It's Advocacy Week! Advocates will meet with members of Congress, take action on social media, & can join our virtual EmPOWER M.E. event, "Pacing: Power in Slowing Down." Learn more here: solvecfs.org/advocacy/advoc… Sign up for EmPOWER M.E. here: us02web.zoom.us/meeting/regist…

Next ME/LC Renegade Research Roundtable is Fri July 11 at SPECIAL TIME of 2:30 PM EDT US w Josh Leisk Joshua Leisk, independent Theoretical Biochemist from Sydney, Australia, known for the Born Free Protocol, and Renegade Research med director John Haughton MD, MS 🌻. Registration link in thread.

🧵 North Carolina loses its beloved and helpful Long Covid clinic. Please join the effort described in the thread to tell congress we barely have any care - stop taking successful resources away.

Just completed a meeting with Lizzie N of Congressman Rich McCormick, MBA MD's office as part of Solve ME/CFS Initiative Advocacy Week. We are counting on Congress to help support the estimated 9 million Americans suffering with #MECFS. MEAction GA #MEforward

Thank you to all of the advocates who took over 150 meetings with Senate & House offices about key issues to the #MECFS community. Your stories matter, and we're so grateful for your efforts to educate & inspire your representatives to take action! #MEForward #AdvocacyWeek2025

TODAY - July 18, 25) #MEAction Network NC Chapter 3rd Wed. of month SUPPORT zoom 12:30 PM ET. We welcome people near & far with ME/CFS +/- Long Covid, and their caregivers, family, friends, allies. meactions.org/event-details/… N🤗VA ME-CFS/POTS/LC/FMS etc Support Group #MEAction TN #MEActionMaryland MEAction GA

Infection with SARS-CoV-2 during the first year of the pandemic was associated with three to five times higher odds of cognitive impairment 2 years after infection. nature.com/articles/s4159…

Four Days Left to Submit Art for Severe ME Artists Project– deadline is July 24th! Details: meaction.net/2025/07/10/sev… We have had a wonderful response so far and can’t wait to see what comes in during these next few days! #SevereME #SevereMEDay #pwME #art

#TheAcidTest2? People with Long COVID and ME/CFS, would you want to participate in a study using continuous lactate monitors? The monitor would be similar to the CGMs available now & would be provided free. It would require daily symptom tracking & wearing the sensor for 30

Announcement!! 1. Clinics are shutting down, but patients w/ MECFS & Long Covid need to regain function. Resources are decreasing, while the need grows! We are thrilled to announce the launch of a full-service coaching and consulting program tailored for patients with ME/LC

5. Also, comprehensive reports and ongoing guidance related to your individual situation, based on the biochemical pathways and identified functional needs. We are accepting 10 clients!

In 2⃣days: A 30 min zoom about NEW program for ME/CFS and/or LC patients with some of the brilliant & experienced Renegade Research team members. See embedded thread or my next tweet for registration link. If u want help putting history & tests together, maybe this option is for you.

Do you remember when Spain was having its largest known surge in transmission of the entire pandemic? I do. Because it's today. #MaskUp

Jackson Laboratory: 'Gut microbiome may predict “invisible” chronic fatigue syndrome and long COVID' “Our study achieved 90% accuracy in distinguishing individuals with chronic fatigue syndrome, which is significant..." said study author Derya Unutmaz jax.org/news-and-insig…

Get the details. Starts in 1 hour. Not easy to find a good team who knows ME/CFS and Long Covid (& EDS/HSD, MCAS, Lyme, + co-morbitites) who will go through your history, tests, symptoms, meds, genes... and help you understand more about what to adjust to feel a bit better.

There is a need. THIS is what public health looks like 🙌

One of my biggest concerns as an anesthesiologist is my colleagues not recognizing some of the off label uses of medications physicians and clinicians have been using on their long COVID and as an extension, post COVID vaccine patients. While this list is not comprehensive, I

Thanks so much to all #pwME who have responded to my post asking for recommendations on what to take to the hospital...just in case I need to go. #MEAction Network sent me their checklist! I don't recall ever seeing this before, so sharing in case anyone else may need it! ✳️Please share!