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Keith Valentine, Fight For Sight/Vision Foundation CEO, spoke to Stephen White co-founder of Cure Usher. Listen to what Stephen had to say about the search for a cure and how raising awareness directly funds research into the condition. 🔗 ow.ly/r0WP50RuTMO #UsherSyndrome

#UsherSyndrome is a rare genetic disorder that causes both sight and hearing loss. There are over 11,000 people living with Usher Syndrome in the UK alone and around 400,000 worldwide. Learn what its like living with Usher Syndrome with Cure Usher 🔗 youtube.com/watch?v=SQXHR3…

A toddler in Oxfordshire, who was born deaf, can now hear unaided after a groundbreaking gene-therapy treatment. Jo Milne was also born deaf and received a cochlear implant in 2014 aged 39. She says being able to hear makes her feel 'part of society now'. #BBCPM

Thanks guys 🙌🏼♥️

The one and only Jo Milne Cure Usher

Join us to learn more about sightloss research and why it is so important to patients. @retinauk Cure Usher Bardet-Biedl Syndrome UK (BBS UK) Alström Syndrome UK Rare Disease UK RARE Revolution Magazine Genetic Alliance RNIB #cilia #retina #sightloss #rp #alstrom #bbs ciliopathyalliance.org/news-and-event…

❤️ #EastEnders

Great webinar about latest research into retinitis pigmentosa from Roly Megaw and how research impacts patients from Steve White Cure Usher #retinaldystrophy #RP #blindness #research #cilia #ciliopathies

If you can listen in to BBC Berkshire today 6 June 10.30-11.00am to hear our very own Molly Barnes (aka Molly Watt) (deafblind) speaking about her recent RNIB See Differently award - delighted she’s had recognition of the incredible work she does for our community Cure Usher Usher Kids UK Prof Mariya Moosajee

Highlight of today’s UK Eye Genetics Group annual meeting was listening to Laura Norton & Mark Jordon share their personal & distressing path to getting a diagnosis of #UsherSyndrome for their kids. Its astounding how many clinicians have no awareness of the condition Cure Usher

Thank you UK Eye Genetics Group for the invite to speak at todays conference. You made Laura Norton and myself so welcome . As parents of children with #ushersyndrome we are on a mission to raise awareness. Anybody needing more information visit cureushersyndrome.com

It’s #DeafBlindAwarenessWeek. Thank you Cure Usher and Deafblind UK for providing us with the information to pass on to #CustomerService teams before someone arrives. This in the moment training in changing awareness across the UK. #Tech4Good #WelcoMeApp youtu.be/gwC3aUZKq_Y?si…

Golf Captains Play 72 Holes in a Day to Raise Money for Charities - henleyherald.com/2024/07/11/gol… #Henley Cure Usher Chiltern Centre BadgemorePark

Please take a look ♥️

AJ Bell Great North Run, it's the big day!🤩 🙌Today, 60,000 participants will run the iconic 13.1 mile Great North Run route from Newcastle to South Shields, following in the footsteps of 1.3 million before them. 🎓Class of 2024, are you ready to go for greatness?!

Good luck to all of our runners today for Great Run #GreatNorthRun Cure Usher #ushersyndrome Please tag us and send us pics. We are cheering you on all the way. You got this. 🏆🏆

👀 #GreatNorthRun

One of our amazing runners Neil Grainger for Cure Usher for todays #greatnorthrun2024 Great Run super proud. You got this Neil 🏆♥️

Smashed it Great Run for Cure Usher

What a wonderful afternoon at Six Restaurant for the press launch of the inaugural @CUREusher Ball this weekend! Set to be a star-studded evening, @westnautical are proud to be the headline sponsors of the event alongside @drinkwataco. #newcastleupontyne #yachts #superyachts