Chordoma Foundation (@chordomafdn) 's Twitter Profile
Chordoma Foundation

@chordomafdn

Improving the lives of those affected by chordoma. Leading the search for a cure.

Newsletter signup: chordoma.org/newsletter

ID: 44783529

linkhttp://www.chordoma.org calendar_today05-06-2009 01:13:04

3,3K Tweet

1,1K Followers

855 Following

Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

"It's been 25 years since Chuck was first diagnosed with chordoma, and 10 years since he passed away from it," says John Mainey, Chuck's dad. "I miss him every day but cherish the memories, good and bad, of his life." In wake of his family's devastating loss, John became one of

"It's been 25 years since Chuck was first diagnosed with chordoma, and 10 years since he passed away from it," says John Mainey, Chuck's dad. "I miss him every day but cherish the memories, good and bad, of his life."

In wake of his family's devastating loss, John became one of
Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

What an AMAZING day we had for our Team Chordoma race! ☀️🏃‍♂️‍Beyond grateful to everyone who met us in Jersey City last weekend to run, walk, and cheer each other on. It was a record-setting year on multiple levels, and we can't wait to put the funds you raised to work for

What an AMAZING day we had for our Team Chordoma race! ☀️🏃‍♂️‍Beyond grateful to everyone who met us in Jersey City last weekend to run, walk, and cheer each other on. It was a record-setting year on multiple levels, and we can't wait to put the funds you raised to work for
Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

Our Chordoma Community Day San Diego is coming up Saturday, November 16! 🔗Register here: bit.ly/CF_SanDiego We're looking forward to a terrific lineup, including: - Joseph Schwab, MD of Cedars-Sinai Medical Center (pictured), plus our own Josh Sommer and Dan Freed, PhD,

Our Chordoma Community Day San Diego is coming up Saturday, November 16!

🔗Register here: bit.ly/CF_SanDiego

We're looking forward to a terrific lineup, including:
- Joseph Schwab, MD of Cedars-Sinai Medical Center (pictured), plus our own Josh Sommer and Dan Freed, PhD,
Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

If you're a US chordoma patient with a skull base tumor, here's an opportunity to participate in a research study at Yale School of Medicine: chordoma.org/latest-updates…. Participation can be completed at home in about 45 minutes. This study could eventually be valuable for assessing treatment

Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

📍West Coast folks: If you've ever wanted to meet others affected by chordoma in your own backyard, here's your chance! Join us for our Chordoma Community Day San Diego on Saturday, November 16. 🔗Register: bit.ly/CF_SanDiego Our lineup includes stories from inspiring

📍West Coast folks: If you've ever wanted to meet others affected by chordoma in your own backyard, here's your chance! Join us for our Chordoma Community Day San Diego on Saturday, November 16.

🔗Register: bit.ly/CF_SanDiego

Our lineup includes stories from inspiring
Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

Last call to register for our Chordoma Community Day San Diego on Sat., Nov. 16! Join us to learn from experts, put new tools in your survivorship toolkit, and form bonds with other chordoma patients and caregivers. You'll leave feeling hopeful, empowered, and inspired. 🌟

Last call to register for our Chordoma Community Day San Diego on Sat., Nov. 16! Join us to learn from experts, put new tools in your survivorship toolkit, and form bonds with other chordoma patients and caregivers. You'll leave feeling hopeful, empowered, and inspired. 🌟
Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

Connect with others affected by chordoma in a virtual support group! Groups are available for patients, caregivers, adolescents and young adults, and individuals in various countries including Germany, the Netherlands, the UK, and (new!) Spain. View dates and register:

Connect with others affected by chordoma in a virtual support group! Groups are available for patients, caregivers, adolescents and young adults, and individuals in various countries including Germany, the Netherlands, the UK, and (new!) Spain. View dates and register:
Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

Our recent Chordoma Community Day San Diego left us feeling inspired by the warmth and resilience of chordoma patients and caregivers. We deeply appreciate our event sponsor, Cedars-Sinai, and the many attendees and presenters who made the day so memorable. We anticipate hosting

Our recent Chordoma Community Day San Diego left us feeling inspired by the warmth and resilience of chordoma patients and caregivers. We deeply appreciate our event sponsor, <a href="/CedarsSinai/">Cedars-Sinai</a>, and the many attendees and presenters who made the day so memorable.

We anticipate hosting
Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

Proud moment for our research team! Our scientists earned recognition at this year's CTOS meeting, the main international sarcoma research conference: 🎙️Nindo Punturi delivered our lab's first-ever invited oral presentation at a major conference 🏆 Posters presented by

Proud moment for our research team! Our scientists earned recognition at this year's <a href="/ctosociety/">CTOS</a> meeting, the main international sarcoma research conference:

🎙️Nindo Punturi delivered our lab's first-ever invited oral presentation at a major conference

🏆 Posters presented by
Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

🔬 $2M in new science happening! Through 9 newly funded projects, our grantees aim to: - Uncover new ways to exploit TBXT (brachyury) - Position chordoma patients to benefit from emerging treatment modalities - Illuminate new, more personalized treatment strategies Grateful to

🔬 $2M in new science happening! Through 9 newly funded projects, our grantees aim to: 
- Uncover new ways to exploit TBXT (brachyury)
- Position chordoma patients to benefit from emerging treatment modalities
- Illuminate new, more personalized treatment strategies

Grateful to
Itai Yanai (@itaiyanai) 's Twitter Profile Photo

I'm very grateful to the Chordoma Foundation for funding our lab's goal of uncovering chordoma cell states and the transition between them, and to identify ways to block these changes, with the goal of blocking their ability to resist therapies.

Matei Banu (@mateibanu) 's Twitter Profile Photo

Very grateful to the Chordoma Foundation for funding our work using spatial multi-omics on matched primary and recurrent chordoma to uncover metabolic vulnerabilities and new biomarkers for personalized treatments. Exciting work ahead with Shaan M. Raza, MD Kadir C Akdemir MD Anderson Cancer Center

Josh Sommer (@sommerjo) 's Twitter Profile Photo

Chordoma's most important target, TBXT (brachyury), has long been considered undruggable. Lots of emerging AI approaches and others purport to unlock progress for such difficult targets. To find out which can succeed we're launching the TBXT Challenge with $500K in prizes. More👇

Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

Thrilled to announce the launch of our TBXT Challenge, offering $500K+ in prizes to companies and research teams to accelerate TBXT (brachyury) targeted therapies. Excited for drug discovery innovators to enter this challenge, and very grateful to our supporters (incl.

Josh Sommer (@sommerjo) 's Twitter Profile Photo

Significant milestone for chordoma research and drug development. Deeply grateful to everyone who came together to make it happen: the investigators + The Mark Foundation for Cancer Research which co-funded the project with Chordoma Foundation, and Gary Sinise who is largely to thank for our investment in it. 🙏

Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

Clinicians and researchers: the Canadian International Sarcoma Symposium is coming up May 8-9, and will feature a dedicated session on chordoma. Virtual and in-person options available. More info: cissymposium.com

Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

Our latest Annual Report is here: chordoma.org/annualreport20…. 🎉 As you'll read, advances in the past year are unlocking vast new possibilities for chordoma treatment. We're deeply grateful to everyone who made 2024 our most impactful year yet, and we're excited to continue this

Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

We're happy to share that Pyxis Oncology's Phase 1 trial of PYX-201 (Micvotabart pelidotinaka “MICVO”) has opened to patients with sarcomas, including chordoma: clinicaltrials.gov/study/NCT05720… This opportunity came about in part from a discovery made using tumor tissue from our Biobank,

Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

We’re excited to be #hiring for several new roles to advance our mission. Right now, we’re looking for a Clinical Trial Navigator to help chordoma patients find and access promising trials, a Sr. Development Operations Manager to support our fundraising efforts, and a contract

Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

This week, we launched a survey of chordoma patients and caregivers to better understand their needs, preferences, and priorities related to clinical trials. This reflects our deep belief that patient-centered research and care is essential to driving meaningful progress.

This week, we launched a survey of chordoma patients and caregivers to better understand their needs, preferences, and priorities related to clinical trials.

This reflects our deep belief that patient-centered research and care is essential to driving meaningful progress.