This boy right here is the only person in Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 diagnosed with #CHAMP1 gene mutation. Today is #CHAMP1AwarenessDay If you're #Scottish or even if you're not please RT to show us you've seen this 💜 #RareDisease #wednesdaythought #AutismAwareness #AAC #DisabilityInclusion

#CHAMP1AwarenessDay 💜💜

A huge thank you to the Allan Church in Bannockburn for lighting up purple for my boy on #CHAMP1AwarenessDay #CaldotheChamp1on #RareDisease #AutismAwareness #CHAMP1 💜💜💜💜💜

It was very fitting and by luck that Stirling Bridge was lit up in purple on #CHAMP1AwarenessDay 💜💜💜💜💜💜💜

This made my day. We were in B&M Stores earlier with the boys and an old couple were taking up the full aisle and walking really slowly. Calum decided to copy the mans walk. His drama classes in school are certainly helping him get into character😂 #AutismAwareness New Struan School

My boy loving life at the farm 🥰 #CaldotheChamp1on #RareDisease #CHAMP1 #AutismAwareness

#weraisechamp1ons #RareDisease #CaldotheChamp1on #CHAMP1 #AutismAwareness

Celebrating my boy and his fellow CHAMP1ONS today on #rarechromoday 💜🦓 Genetic Alliance UK Unique RARE Revolution Magazine #CHAMP1 #RareDisease #AutismAwareness CHAMP1

C'mon Scotland National Team #euro2024 #autismawareness #RareDisease #CHAMP1

Scott is co-founder of CHAMP1 He raising funds for the UK families to participate in research and build better futures for families living with CHAMP1. If you were able to support no matter the amount the link is below. give.champ1.uk/fundraising/sc… Thank you #weraisechamp1ons

Well we have another Scottish CHAMP family. I've just spoken to the mum today. I can't put into words how happy I am 🥰 #scottishchamp1ons 🏴󠁧󠁢󠁳󠁣󠁴󠁿 #RareDisease #CHAMP1 #AutismAwareness

I love you both with all my heart but get out my house 😂 P7 for Jacky Boy and Caldo is going back to his favourite school New Struan School getting ready for transition into adulthood. Go smash it my boys 🩵🩵 #BackToSchool2024 #CHAMP1 #AutismAwareness #RareDisease

#weraisechamp1ons #RareDisease #CaldotheChamp1on #CHAMP1 #AutismAwareness

Happiest of birthdays to the boy who made me Mama! 18 years of loving you. Happy 18th birthday to our #CHAMP1ON Calum 🎉💜 #HappyBirthday #CHAMP1 #RareDisease #AutismAwareness

Got to love John MacKay on STV News 😂 keeping it real in this freezing cold Scottish weather 🥶 Sean Batty you've missed a trick 😂

So incredibly proud of you my boy. End of one chapter and onto your next one. We will really miss New Struan it is just such an incredible school #CHAMP1 #AutismAwareness #RareDisease #CaldotheChamp1on

It's #RareDiseaseDay2025 My poem was published in the Genetic Alliance UK rare disease anthology. This is all for you my boy! My Calum the CHAMP1ON 💜 #weraisechamp1ons #RareDisease #CHAMP1 #AutismAwareness

Two weeks ago this boy showed us the true meaning of a champ. He had an abscess next to his brain and had emergency surgery. Big thank you to Neurosciences, RIE for taking such good care of us. Hopefully transferring back to our own health board today 🤞 #RareDisease #AutismAwareness

If you want to do something positive today here it is. Please like and share to tell the world all about my boy and his rare community of #CHAMP1ONS #CHAMP1AwarenessDay #raredisease #CHAMP1 #weraisechamp1ons #autismawareness Thank you 💜💜💜💜

Today we celebrate #CHAMP1AwarenessDay 🎉 with CHAMP1 Research Foundation and We Raise ℂℍ𝔸𝕄ℙ𝟙ONS 🏴󠁧󠁢󠁳󠁣󠁴󠁿. We have 64 participants with CHAMP1-related syndrome in #SimonsSearchlight. Find resources 📚, data 📊, and more on the #CHAMP1 website: bit.ly/SimonsSearchli… #CareForRare #RareDiseaseResearch