Cure IBM is proud to partner with international myositis groups and organizations to jointly establish World Myositis Day. This special day will be celebrated every year on September 21.   Share this information and join us in celebrating World Myositis Day every September 21!

Thank you The Lancet Neurology for recognising the value of this article! An excellent example of collaboration between industry and academia, and one of the largest IBM trials to date, providing important lessons for IBM research Prof Michael Hanna UCL Queen Square Institute of Neurology UCL_QS_CNMD

1/n) How to search for clinical trials‼️a🧵 Whether you’re a patient or a doctor 🧑‍⚕️, knowing how to access this information is crucial ⚠️ I demonstrate this to all my patients! 👉Special tip for #medicalstudents at the end 😊 #MedEd #Neurotwitter MedEdPORTAL #ClinicalTrials

The new ENMC criteria for the diagnosis of inclusion body myositis reflect increasing knowledge, recognize the diversity of the disease in different patients, utilize new and improving technologies, and simplify the diagnosis. cureibm.org/new-enmc-crite…

Man with inclusion body Myositis, pushed in a wheelchair, completes London Marathon. guernseypress.com/news/2024/04/2…

Future help for people with inclusion body myositis? Robots may be able to help provide caregiving for people with IBM and other physically disabling conditions. #als #mnd news.stonybrook.edu/newsroom/press…

The COVAD studies are large, international studies that have provided valuable information about autoimmune diseases. The COVAD-3 survey is now open and seeking volunteers. If you have inclusion body Myositis, please participate. cureibm.org/volunteers-nee…

Many people with inclusion body Myositis eventually need to use wheelchairs. Modern power wheelchairs are amazing technological aids, but, when they break, repairs are difficult. statnews.com/2024/05/01/whe…

When you need a caregiver, what do you do if something happens to your caregiver? #caregiver #carer #inhomecare #inclusionbodymyositis aarp.org/caregiving/bas…

The inclusion body myositis community is enthusiastic and hopeful about Abcuro’s current clinical trial of Ulviprubart (ABC008).

The Connecticut House of Representatives passed a bill to improve the wheelchair repair situation in CT. Bills like this are needed in every state. Talk with your state representative and start the process! #wheelchair #disability #accessibility ctnewsjunkie.com/2024/05/07/hou…

Self-driving wheelchairs? Why not? They can increase safety and mobility for people who use power wheelchairs. The linked article includes an excellent video. #wheelchair #disability #accessibility #inclusionbodymyositis fox32chicago.com/news/self-driv…

Apple is planning a software update that will allow people with advanced inclusion body myositis (IBM) to control their iPhone or iPad with their eyes. #ALS fox29.com/news/apple-ios…

Rare disease clinical research requires input from patients. europeanpharmaceuticalreview.com/article/228848…

When you have inclusion body myositis (IBM), you gradually become an expert about the disease and about living with a disability. Sharing your knowledge can be rewarding. huntingtonsdiseasenews.com/columns/helpin…

The Myositis Association is offering a research grant of up to $80,000 to study inclusion body myositis. Letters of intent are due tomorrow, May 24.

Peter Frampton, who will be inducted into the Rock and Roll Hall of Fame in October, provides an update on his life with inclusion body myositis (IBM). nextavenue.org/peter-frampton…

Enrollment for the Abcuro clinical trial of Ulviprubart (ABC008) for inclusion body myositis (IBM) is now complete. Abcuro expects to be able to release initial results of the trial during the first half of 2026. businesswire.com/news/home/2024…