Cardiac Neurodevelopmental Outcome Collaborative
@CardiacNeuro
Working together and partnering with families to optimize neurodevelopmental outcomes for #CHD through clinical, quality, and research initiatives
ID:942746860938285059
http://www.cardiacneuro.org/ 18-12-2017 13:22:21
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So excited to see this out in the world!
Clinical Risk Assessment & Prediction in Congenital #HeartDisease Across the Lifespan: JACC Scientific Statement
jacc.org/doi/10.1016/j.…
Congrats Alexander (Sasha) Opotowsky, Ariane & team!
JACC Journals
#CHD #ACHD #MentalHealthAwarenessMonth
Hot off the presses from one of our own, Kristin Elgersma, PhD!! This publication looks specifically at the cCHD population (so needed!) and associations between direct breastfeed and ND outcomes. #feedthebabyMonday #MilkMonday
cambridge.org/core/journals/…
Sharing a new paper on associations between human milk, #breastfeeding , and #neurodevelopment for infants with #CHD . In a small, limited, sample, we found interesting differences in cognition, language, and motor scores related to #nutrition .
doi.org/10.1017/S10479…
🚨 Paper alert 🚨 Our paper on #executivefunctions and primary neurodevelopmental processes in children with #CHD has just been published! Some interesting results from the #Teenheart study!
Melanie Ehrler
Kinderspital Zürich
🤓⬇️
jpeds.com/action/showPdf…
Happy Friday! Get those #CNOC2024 abstracts in! The process is easy. Deadline is Wed. May 15 - 11:59ET for the procrastinators 😉
Can’t wait to see the Cardiac Neurodevelopmental Outcome Collaborative #CHD #QoL presentations STLChildrensHospital! Sept 11-13. Registration/hotels are already open for the early birds 🪱
📣 Submit nomination letters by 5/28 for the annual Newburger-Bellinger Award OR the inaugural Advocacy/ Engagement Award. Winners will present at the 2024 scientific sessions #CNOC2024 in STLChildrensHospital 9/12-14 #CHD #neurodevelopment 🧠🫀
cardiacneuro.org/cardiac-neurod…
Mental health can be a struggle for kids diagnosed with congenital heart defects — and their parents too. Join us NOW for a special convo hosted by JT Laybourne on the connection between CHD and mental well-being. Conversation is also available on demand. spr.ly/6011j5vBP
May is #MentalHealthAwarenessMonth . Let’s chat why #MentalHealthMatters in #pedstxp :
Fact: Children/Teens with Depression Pre-Heart Transplant experience Worse Graft Survival 5 Years Post-Txp and Higher Rates of Hospital Readmission.
(📄 by Scott Auerbach, MD et al).
Years of effort and dedication went into this work to highlight the implementation of NIDCAP and developmental care in the CICU. So glad we had a wonderful team to carry this out.
Valerie Rofeberg dorothy vittner #nidcap Cardiac Newborn Neuroprotective Network
file:///C:/Users/butler_s/Downloads/fped-12-1384615.pdf
NEW DATA:
1. Critical #CHDs are lifelong dzs & carry a longer burden of care than common CV dzs- on average six of the cCHDs have ~ 14x higher lifetime burden of medical costs than congestive heart failure (CHF), w/ lifetime indirect costs ~23X more.
additionalventures.org/wp-content/upl…