Complex Disorders Alliance (@coda_research) 's Twitter Profile
Complex Disorders Alliance

@coda_research

The Complex Disorders Alliance is an innovative, patient-founded, patient-focused, nonprofit dedicated to accelerating research for complex conditions.

ID: 1910042153868537856

linkhttp://www.complexdisorders.org calendar_today09-04-2025 18:48:41

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27 Followers

61 Following

Rob Wüst (@robwust) 's Twitter Profile Photo

The 52nd European Muscle Conference (EMC 2025) takes place from September 20–24 2025 in Amsterdam, Netherlands. This annual event brings together scientists to discuss the latest advancements in muscle science.​ More information on emc2025amsterdam.com!

Complex Disorders Alliance (@coda_research) 's Twitter Profile Photo

Our team is AMAZING - they are so focused on helping patients and driving new treatments and cures. They walk the walk with every patient out there. Go Team CODA!!

Complex Disorders Alliance (@coda_research) 's Twitter Profile Photo

Your donation can fund critical research to understand the EDS-CCI connection, improve diagnosis, and develop better treatment options. Donate today by texting TEAMCODA to 53-555 or visiting hubs.la/Q03nQNMr0

Your donation can fund critical research to understand the EDS-CCI connection, improve diagnosis, and develop better treatment options.

Donate today by texting TEAMCODA to 53-555 or visiting hubs.la/Q03nQNMr0
Prof Linda Gay Griffith (@lindaggriffith1) 's Twitter Profile Photo

Here in the Research Directions Workshop in Sydney, after the World Congress of Endometriosis, there is a lot of discussion about including adenomyosis (hooray for that!). This new paper from Dr Varsha Jain offers a much needed next step in diagnosis. fertstertscience.org/article/S2666-…

Complex Disorders Alliance (@coda_research) 's Twitter Profile Photo

The impact of #LongCOVID and other complex disorders on the quality of life for patients is extensive. We are advancing high-quality, well-organized, collaborative, data-driven #research to match the massive need of this underserved patient population. #JoinUs

Tom Kindlon (@tomkindlon) 's Twitter Profile Photo

On 30th May, the 17th Invest in ME Research International ME Conference will be held. Related article: European Research and International ME Conference Week investinme.org/iimer-newslet-… #PwME #MEcfs @invest_in_me (Invest in ME Research) 🇪🇺

Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Chronic illness doesn't just affect your health, it can alter your abilities, independence, control. Sometimes healing means allowing the space to grieve those very real losses. How do you cope with the loss? #pots #dysautonomia #motivationalmonday

Chronic illness doesn't just affect your health, it can alter your abilities, independence, control. Sometimes healing means allowing the space to grieve those very real losses. How do you cope with the loss?

#pots #dysautonomia #motivationalmonday
Amy Rochlin (@amyrochlin) 's Twitter Profile Photo

At Complex Disorders Alliance we are mobilizing patients to join forces to demand coordinated, data-driven research to give patients the answers they need. Visit complexdisorders.org to bring hope & health to patients. #LongCOVID #MECFS #POTS #Migraine #IBS #Sjogrens #MCAS #EDS #chronic

Complex Disorders Alliance (@coda_research) 's Twitter Profile Photo

Migraines and headaches aren't invisible to us. We see the overlap with complex disorders. That's why we're investing in more than awareness, we're investing in solutions. We're committed to supporting those who live with it and funding research that leads to better answers,

Migraines and headaches aren't invisible to us. We see the overlap with complex disorders. That's why we're investing in more than awareness, we're investing in solutions.

We're committed to supporting those who live with it and funding research that leads to better answers,
PolyBio (@polybiorf) 's Twitter Profile Photo

We are seeking Long COVID participants for this PolyBio-supported Sirolimus (low-dose #rapamycin) trial. To learn more about the trial check out this talk by PolyBio Research Director Dr. Amy Proal. She overviews the trial design and rationale: m.youtube.com/watch?v=nzwH55…

We are seeking Long COVID participants for this PolyBio-supported Sirolimus (low-dose #rapamycin) trial. 

To learn more about the trial check out this talk by PolyBio Research Director Dr. Amy Proal. She overviews the trial design and rationale: 

m.youtube.com/watch?v=nzwH55…
Complex Disorders Alliance (@coda_research) 's Twitter Profile Photo

At CODA, we’re using advanced science to better understand the complex conditions that affect our community. By studying multiple layers of biology—like genes, proteins, and metabolites—we’re uncovering important clues about how chronic complex conditions develop and progress.

At CODA, we’re using advanced science to better understand the complex conditions that affect our community. By studying multiple layers of biology—like genes, proteins, and metabolites—we’re uncovering important clues about how chronic complex conditions develop and progress.
Magee-Womens Research Institute & Foundation (@mageewomens) 's Twitter Profile Photo

Women are 3x more likely to get migraines than men, per American Migraine Foundation. Here are some key insights: ➡️ Menstruation, pregnancy, menopause, and hormonal changes impact migraine intensity and frequency. ➡️ Migraine pain can impact involvement, work, family, and quality of life at

Women are 3x more likely to get migraines than men, per <a href="/amfmigraine/">American Migraine Foundation</a>. Here are some key insights:

➡️ Menstruation, pregnancy, menopause, and hormonal changes impact migraine intensity and frequency.
➡️ Migraine pain can impact involvement, work, family, and quality of life at
Complex Disorders Alliance (@coda_research) 's Twitter Profile Photo

At the World Congress on Endometriosis, our partners PrecisionLife shared new data revealing where endometriosis and adenomyosis intersect—and where they diverge—at the genomic level. These two conditions, often grouped together, show distinct biological signals that could

At the World Congress on Endometriosis, our partners <a href="/precisionlifeAI/">PrecisionLife</a>  shared new data revealing where endometriosis and adenomyosis intersect—and where they diverge—at the genomic level. These two conditions, often grouped together, show distinct biological signals that could
Complex Disorders Alliance (@coda_research) 's Twitter Profile Photo

At Complex Disorders Alliance (CODA), we support structural mechanics research to uncover how physical forces in the body impact long-term health. This includes conditions like connective tissue disorders, craniocervical instability (CCI), and atlantoaxial instability (AAI).

At Complex Disorders Alliance (CODA), we support structural mechanics research to uncover how physical forces in the body impact long-term health. This includes conditions like connective tissue disorders, craniocervical instability (CCI), and atlantoaxial instability (AAI).
Complex Disorders Alliance (@coda_research) 's Twitter Profile Photo

In the U.S. alone: 🔹Over 39 million people experience migraines. 🔹Chronic daily headache affects 3–5% of adults. 🔹Many of these individuals also have overlapping conditions like CCI, POTS, EDS, or ME/CFS. and research is years behind. The CCI Study is designed to uncover how

In the U.S. alone:
🔹Over 39 million people experience migraines.
🔹Chronic daily headache affects 3–5% of adults.
🔹Many of these individuals also have overlapping conditions like CCI, POTS, EDS, or ME/CFS.
and research is years behind.

The CCI Study is designed to uncover how
Complex Disorders Alliance (@coda_research) 's Twitter Profile Photo

Myasthenia Gravis (MG) is a rare, chronic autoimmune, neuromuscular condition that causes debilitating muscle weakness and impacts daily life in unpredictable ways. For too many, diagnosis is delayed, treatments are limited, and the path forward is uncertain. At Complex

Myasthenia Gravis (MG) is a rare, chronic autoimmune, neuromuscular condition that causes debilitating muscle weakness and impacts daily life in unpredictable ways. For too many, diagnosis is delayed, treatments are limited, and the path forward is uncertain.

At Complex