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Ueberham et al. from the University of Leipzig examined 62 patients with suspected cardiac sarcoidosis and compared the WASOG, HRS, and JCS criteria. They also found a substantial disagreement among the current diagnostic recommendations. sciencedirect.com/science/articl…

Newly diagnosed with sarcoidosis? Join FSR TODAY May 31, 2022 from 5:00 PM – 6:00 PM CT for an Introduction to Sarcoidosis virtual event! Learn more and register: loom.ly/arYuwy4 #sarcoidosis #sarcoidosisawareness #virtualevent #raredisease #sarctwitter

Newly diagnosed and long-term #sarcoidosis patients and caregivers are invited to attend FSR's Global Virtual Patient Summit on July 30 - 31! Early Bird Reg is $60 until June 30. Learn more and register: bit.ly/38KTD14 #sarcoidosisawareness #raredisease #sarctwitter

Great to see cardiac sarcoidosis getting airtime. In 2007, Frank Bogun met me at an HRS poster (ECGs in Sarcoidosis). We committed to collaborating and found out that Jordana Kron was collecting data on ICDs with Kenneth Ellenbogen…from there, Cardiac Sarcoidosis Consortium was born.

Looking for insights on how to manage #fatigue? Or tips on how to navigate the healthcare system? Life Hacks: Unveiling Your Best Life with #Sarcoidosis at this year’s FSR Global Sarcoidosis Virtual Patient Summit is for you! Learn more: loom.ly/tPy687k #sarctwitter

It is our great honor to announce the 2023 Dr. Carolyn McCue Award for Woman Cardiologist of the Year will go to Annabelle Santos Volgman, MD, FACC, FAHA. ❤️🎉bitly.ws/sWKS AnnabelleVolgman MD Rush University System for Health Jordana Kron Phoebe Ashley Sharonne Hayes MD

Welcome James_Mbualungu to #MedTwitter and to UVA CVRC - excited to have him as part of the research team here UVA CVRC after a long and successful partnership VCU Health Pauley Heart Center, wishing him best of luck for medical school UVA Medicine

Check out our new blog, as Patient Advocate Susan writes about her experience attending the Summit and what she is most looking forward to this year: loom.ly/pxE_5oQ Read the Summit FAQ for learn more about the Summit: loom.ly/Ea0duDs #sarcoidosis

TODAY IS THE LAST DAY TO REGISTER FOR THE SUMMIT! Watch the video below for a special sneak peek of the summit experience: loom.ly/AI97daI Learn more and register here: bit.ly/38KTD14 #sarcoidosis #raredisease #sarcevent #sarcoidosisawareness

FSR is pleased to partner with ATS in order to provide funding support for this important research project. We congratulate Dr. Ghosh and look forward to the critical learnings that will stem from his research efforts!

Offered through VCU Health Pauley Heart Center, this program brings students to MCV Campus for rotations and mentored research experience. bit.ly/3KAOQxr

Update on CSC in European Heart Journal! Thank you to all the CSC centers! William H. Sauer, MD Kenneth Ellenbogen Jordana Kron EHJ Editor-in-Chief Kristen Patton Francis Murgatroyd🇪🇺🇬🇧🇪🇺🇬🇧 Pyotr Platonov Kostas Siontis Dave Rosenthal Chetan Shenoy Henri Roukoz EP adarsh bhan VCU Health Pauley Heart Center FSR doi.org/10.1093/eurhea…

Are you interested in being a voice or providing support for the #sarcoidosis community in your area? Consider using your skills and applying to become a an FSR Global Sarcoidosis Clinic Alliance Volunteer! loom.ly/R7RKABU #sarctwitter

In Episode 72 of the FSR Sarc Fighter #podcast, Regina Gordon shares the story of how #sarcoidosis has curtailed her life for decades. But Regina is not willing to give up! Listen now: loom.ly/8T4RX7U #chronicillness #raredisease #sarctwitter #medtwitter

Many more trials needed in cardiac sarcoidosis Very nice editorial from Ron Blankstein Sanjay Divakaran From @jaccjournals jacc.org/doi/10.1016/j.… Jordana Kron - planning for MAGIC-ART-2 at VCU Health Pauley Heart Center UVA Cardio UVA CVRC

Another insightful Cardiac Sarcoidosis Consortium site-wide call! Thank you to all sites and investigators for your continued support and dedication! #cardiacsarcoidosis #sarcoidosis #csc

Cardiac sarcoidosis affects more than 10% of people with #sarcoidosis in the United States, and perhaps as many as 25%. Because heart problems can be very serious, everyone who has sarcoidosis should be screened for cardiac sarcoidosis. Learn more: loom.ly/hpq0iQA

Show your support for #worldsarcday! Thank you to the all the sarcoidosis patients who support #sarcoidosis research and awareness!💜

Please join the FSR FSR on 6/8 for an exciting and interactive symposium on hot topics in #CardiacSarcoidosis Jonathan Chrispin Farooq Sheikh Mitchell Psotka @JLovellMD Jan Griffin Sanjay Divakaran Jordana Kron Chetan Shenoy