CFF Delaware Valley (@cff_delvalley) 's Twitter Profile
CFF Delaware Valley

@cff_delvalley

Cystic Fibrosis Foundation - Delaware Valley Chapter. RT or Favoriting does not imply endorsement.

ID: 2478434737

linkhttp://www.cff.org/chapters/delawarevalley calendar_today05-05-2014 14:18:29

775 Tweet

559 Followers

942 Following

CFF Delaware Valley (@cff_delvalley) 's Twitter Profile Photo

It's been 2 long years and we miss you. Register for CF Climb, 11/20/21 at the Linc, for some IN PERSON fun and fundraising! Register:tinyurl.com/rs9k595h

It's been 2 long years and we miss you. Register for CF Climb, 11/20/21 at the Linc, for some IN PERSON fun and fundraising! Register:tinyurl.com/rs9k595h
Cystic Fibrosis Foundation (@cf_foundation) 's Twitter Profile Photo

Today, we announced a first-of-its-kind collaboration with Pioneering Medicines, a division of Flagship Pioneering, to accelerate the development of genetic-based therapies for people with cystic fibrosis. cff.org/About-Us/Media…

Cystic Fibrosis Foundation (@cf_foundation) 's Twitter Profile Photo

We have awarded up to $4.7 million to EnBiotix Inc. for the testing of inhaled colistin to treat chronic Pseudomonas aeruginosa infections in people with #cysticfibrosis. #CFresearch on.cff.org/31qCbLv

CFF Delaware Valley (@cff_delvalley) 's Twitter Profile Photo

We're sharing our love of 💙Great Strides💛 for National Sign on Week! We're ready to lace up and be back in person for 2022! Visit greatstrides.cff.org to find your local walk site and register today.

We're sharing our love of 💙Great Strides💛 for National Sign on Week! We're ready to lace up and be back in person for 2022! Visit greatstrides.cff.org to find your local walk site and register today.
Cystic Fibrosis Foundation (@cf_foundation) 's Twitter Profile Photo

We’re thrilled to announce that KC White has been elected by the Foundation’s Board of Trustees as its next Board Chair. This marks the first time in our history that the Board will be led by a person with #cysticfibrosis. on.cff.org/KC-White-Next-…

Cystic Fibrosis Foundation (@cf_foundation) 's Twitter Profile Photo

We are awarding up to $15.9M in additional funding to Eloxx Pharmaceuticals Inc. to support more clinical trials of ELX-02, a potential therapy for people with #cysticfibrosis who have nonsense mutations. #CFresearch on.cff.org/3LpSb1C

Cystic Fibrosis Foundation (@cf_foundation) 's Twitter Profile Photo

This #DonateLifeMonth, we announced funding for research to better detect chronic lung allograft dysfunction (CLAD), a post-transplant complication. Eight awards will investigate potential ways to detect CLAD early, which is key to fighting CLAD. cff.org/news/2022-04/c…

Cystic Fibrosis Foundation (@cf_foundation) 's Twitter Profile Photo

Calling researchers, life science entrepreneurs, and companies: We’ve launched our first-ever Golden Ticket Competition with UC Berkeley's Bakar Labs! If you're developing genetic therapies that have potential application to CF, we’re looking for you. cff.org/researchers/go…

CFF Delaware Valley (@cff_delvalley) 's Twitter Profile Photo

Carbon Biosciences, the first company to launch publicly from the Foundation’s collaboration with Longwood Fund, was awarded $6 million to support their preclinical research into an innovative gene therapy approach for CF. #CFResearch

Carbon Biosciences, the first company to launch publicly from the Foundation’s collaboration with Longwood Fund, was awarded $6 million to support their preclinical research into an innovative gene therapy approach for CF. #CFResearch
CFF Delaware Valley (@cff_delvalley) 's Twitter Profile Photo

Way to go Ashley, Katherine, and Taylor! We’re so proud of you for representing the #cysticfibrosis community during Cystic Fibrosis Foundation’s 14th annual Teen Advocacy Day. We can’t wait for you to share your story with Bob Casey Pat Toomey (US Sen. ret.) #CFadvocacy

Cystic Fibrosis Foundation (@cf_foundation) 's Twitter Profile Photo

Congratulations to AVECRIS and Nosis, the winners of our first-ever Golden Ticket Competition! The winners will pursue genetic therapies for cystic fibrosis at Bakar Labs with a year of office and lab space in addition to other Foundation resources. on.cff.org/3PsWYlx

Cystic Fibrosis Foundation (@cf_foundation) 's Twitter Profile Photo

Our CF community is growing. Today, because more people with cystic fibrosis are living longer into adulthood, there are nearly 40,000 people with CF in the U.S., and an estimated 105,000 people diagnosed with CF across 94 countries.

Our CF community is growing. Today, because more people with cystic fibrosis are living longer into adulthood, there are nearly 40,000 people with CF in the U.S., and an estimated 105,000 people diagnosed with CF across 94 countries.
CFF Delaware Valley (@cff_delvalley) 's Twitter Profile Photo

Advocates across the country are urging lawmakers to cosponsor & pass the #PASTEURAct, which will help bring urgently needed new antibiotics to development. Use the link below to add your voice to the chorus of CF advocates act.cff.org/DfFwLWq #CFadvocacy

Advocates across the country are urging lawmakers to cosponsor & pass the #PASTEURAct, which will help bring urgently needed new antibiotics to development. Use the link below to add your voice to the chorus of CF advocates act.cff.org/DfFwLWq #CFadvocacy
CFF Delaware Valley (@cff_delvalley) 's Twitter Profile Photo

It's #GivingTuesday! Your gift will be matched, dollar-for-dollar, up to $250,000, to help everyone living with CF thanks to the generosity of Lou and Nancy Stremick, whose granddaughter, Ella, has #cysticfibrosis. on.cff.org/3ibn40q

It's #GivingTuesday! Your gift will be matched, dollar-for-dollar, up to $250,000, to help everyone living with CF thanks to the generosity of Lou and Nancy Stremick, whose granddaughter, Ella, has #cysticfibrosis.

on.cff.org/3ibn40q
Cystic Fibrosis Foundation (@cf_foundation) 's Twitter Profile Photo

Thank you for your support on #GivingTuesday! Because of you, and the generosity of the Stremick family, we met our match. Together, we are confident we will find a cure for everyone with cystic fibrosis.

Thank you for your support on #GivingTuesday! Because of you, and the generosity of the Stremick family, we met our match. Together, we are confident we will find a cure for everyone with cystic fibrosis.
Cystic Fibrosis Foundation (@cf_foundation) 's Twitter Profile Photo

More than 2.8 million people get an antibiotic-resistant infection in the U.S. each year. People with #cysticfibrosis face an increased risk for difficult-to-treat infections. We need new antibiotics now, and we’re asking Congress to help. #CFAdvocacy

More than 2.8 million people get an antibiotic-resistant infection in the U.S. each year. People with #cysticfibrosis face an increased risk for difficult-to-treat infections. We need new antibiotics now, and we’re asking Congress to help. #CFAdvocacy