDA highlights the need to understand the lived experience of patients to be able to decide clinical meaningfulness of therapies at #2024ResearchRoundtable. #FTD

Steffen Thirstrup, MD, PhD from European Medicines Agency (EMA) says patient-reported data is equally as important as clinical data. #2024ResearchRoundtable #FTD

🌍 World FTD Awareness Week is less than 2 weeks away! From September 22–29, join us for a week of unity and action to #endFTD. Mark your calendars and get ready to raise awareness, share your story, and make a difference. Stay tuned for more details!

Thank you The AFTD for allowing Cure MAPT FTD to have representation at this incredible research rountable! Amazing to see all the work across all departments to #endftd.

What a TAUrrific week The Rainwater Charitable Foundation! Saw our inspiration and incredible human Linde Lee Cure MAPT FTD🌄 Connected with so many innovative scientists and clinicians. #Neuropathology crew gathered in effect 🔬💪 Judith Steen Chris Nowinski, Ph.D. Carlie L Cullen Lea T. Grinberg, M.D, Ph.D John Crary

On Sept 26, in observance of FTD Awareness Week, we are joining forces with The AFTD to discuss the latest frontotemporal dementia research findings and clinical trial options with guest expert Dr. Brad Dickerson. Register to ask your questions live! 💬

We're breaking our posting silence to congratulate Miller Lab graduate student miwei hu on her excellent poster presentation at the The Rainwater Charitable Foundation Tau Consortium last week. Miwei discussed the effects of #tau splicing on #sleep in #tauopathy. Keep up the great work!

Today Barbara discussed the concerns & necessities of a MAPT FTD platform trial at the FTD Prevention Initiative meeting. Please reach out if you'd like to meet us at International Society for Frontotemporal Dementias- Annika Roll and Barbara Dawson will be attending throughout the week. #ISFTD2024

Register to join us for the FTD Disorders Registry: Registry 101 Webinar on October 2nd at 4 pm ET. This webinar will cover the purpose of the Registry, how it works, and the critical role it plays in advancing research. Register: us02web.zoom.us/webinar/regist… #endFTD #FTDResearch

Visit the Cure MAPT FTD poster at International Society for Frontotemporal Dementias today at P238!

Come visit members Annika, Barb and Paul at the Cure MAPT FTD poster number P238 at International Society for Frontotemporal Dementias! #ISFTD

Thank you The AFTD for the opportunity to unite the advocates and partners working towards the same goal #endftd at #ISFTD2024 International Society for Frontotemporal Dementias

We have some great news for this World Alzheimer’s Day! 🌎 The House will vote on the bipartisan #NAPAAct and #AlzInvestmentAct on Monday. These bills will continue making Alzheimer’s and dementia a national priority. Tell your representative to VOTE YES ➡️

For the ones we've lost. For the ones we love. For the ones who have passed but still touch our lives. And for those to come. We strive for a world free of MAPT FTD. curemaptftd.org/#curemaptftd #FTDAwarenessWeek #endFTD The AFTD World FTD United

🌎 Day 2 of World FTD Awareness Week is all about support. AFTD has support groups for everyone on the FTD journey. Find the one that best fits your needs and join a community united to #endFTD or share how joining a group has helped you in the comments below ⬇️. Explore

Great news from Capitol Hill! The House unanimously passed the bipartisan #NAPAAct and #AlzInvestmentAct! 🎆 These important bills are now on their way to the president’s desk for a signature because advocates like YOU made your voices heard.