CureCalpain3 (@curecalpain3) 's Twitter Profile
CureCalpain3

@curecalpain3

C3 is a non-profit organization driving research to cure limb-girdle muscular dystrophy type 2A, also referred to as LGMD2A/R1 and Calpainopathy

ID: 253344573

linkhttp://www.curecalpain3.org calendar_today17-02-2011 01:51:52

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CureCalpain3 (@curecalpain3) 's Twitter Profile Photo

New NSG.Capn3 KO mice are available The Jackson Laboratory! They are severely immunodeficient and may be useful for studying human cell transplantation for LGMD2A/R1. C3 is grateful to Vita Therapeutics for donating the strain. curecalpain3.org/new-lgmd2a-r1-…

National Organization for Rare Disorders (NORD) (@rarediseases) 's Twitter Profile Photo

#RareDiseaseDay is just one month away! 💙💜💚💗 The rarest day of the year is coming up on February 29, Leap Day. Learn how you can get involved to raise awareness for people who live with rare diseases and #ShowYourStripes: bit.ly/2BrULms

#RareDiseaseDay is just one month away! 💙💜💚💗

The rarest day of the year is coming up on February 29, Leap Day. Learn how you can get involved to raise awareness for people who live with rare diseases and #ShowYourStripes: bit.ly/2BrULms
CureCalpain3 (@curecalpain3) 's Twitter Profile Photo

Dr Jennifer Levy, C3 Scientific Director, shares insights from the LGMD EL-PFDD (externally-led patient-focused drug development meeting, which included LGMD2A/R1) at today’s LGMD Scientific Workshop

Dr  Jennifer Levy, C3 Scientific Director, shares insights from the LGMD EL-PFDD (externally-led patient-focused drug development meeting, which included LGMD2A/R1) at today’s LGMD Scientific Workshop
CureCalpain3 (@curecalpain3) 's Twitter Profile Photo

Got questions? C3 will answer them during a Zoom Coffee Break in honor of #RareDiseaseDay. Join us Wednesday, February 28 at 2:00 PM EST. Email us at [email protected] to sign up to receive the Zoom link, and be sure to include any questions you have! #CureCalpain3

Got  questions? C3 will answer them during a Zoom Coffee Break in honor of  #RareDiseaseDay. Join us Wednesday, February 28 at 2:00 PM EST. Email us at INFO@CURECALPAIN3.ORG to sign up to receive the Zoom link, and be  sure to include any questions you have! #CureCalpain3
CureCalpain3 (@curecalpain3) 's Twitter Profile Photo

It is Rare Disease Day! Enroll in the LGMD2A/Calpainopathy Registry today... Visit lgmd2a.iamrare.org #CureLGMD2A #CureLGMDR1 #CureCalpain3 #Calpainopathy #LGMDD4 #LGMD1I

It is Rare Disease Day! Enroll in the LGMD2A/Calpainopathy Registry today... Visit lgmd2a.iamrare.org

#CureLGMD2A #CureLGMDR1 #CureCalpain3 #Calpainopathy #LGMDD4 #LGMD1I
CureCalpain3 (@curecalpain3) 's Twitter Profile Photo

Looking forward to attending the 2024 Muscular Dystrophy Association Clinical & Scientific Conference in Orlando next week! Find C3 at our booth in the Patient Advocacy Pavilion and poster T357 in the LGMD session. #MDAConference #MuscularDystrophy #LGMD #CureCalpain3

Looking forward to attending the 2024 <a href="/MDAorg/">Muscular Dystrophy Association</a> Clinical &amp; Scientific Conference in Orlando next week! Find C3 at our booth in the Patient Advocacy Pavilion and poster T357 in the LGMD  session. #MDAConference #MuscularDystrophy #LGMD #CureCalpain3
Muscular Dystrophy Association (@mdaorg) 's Twitter Profile Photo

#MDA once again hosted the annual gathering of the Neuromuscular Advocacy Collaborative at the #MDAconference with MDA’s Vice President of Public Policy & Advocacy, @PMelmeyer. The meeting brought together leaders from 20+ neuromuscular advocacy organizations. MDA Advocacy

#MDA once again hosted the annual gathering of the Neuromuscular Advocacy Collaborative at the #MDAconference with MDA’s Vice President of Public Policy &amp; Advocacy, @PMelmeyer. The meeting brought together leaders from 20+ neuromuscular advocacy organizations. <a href="/MDA_Advocacy/">MDA Advocacy</a>
CureCalpain3 (@curecalpain3) 's Twitter Profile Photo

Dr. Jennifer Levy, C3 Scientific Director, catches up with Carol Abraham, Founder of @LGMDAwareness Foundation, and Kathryn Bryant Knudson, Founder of Kathryn Bryant Knudson, in the Patient Advocacy Pavilion at the #MDAConference #TeamLGMD

Dr. Jennifer Levy, C3 Scientific Director, catches up with Carol Abraham, Founder of @LGMDAwareness Foundation, and Kathryn Bryant Knudson, Founder of <a href="/speakfoundation/">Kathryn Bryant Knudson</a>, in the Patient Advocacy Pavilion at the #MDAConference #TeamLGMD
CureCalpain3 (@curecalpain3) 's Twitter Profile Photo

In addition to being the President & Founder of @LgmdAwarness, Carol Abraham is on the C3 Board of Directors. We love her thoughts about #MDAConference! x.com/MDAorg/status/…

CureCalpain3 (@curecalpain3) 's Twitter Profile Photo

C3 WELCOMES VOLKER STRAUB TO SCIENTIFIC ADVISORY BOARD! Read more: curecalpain3.org/volker-straub-… C3 is pleased to share that Dr. Straub has been appointed to our Scientific Advisory Board, joining Dr. Melissa Spencer (Chair), Dr. Kevin Campbell, Dr. Eric Hoffman, & Dr. Louis Kunkel.

C3 WELCOMES VOLKER STRAUB TO SCIENTIFIC ADVISORY BOARD! Read more: curecalpain3.org/volker-straub-…

C3 is pleased to share that Dr. Straub has been appointed to our  Scientific Advisory Board, joining Dr. Melissa Spencer (Chair), Dr. Kevin Campbell, Dr. Eric Hoffman, &amp; Dr. Louis Kunkel.
CureCalpain3 (@curecalpain3) 's Twitter Profile Photo

So excited that our Sarasota friends are hosting a FUNdraiser to celebrate #LGMDAwarenessDay! Join them as they team up with #CureLGMD2i to raise money to drive research toward a cure for #LGMD2A #LGMDR1 #Calpainopathy #LGMD2i #LGMDR9 eventbrite.com/e/891190925047…

So excited that our Sarasota friends are hosting a FUNdraiser to celebrate #LGMDAwarenessDay! Join them as they team up with #CureLGMD2i to raise money to drive research toward a cure for #LGMD2A #LGMDR1 #Calpainopathy #LGMD2i #LGMDR9 eventbrite.com/e/891190925047…
CureCalpain3 (@curecalpain3) 's Twitter Profile Photo

We look forward to working with C-Path and our LGMD organization colleagues on this task force "dedicated to advancing therapeutic development for limb-girdle muscular dystrophies (LGMDs)." c-path.org/c-path-to-lead…

We look forward to working with C-Path and our LGMD organization colleagues on this task force "dedicated to advancing therapeutic development for limb-girdle muscular dystrophies (LGMDs)." c-path.org/c-path-to-lead…
CureCalpain3 (@curecalpain3) 's Twitter Profile Photo

C3 announces RFA for research into #CAPN3 #Calpainopathy #LGMD2A #LGMDR1. Award intended for US & non-US based academic & biopharmaceutical organizations. Access full RFA with instructions here: curecalpain3.org/c3-announces-r…

C3 announces RFA for research into #CAPN3 #Calpainopathy #LGMD2A #LGMDR1.  Award intended for US &amp; non-US based academic &amp; biopharmaceutical organizations.  Access  full RFA with instructions here: curecalpain3.org/c3-announces-r…
Muscular Dystrophy Association (@mdaorg) 's Twitter Profile Photo

On #WorldScienceDay, we're proud to highlight the incredible impact science continues to have on the lives of people living with #neuromuscular diseases. Join Jeffery Chamberlain, PhD, as he shares exciting details about the 2025 #MDAconference. Register: MDAconference.org

CureCalpain3 (@curecalpain3) 's Twitter Profile Photo

C3 President Jordan Boslego: "I’m coming away from this meeting feeling optimistic and energized about the progress being made. There is a real feeling of momentum moving us closer towards a cure." curecalpain3.org/c3-scientific-…

C3 President Jordan Boslego: "I’m coming away from this meeting feeling optimistic and energized about the progress being made. There is a real feeling of momentum moving us closer towards a cure."  curecalpain3.org/c3-scientific-…