Cure EB (@cureeborg) 's Twitter Profile
Cure EB

@cureeborg

Raising funds for #EpidermolysisBullosa research and clinical trials. Please support us by joining our fundraising initiatives 🦋 Together we can #cureEB

ID: 636465431

linkhttps://www.cure-eb.org/ calendar_today15-07-2012 21:18:50

8,8K Tweet

2,2K Followers

772 Following

Cure EB (@cureeborg) 's Twitter Profile Photo

#FabulousFundraiser William is taking on the Run Cheltenham half marathon for Cure EB this September! justgiving.com/page/william-h… 🏃 "My motivation for doing this is my three-year-old son, who was born with EB Simplex." #CureEB #ResearchtheCure #EpidermolysisBullosa #RunCheltenham

#FabulousFundraiser William is taking on the <a href="/CheltenhamHalf/">Run Cheltenham</a> half marathon for Cure EB this September! justgiving.com/page/william-h… 🏃

"My motivation for doing this is my three-year-old son, who was born with EB Simplex." 
#CureEB #ResearchtheCure #EpidermolysisBullosa #RunCheltenham
Cure EB (@cureeborg) 's Twitter Profile Photo

Just 6 weeks to go until our #ButterflyRun 🦋🏃👩‍🦽🚶‍♀️cure-eb.org/butterflyrun Book your place to run, walk, wheel or whatever you can do over 1k, 5k or 10k #CureEB #ResearchtheCure #TimetoFly #CharityRun #10k #5k #1kfunrun #HealEB #FightEB #Epidermolysisbullosa #RareDisease

Just 6 weeks to go until our #ButterflyRun 🦋🏃👩‍🦽🚶‍♀️cure-eb.org/butterflyrun

Book your place to  run, walk, wheel or whatever you can do over 1k, 5k or 10k
#CureEB #ResearchtheCure #TimetoFly #CharityRun #10k #5k #1kfunrun #HealEB #FightEB #Epidermolysisbullosa #RareDisease
Cure EB (@cureeborg) 's Twitter Profile Photo

"The progress that has been made as a result of Cure EB's efforts is extraordinary, and I have no doubt it will lead to treatment and a cure for this awful, destructive and agonizing condition." Duncan Wales - Cure EB trustee youtu.be/2mPNEY0anX0 #CureEB #ResearchtheCure #EB

Cure EB (@cureeborg) 's Twitter Profile Photo

If you or a family member have EB, join us for lunch, and hear about the latest in #EB #research, while the children are entertained with games and crafts. cure-eb.org/familyday - register for this free event! 📅 Sunday 29th September 📍 Queen Elizabeth Olympic Park #CureEB #ResearchtheCure

If you or a family member have EB, join us for lunch, and hear about the latest in #EB #research, while the children are entertained with games and crafts. cure-eb.org/familyday - register for this free event!
📅 Sunday 29th September
📍 <a href="/noordinarypark/">Queen Elizabeth Olympic Park</a>
#CureEB #ResearchtheCure
Cure EB (@cureeborg) 's Twitter Profile Photo

Counting down! 5 weeks to go until our fun, inclusive #ButterflyRun cure-eb.org/butterflyrun Run, walk, wheel, or whatever you can do to complete a 1k, 5k or 10k race. Thanks to Bain Capital & @4lilyfoundation for supporting this year's run #CureEB #ResearchtheCure #EB #Rare

Cure EB (@cureeborg) 's Twitter Profile Photo

Join us on Thursday 12th September as we talk to Prof Katsuto Tamai about his research. Our webinars are free but you must register: cure-eb.org/event/research… #CureEB #ResearchtheCure #EB #EpidermolysisBullosa #Research

Join us on Thursday 12th September as we talk to Prof Katsuto Tamai about his research.
Our webinars are free but you must register: cure-eb.org/event/research…

#CureEB #ResearchtheCure #EB #EpidermolysisBullosa #Research
Cure EB (@cureeborg) 's Twitter Profile Photo

1 month to go until we head to Queen Elizabeth Olympic Park for our fun and accessible Butterfly Run in the morning, followed by our EB Family Day in the afternoon 🏃‍♂️👩‍🦽#ButterflyRun cure-eb.org/butterflyrun 🦋🤸‍♀️#FamilyDay cure-eb.org/familyday #CureEB #ResearchtheCure #EB #Research

1 month to go until we head to <a href="/noordinarypark/">Queen Elizabeth Olympic Park</a> for our fun and accessible Butterfly Run in the morning, followed by our EB Family Day in the afternoon

🏃‍♂️👩‍🦽#ButterflyRun cure-eb.org/butterflyrun
🦋🤸‍♀️#FamilyDay cure-eb.org/familyday

#CureEB #ResearchtheCure #EB #Research
Cure EB (@cureeborg) 's Twitter Profile Photo

Good luck to supporter William who is taking part in Run Cheltenham in support of Cure EB on Sunday! justgiving.com/page/william-h… #CureEB #ResearchtheCure #EB #EpidermolysisBullosa #Research #FabulousFundraisers #RunCheltenham

Good luck to supporter William who is taking part in <a href="/CheltenhamHalf/">Run Cheltenham</a> in support of Cure EB on Sunday! justgiving.com/page/william-h…

#CureEB #ResearchtheCure #EB #EpidermolysisBullosa #Research #FabulousFundraisers #RunCheltenham
Cure EB (@cureeborg) 's Twitter Profile Photo

Help us reach our summer fundraising goals with your everyday online shopping! It only takes 2 minutes to join @GiveasyouLive, so start raising FREE donations today! 🦋giveasyoulive.com/join/cure-eb?u…

Help us reach our summer fundraising goals with your everyday online shopping! It only takes 2 minutes to join @GiveasyouLive, so start raising FREE donations today! 🦋giveasyoulive.com/join/cure-eb?u…
Cure EB (@cureeborg) 's Twitter Profile Photo

You're guaranteed a warm welcome at our Butterfly Run & we'd love you to join us this year! 🦋 cure-eb.org/butterflyrun 📅 Sunday 29th September 📍 Queen Elizabeth Olympic Park #CureEB #ResearchtheCure #ButterflyRun #OlympicPark #TimetoFly #10krun #5krun #1kfunrun #EpidermolysisBullosa #Rare

You're guaranteed a warm welcome at our Butterfly Run &amp; we'd love you to join us this year! 🦋 cure-eb.org/butterflyrun

📅 Sunday 29th September
📍 <a href="/noordinarypark/">Queen Elizabeth Olympic Park</a>

#CureEB #ResearchtheCure #ButterflyRun #OlympicPark #TimetoFly #10krun #5krun #1kfunrun #EpidermolysisBullosa #Rare
Cure EB (@cureeborg) 's Twitter Profile Photo

On International Day of Charity, here are a few ways you can support Cure EB 💙🦋 Find more ideas at cure-eb.org/support-us or let us know yours! #CureEB #ResearchtheCure #EpidermolysisBullosa #EB #Research #Charity

Cure EB (@cureeborg) 's Twitter Profile Photo

Our Research the Cure webinar with Prof Katsuto Tamai is next week! Our webinars are free and open to all, but you must register: cure-eb.org/event/research… Submit your questions in advance here: forms.office.com/e/g33JsdtdrF #CureEB #ResearchtheCure #EB #EpidermolysisBullosa #Research

Our Research the Cure webinar with Prof Katsuto Tamai is next week!

Our webinars are free and open to all, but you must register: cure-eb.org/event/research…

Submit your questions in advance here: forms.office.com/e/g33JsdtdrF

#CureEB #ResearchtheCure #EB #EpidermolysisBullosa #Research
Cure EB (@cureeborg) 's Twitter Profile Photo

If you or a family member have EB, we'd love you to join us Queen Elizabeth Olympic Park for our Family Day on Sunday 29th September. It's free to attend - find out more & register 👉 cure-eb.org/familyday 🎈👨‍👨‍👧‍👦🦋💙 #CureEB #ResearchtheCure #EB #EpidermolysisBullosa #Research #FamilyForum

If you or a family member have EB, we'd love you to join us <a href="/noordinarypark/">Queen Elizabeth Olympic Park</a> for our Family Day on Sunday 29th September.
It's free to attend - find out more &amp; register 👉 cure-eb.org/familyday
🎈👨‍👨‍👧‍👦🦋💙
#CureEB #ResearchtheCure #EB #EpidermolysisBullosa #Research #FamilyForum
Cure EB (@cureeborg) 's Twitter Profile Photo

Some of last year's 1k fun runners at our #ButterflyRun 💙 We'd love you to join us Queen Elizabeth Olympic Park this year whether you fancy a 1k, 5k or 10k: cure-eb.org/butterflyrun Thanks to Bain Capital & @4lilyfoundation for your support!🙌 #CureEB #ResearchtheCure #OlympicPark #EB #Rare

Cure EB (@cureeborg) 's Twitter Profile Photo

Don't forget, our #ResearchtheCure webinar with Prof Katsuto Tamai is tomorrow, Thursday 12th September. There's still time to register for this free webinar. Visit cure-eb.org/event/research… for more details and to sign up. #CureEB #EB #EpidermolysisBullosa #Research

Don't forget, our #ResearchtheCure webinar with Prof Katsuto Tamai is tomorrow, Thursday 12th September.  There's still time to register for this free webinar. Visit cure-eb.org/event/research… for more details and to sign up.

#CureEB #EB #EpidermolysisBullosa #Research
Cure EB (@cureeborg) 's Twitter Profile Photo

Just 2 weeks until our Butterfly Run cure-eb.org/butterflyrun & Family Day cure-eb.org/familyday We'd love to see you at Queen Elizabeth Olympic Park on Sunday 29th September 2024. Visit the links above to find out more! #CureEB #ResearchtheCure #TimetoFly

Just 2 weeks until our Butterfly Run cure-eb.org/butterflyrun  &amp; Family Day cure-eb.org/familyday

We'd love to see you at <a href="/noordinarypark/">Queen Elizabeth Olympic Park</a> on Sunday 29th September 2024. Visit the links above to find out more!

#CureEB #ResearchtheCure #TimetoFly
Cure EB (@cureeborg) 's Twitter Profile Photo

Not signed up to support Cure EB via Give as you Live 💙❤️💚 yet? You can earn cashback as donations on almost everything you buy online, and this week there are DOUBLE donations on offer! giveasyoulive.com/double-donatio…

Not signed up to support Cure EB via <a href="/giveasyoulive/">Give as you Live 💙❤️💚</a> yet? You can earn cashback as donations on almost everything you buy online, and this week there are DOUBLE donations on offer!  giveasyoulive.com/double-donatio…