Lung transplants aren’t a cure, but they can be a critical reset. Lung transplants are sometimes necessary for individuals with advanced #CysticFibrosis lung disease. Thank you to donors, providers & supporters who make new lungs possible.

CFRI’s #CysticFibrosis Summer Retreat Registration is OPEN - Join Us AUG 14-19 2025 @ Jesuit Retreat Center - Los Altos, CA & Virtually! Don't miss educational presentations by CF experts, exercise, arts & crafts, support groups, and much more! Register: l8r.it/MWUb

A lung transplant replaces the lungs but does not remove CF from the rest of the body—issues like digestive challenges, diabetes & sinus disease still persist. The body’s immune system can attack the transplanted organs, leading to rejection, infections & other complications.

CF Education Conference Speaker Spotlight: Dylan Mortimer Presents & leads an Interactive Art Workshop. Dylan an adult with #cysticfibrosis and has created public art installations across the globe, and he has an extensive exhibition history. Register: l8r.it/rz61

Behind every CF breakthrough is a brave participant in a trial. Clinical trials are vital in the development of new #CysticFibrosis treatments—many CF patients participate to help advance research. 💜 Thank you to the CF warriors helping shape the future of care.

CF doesn’t discriminate—but care disparities still exist. To improve outcomes for all people with #CysticFibrosis, there is a growing need to expand genetic testing panels, increase diversity in CF research, and ensure equitable access to care for every community.

One more post = one more chance to make a difference 💜 Final week of the Purple Power CF Awareness Challenge - Tag CFRI, challenge friends to give and share your purple pride! #CFRIPurplePower Sponsored by Vertex Pharmaceuticals & Viatris! Donate NOW: l8r.it/sSj8

CFTR modulator therapies have transformed #CysticFibrosis care for many but are not effective for individuals with specific CF mutations (about 10% of the CF population). Progress can’t stop until no one is left behind. Sponsored by Vertex Pharmaceuticals & Viatris 🫶🏽

Did you know people with CF are at increased risk for colon cancer (5-10X the general population & 25-30X Post Transplant), due to mutations to the CFTR gene, which is known to be a tumor suppressor. CF carriers also have higher risk. Education can save lives.

Antimicrobial resistance occurs when bacteria & viruses evolve to resist antibiotics. This makes infections harder to treat, more hospitalizations & increased mortality. Only 12 new antibiotics have been approved since 2017; there is a urgent need for new treatments.

WORKSHOP: Mindfulness to Cope With Fear & Anxiety - TUES, June 10 @ 5pm PT. This quarterly workshop focuses on aspects of mindfulness, learn useful practices to manage fear and anxiety related to #CysticFibrosis - Led by Julie Desch, MD. Sign Up: l8r.it/RTz1

Despite the advancements in CF care & treatments, lung disease remains the leading cause of illness & death for those with CF. There is still no cure - more research & treatment options are needed! May is ending, but the fight against CF continues - keep advocating!

Ready, set, give back! Join the 2025 Team Natalie Challenge on Sunday, July 8 @ 9am at Rudgear Estates Pool in Walnut Creek!⁠ Fun for all ages! Let’s support Team Natalie in raising funds for #cysticfibrosis research 💜 Sponsored by Framework Fitness⁠. l8r.it/iWfE

CF Education Conference Speaker Spotlight🎙️MATTHEW PORTEUS, MD, PhD @ Stanford is Presenting Updates from his CFRI Funded Gene Editing & CF Research 🧬 & GREGORY RATTI, MD @University of Texas Southwestern is Presenting on Cardiovascular Health in CF🫀 l8r.it/mDJ7

Your wellness journey starts here! 💫 Join CFRI’s FREE virtual classes to move your body, clear your mind, and connect with community. All levels welcome – no experience needed. Proudly sponsored by Viatris, Vertex Pharmaceuticals & private donors 💜 l8r.it/96Q0

Love is love — and all love is welcome here ❤️🧡💛💚💙💜 Celebrating the love, courage, and connection that strengthens our CF community — in all its diversity. Happy Pride Month from all of us at CFRI. 💜🏳️‍🌈 #Pride #CFStrong #LoveIsLove

Visítanos en Conocimiento y Conexión, la comunidad virtual en español de FQ de CFRI! Para adultos con fibrosis quística y padres / personas que cuidan. 11 de junio @ 5pm PT . PARA REGISTRARSE, enviar un correo electrónico a Sabine ([email protected])⁠.

New Blog Post: Advance Your CF Spirit with Retreat 💜 Todd, an adult living w/CF, shares what the annual CF Adult Summer Retreat means to him, reflecting how the health & safety of attendees are prioritized while making connections that advances wellbeing. cfri.org/advance-your-c…

CF Education Conference Speaker Spotlight🎙️ Ahmet Uluer, DO, MPH (Boston Childrens & Brigham & Women’s Hospital) Presenting on Aging with CF. Katrine Whiteson, PhD (UC Irvine)- Presenting updates from her CFRI funded Phage Therapy Research. Register: l8r.it/mxv7

New Podcast: Managing CF & Incontinence. Despite the higher rates of incontinence among people with CF, stigma and embarrassment keep many people from seeking treatment. Watch on YouTube: l8r.it/rtH3 Watch on Podbean: l8r.it/IWd8