#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile
#UK CF campaigner Sharon

@cfno1leftbehind

🇺🇦#Ukraine 🇬🇧#UK 💊 #Kaftrio 💙 #NHS #cysticFibrosis #genetherapy 🧬 Let’s find a “cure” for CF 💛 #noOneLeftBehind 💛💛@cftrust💛supporter

ID: 197236444

calendar_today01-10-2010 00:04:59

32,32K Tweet

1,1K Followers

1,1K Following

#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

Wow….In the USA, a new Vertex Pharmaceuticals triple, once daily💊 “(vanzacaftor/tezacaftor/deutivacaftor), a once-daily next-in-class triple combination #cysticfibrosis ” Interesting news for 🇺🇸 patients & hopefully in Europe soon… Cystic Fibrosis Trust Chris Riches news.vrtx.com/news-releases/…

Wow….In the USA, a new <a href="/VertexPharma/">Vertex Pharmaceuticals</a> triple, once daily💊 

“(vanzacaftor/tezacaftor/deutivacaftor), a once-daily next-in-class triple combination #cysticfibrosis ”

Interesting news for 🇺🇸 patients &amp; hopefully in Europe soon…

<a href="/cftrust/">Cystic Fibrosis Trust</a> <a href="/ChrisMRiches/">Chris Riches</a> 

news.vrtx.com/news-releases/…
#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

Great news for the 10% of pwCF who can’t take #kaftrio Jess & possibly everyone if the 🧬technology works A Phase 1b trial assessing the safety of inhaled therapy RCT2100 in cystic fibrosis patients has dosed the first participant in the U.S. cysticfibrosisnewstoday.com/news/first-us-…

#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

This is so unprofessional haart Estate Agents My beautiful daughter deserves to live in safe living conditions without all this mould 🦠 which is life threatening for someone with CF 🧬 You have a responsibility to sort this out Shame on you! Chris Riches Cystic Fibrosis Trust Daily Express

#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

Amazing to think this project started 24 years ago Jess 😜🤩 A nice birthday present 💝 🧬 Novel inhalable gene therapy trialled for people with cystic fibrosis imperial.ac.uk/news/261319/no…

#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

Great news👋🏻 Progress on the next stage of modulator #CysticFibrosis drugs in the UK Let’s hope it lives up to its expectations & that it will be a superior drug for pwCF🤞🏻 A once a day pill will also help! Cystic Fibrosis Trust Jess Chris Riches investors.vrtx.com/news-releases/…

Great news👋🏻
Progress on the next stage of modulator #CysticFibrosis drugs in the UK

Let’s hope it lives up to its expectations &amp; that it will be a superior drug for pwCF🤞🏻

A once a day pill will also help!

<a href="/cftrust/">Cystic Fibrosis Trust</a> 
<a href="/jess_cranfield/">Jess</a> 
<a href="/ChrisMRiches/">Chris Riches</a> 

investors.vrtx.com/news-releases/…
#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

Hello Sky Help Team I was looking forward to my SKY VIP rewards movie night in lbut despite following your instructions on my Sky app, my Sky Q box wouldn’t allow me to watch this movie assuming I didn’t have enough credit on sky store 🤷‍♀️You said it was a FREE gift🎁🎥😡 Dm sent

Hello <a href="/SkyHelpTeam/">Sky Help Team</a> 
I was looking forward to my SKY VIP rewards movie night in lbut despite following your instructions on my Sky app, my Sky Q box wouldn’t allow me to watch this movie assuming I didn’t have enough credit on sky store 🤷‍♀️You said it was a FREE gift🎁🎥😡
Dm sent
#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

A fantastic headline for #StPatricksDay Let’s hope for a bit of Irish luck ☘️ that this latest Vertex Pharmaceuticals #cysticfibrosis drug gets approved by NICE & is available on NHS It’s still NOT yet that illusive cure but certainly is an even better CF drug🤞🏻 Chris Riches

A fantastic headline for #StPatricksDay 

Let’s hope for a bit of Irish luck ☘️ that this latest <a href="/VertexPharma/">Vertex Pharmaceuticals</a> #cysticfibrosis drug gets approved by <a href="/NICEComms/">NICE</a> &amp; is available on <a href="/NHSuk/">NHS</a>

It’s still NOT yet that illusive cure but certainly is an even better CF drug🤞🏻
<a href="/ChrisMRiches/">Chris Riches</a>
#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

Please RT so Mr Michael O Leary from Ryanair or someone with authority in Ryanair gets this message I’m very disappointed that my bag wirh all my party clothes and makeup etc never arrived in Dublin today for my Special Birthday Bash this evening Herbert Park Hotel & Park Residence #60thBirthday🥂