First meeting as chair NMP ACPCF and a treat being back f2f. Great opportunity to discuss, share and collaborate all things prescribing with a room full of amazing clinicians ⁦ACPCF⁩ ⁦UHB CF Physios⁩ ⁦Leicester Adult Cystic Fibrosis Centre⁩ ⁦Tracey Daniels⁩ #cysticfibrosis #respisbest

Delighted to share the refreshed James Lind top 10 research priorities for cystic fibrosis (CF). Thanks to the >1400 people who made this happen. Let’s go to work! Question CF Evidence Based Child Health cf/Aware ThoraxBMJ Cystic Fibrosis Trust

Looks fab 👏🙌🤓 ACPCF research ACPCF

🎄It is almost December and we have a special guest joining us to take over our twitter for the month! 👀Keep your eye peeled this week to see who it is! cf/Aware CF BDA Specialist Group, CF Dietitians UHB CF Physios Cystic Fibrosis @CFadultsNI CFAdultNewcastle Leeds Adult Cf Dietitians York Hull Adult CF Centre Blackpool Adult Cystic Fibrosis Service Teesside Cystic Fibrosis Centre tem🐾

🎄 #CFElfOnTheShelf want's his height checked today 🤦Somethings not right! 🧦 When we check your's remember to take your shoes and hats off - why not take us giggle with silly socks this December! CF BDA Specialist Group, CF Dietitians Cystic Fibrosis Trust CF Trust Youth cf/Aware UHB CF Physios #CF #CysticFirbrosis

UHB CF Physios Millie is expanding on my research into Kaftrio, thought you’d be a fab contact x

ACPCF ACPCF research ACPRC @ECFSPhySIG UHB CF Physios Ali Gates Gemma Stanford (PhD) Janet Mitchell Helen Douglas can you support & highlight this work. Millie McMurray is continuing the fantastic work presented by Orla O’Beirne European Cystic Fibrosis Society last year.

🎆Happy New Year! 💛We hope you all had a lovely one! We wanted to highlight a great #CFliveevent that our Dietitian Katie is involved in! 💵Eating on a budget might be on your mind this new year so register below on come and see what tips/advice you can get!

Great to see everyone back in Birmingham for the ACPCF study days! We didn’t let the snow put us off ❄️☃️ACPCF

Today we are thrilled to announce a multi-year co-funding grant with CysticFibrosisCanada looking into the bacteria Mycobacterium abscessus that causes serious lung infections in people with CF. You can find out more about this exciting research on our website! ➡️ ow.ly/fX0V50OSATj

Beam #cysticfibrosis youth, developed in collaboration with Johns Hopkins CF center and CF Yogi is FREE all summer long! Please spread the word and help CF families from around the world benefit from this awesome resource. Read more here beamfeelgood.com/blogs/beam-cf-…

Please participate in this online focus group ✅work in UK Adult CF Centre ✅dietitian, physio, CNS or Dr ✅ opportunity to share your views on weight management and CF CF BDA Specialist Group, CF Dietitians CF Exercise Network UHB CF Physios Cystic Fibrosis Trust Sign up to take part here heartlandscf.org/research

Lung MRI has the potential to help in cystic fibrosis care but we need your help in understanding how this might work. Please complete our survey and share your views: forms.office.com/e/zvqaUWT4ZF #MRI #CysticFibrosis

Have you checked out our online resources on physiotherapy recently? 🫁 This leaflet talks about physiotherapy and airway clearance with diagrams explaining how CF affects the lungs and information on the different types of airway clearance. ➡️ ow.ly/1bxz50R3mAl

👋 Hi everyone, I'm Catherine Brown, the new ACPCF Public Relations Officer. I wanted to take the opportunity to introduce myself, ask about you, and ask if there is anything you'd like to see on here :) Please comment below👀⬇️ #ACPCF #CFPHYSIO #CFTRUST #CYSTICFIBROSIS

Hot off the press! We have just released the agenda for our meeting to launch the new Standards of Care for people living with #NTM disease. To take a look and to register to attend this free meeting, please visit: ntmnetworkuk.com/standards-of-c… UCL-TB NHS England British Thoracic Society (BTS)

Publication Alert!📢🚨😀This commentary discusses a RCT that we failed to recruit to.bit.ly/3xb4NrQ "Why publish something that didn't work?!" some may ask. "Why hide it?", I say. We learn many lessons along the way, and these papers help the whole academic community.

We have updated our website today to provide the latest information about Creon availability, and what to do if you are experiencing difficulties in accessing the medications. (1/3) ➡️ ow.ly/saKP50RI1zi

It's a goodbye to X, for now, from the West Midlands Adult CF Physio team. Please do stay in touch via our website heartlandscf.org