Canadian Autoinflammatory Network (@cdnanetwork) 's Twitter Profile
Canadian Autoinflammatory Network

@cdnanetwork

A Canadian not-for-profit dedicated to empowering autoinflammatory patients, families and researchers.

ID: 1552643419297685507

linkhttp://www.autoinflammatory.ca calendar_today28-07-2022 13:14:25

361 Tweet

264 Followers

532 Following

Canadian Rare Disease Network (CRDN) (@canadianrdn) 's Twitter Profile Photo

Meet Dr. Ian Stedman, Assistant Professor in the School of Public Policy and Administration at York University and our "Care, Support, and Empowerment" Pillar Lead! Head over to canadianrdn.ca/bio-page-for-d… to learn more about Dr. Stedman’s work! #CRDN #MeetOurSteeringCommittee

Meet Dr. Ian Stedman, Assistant Professor in the School of Public Policy and Administration at <a href="/YorkUniversity/">York University</a> and our "Care, Support, and Empowerment" Pillar Lead!

Head over to canadianrdn.ca/bio-page-for-d… to learn more about Dr. Stedman’s work!

#CRDN #MeetOurSteeringCommittee
Canadian Rare Disease Network (CRDN) (@canadianrdn) 's Twitter Profile Photo

Rencontrez le Dr. Ian Stedman, professeur adjoint à la School of Public Policy and Administration de l' York University et notre responsable du pilier "Care, Support, and Empowerment." Rendez-vous sur canadianrdn.ca/bio-page-for-d… pour en savoir plus sur le travail du Dr. Stedman!

Rencontrez le Dr. Ian Stedman, professeur adjoint à la School of Public Policy and Administration de l' <a href="/YorkUniversity/">York University</a> et notre responsable du pilier "Care, Support, and Empowerment."

Rendez-vous sur canadianrdn.ca/bio-page-for-d… pour en savoir plus sur le travail du Dr. Stedman!
Canadian Autoinflammatory Network (@cdnanetwork) 's Twitter Profile Photo

We are happy to announce our next event in the Questions, Answered series! Join us with Dr. Helen Lachmann on Aug 11 from 1 to 2:30pm to learn about how autoinflammatory disease and treatments affect reproductive health. Register today! eventbrite.ca/e/reproductive…

We are happy to announce our next event in the Questions, Answered series!

Join us with Dr. Helen Lachmann on Aug 11 from 1 to 2:30pm to learn about how autoinflammatory disease and treatments affect reproductive health. Register today!

eventbrite.ca/e/reproductive…
Ashish Marwaha BMBCh, MA, PhD, FABMGG,FCCMG, FRCPC (@drashm2) 's Twitter Profile Photo

Happy to see our review on autoinflammatory diseases with a focus in adults now published: RHM Journal Autoinflammatory Diseases: A Review jrheum.org/content/early/…

DMM Journal (@dmm_journal) 's Twitter Profile Photo

Also, read this #PatientVoice🏥📣 interview with Ian Stedman, a #PatientAdvocate for people living with autoinflammatory diseases. He emphasises the importance of broad cross-disciplinary approaches to improving healthcare and research. @yorkuniversity journals.biologists.com/dmm/article/17…

Also, read this #PatientVoice🏥📣 interview with <a href="/IStedman/">Ian Stedman</a>, a #PatientAdvocate for people living with autoinflammatory diseases. He emphasises the importance of broad cross-disciplinary approaches to improving healthcare and research. @yorkuniversity 

journals.biologists.com/dmm/article/17…
Canadian Rare Disease Network (CRDN) (@canadianrdn) 's Twitter Profile Photo

August is #InternationalAutoinflammatoryAwarenessMonth 🌟 To kick off the month, we’re highlighting an interview with Ian Stedman from York University, a #patientadvocate in the autoinflammatory disease community. 📖 Read the full interview here: journals.biologists.com/dmm/article/17…

August is #InternationalAutoinflammatoryAwarenessMonth 🌟

To kick off the month, we’re highlighting an interview with Ian Stedman from <a href="/YorkUniversity/">York University</a>, a #patientadvocate in the autoinflammatory disease community.

📖 Read the full interview here: journals.biologists.com/dmm/article/17…
Canadian Rare Disease Network (CRDN) (@canadianrdn) 's Twitter Profile Photo

Le mois d'août est le #InternationalAutoinflammatoryAwarenessMonth🌟 Pour lancer le mois, nous mettons en lumière un entretien avec Ian Stedman de l' York University , un #patientadvocate dans la communauté des maladies auto-inflammatoires. 📖Voir ici: journals.biologists.com/dmm/article/17…

Le mois d'août est le #InternationalAutoinflammatoryAwarenessMonth🌟

Pour lancer le mois, nous mettons en lumière un entretien avec Ian Stedman de l' <a href="/YorkUniversity/">York University</a> , un #patientadvocate dans la communauté des maladies auto-inflammatoires.

📖Voir ici: journals.biologists.com/dmm/article/17…
Canadian Rare Disease Network (CRDN) (@canadianrdn) 's Twitter Profile Photo

🌟 Webinar alert for #AutoInflammatoryMonth! 🌟 Don’t miss out on this webinar about #autoinflammatory disease & reproductive health! 👉 Looking for more #raredisease events? Check out our calendar for all the latest happenings: canadianrdn.ca/events/

Canadian Rare Disease Network (CRDN) (@canadianrdn) 's Twitter Profile Photo

🌟 Alerte webinaire pour le #MoisAutoInflammatoire 🌟 Ne manquez pas ce webinaire sur les maladies #auto-inflammatoires et la santé reproductive ! 👉 Vous recherchez d’autres événements #maladiesrares? Consultez notre calendrier: canadianrdn.ca/events/

Canadian Autoinflammatory Network (@cdnanetwork) 's Twitter Profile Photo

The CN Tower / Tour CN is lighting up Orange for Autoinflammatory Awareness Month TONIGHT!! Can’t make it to view the tower in person? Check out the Live web cam just after sunset. cntower.ca/live-views #shine4autoinflammatory #august4autoinflammatory #autoinflammatory

RBC Place London (@rbcplacelondon) 's Twitter Profile Photo

In support of Autoinflammatory Disease Awareness Day, we're turning our exterior lights orange today on behalf of Canadian Autoinflammatory Network and in recognition of those living with autoinflammatory diseases. #LightingRequest #AwarenessDay

In support of Autoinflammatory Disease Awareness Day, we're turning our exterior lights orange today on behalf of <a href="/CdnANetwork/">Canadian Autoinflammatory Network</a> and in recognition of those living with autoinflammatory diseases. #LightingRequest #AwarenessDay
Alexandru Stieber (@alexstibi) 's Twitter Profile Photo

#GRAI (Romanian Group for Autoinflammatory Diseases) presents a graphic summary for A20 haploinsufficiency, one of the monogenic mimickers of Behçet syndrome! #autoinflammatory #behcet

#GRAI (Romanian Group for Autoinflammatory Diseases) presents a graphic summary for A20 haploinsufficiency, one of the monogenic mimickers of Behçet syndrome! #autoinflammatory #behcet
Catherine Stratton, MPH (@cathsmstratton) 's Twitter Profile Photo

Are you a #PatientPartner, clinician or researcher & been involved in forming a #RareDisease patient registry in Canada? As part of my PhD, I’m conducting semi-structured interviews to learn about these experiences. Please email [email protected] to learn more!

Are you a #PatientPartner, clinician or researcher &amp; been involved in forming a #RareDisease patient registry in Canada? As part of my PhD, I’m conducting semi-structured interviews to learn about these experiences. Please email catherine.stratton@mail.utoronto.ca to learn more!
PhenoTips (@phenotips) 's Twitter Profile Photo

Founder of Canadian Autoinflammatory Network, #RareDisease patient advocate Ian Stedman spoke about PhenoTips and his experience using #DataAnalytics to aid #diagnosis with PhenoTips' founder Dr. Michael Brudno. Read the complete interview in The Company of Biologists' DMM Journal here: journals.biologists.com/dmm/article/17…

Founder of <a href="/CdnANetwork/">Canadian Autoinflammatory Network</a>, #RareDisease patient advocate <a href="/IStedman/">Ian Stedman</a> spoke about PhenoTips and his experience using #DataAnalytics to aid #diagnosis with PhenoTips' founder Dr. Michael Brudno.

Read the complete interview in <a href="/Co_Biologists/">The Company of Biologists</a>' <a href="/DMM_Journal/">DMM Journal</a> here: journals.biologists.com/dmm/article/17…
Canadian Rare Disease Network (CRDN) (@canadianrdn) 's Twitter Profile Photo

Exciting news this #AutoinflammatoryAwarenessMonth! Canada is launching its first-ever national registry for systemic autoinflammatory diseases (SAID)! 🎉 This national registry will revolutionize research and patient care! Learn more here: tinyurl.com/yc7chsjr

Exciting news this #AutoinflammatoryAwarenessMonth! Canada is launching its first-ever national registry for systemic autoinflammatory diseases (SAID)! 🎉

This national registry will revolutionize research and patient care! 

Learn more here: tinyurl.com/yc7chsjr
Autoinflammatory Awareness Month (@autoinflammonth) 's Twitter Profile Photo

Recording from the Sat 08 Aug Int'l Autoinflammatory Awareness Month program. Thanks for the Drs amazing talks & all that have done events, & raised awareness. Prof Sophie Georgin-Lavialle & Prof Erkan Demirkaya spoke Cick globe for translation. 🧡 us02web.zoom.us/rec/share/CgKL… #RheumTwitter