Matthew Bellina (@bellinamatthew) 's Twitter Profile
Matthew Bellina

@bellinamatthew

39 year old husband and father of three. Former Naval Aviator living with ALS

ID: 1494080804611309568

linkhttps://tweedthoughts.com/ calendar_today16-02-2022 22:48:17

162 Tweet

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Brian Wallach (@bsw5020) 's Twitter Profile Photo

Today, I want everyone to meet Matt. Matt is in the expanded access program for NurOwn. After progressing, the EAP has all but stopped Matt's progression. The video you see below is of Matt with his daughter on vacation this summer.

I AM ALS (@iamalsorg) 's Twitter Profile Photo

I AM ALS friend Dan handed off the NurOwn petition -- and all 802 pages of signatures -- to Dr. Peter Marks at the FDA today. To everyone who signed and shared: THANK YOU. #NoAdCommNoVoice

I AM ALS friend Dan handed off the NurOwn petition -- and all 802 pages of signatures -- to Dr. Peter Marks at the FDA today. To everyone who signed and shared: THANK YOU. #NoAdCommNoVoice
I AM ALS (@iamalsorg) 's Twitter Profile Photo

“We are desperate for treatment and willing to fight." - Shelly Hoover Shelly, Steve Hoover and @layneo5 opened up their homes and hearts to make this BioPharma Dive article about Relyvrio possible. Thank you for uplifting the voices of the ALS community! bit.ly/3FDXlGi

Matthew Bellina (@bellinamatthew) 's Twitter Profile Photo

It might be time for us to start asking why U.S. FDA is holding #nurown to a different set of standards than treatments from larger pharmaceutical companies with bigger lobbying budgets.

Matthew Bellina (@bellinamatthew) 's Twitter Profile Photo

On behalf of all of the United States, I would like to apologize for our President implying that Irish people tend to be stupid. No decent American believes this hateful stereotype and we don't think his joke was funny.

Nicole Cimbura (@nicolecimbura) 's Twitter Profile Photo

Dear U.S. FDA in Feb & Sept 2019 many advocates, standing on the shoulders of ALS giants who came before, went to DC to get the #ALSGuidanceDocument across the finish line. @sairysays & Chris Snow are living proof about taking risks hoping to #EndTheLegacyApproveTofersen

Dear <a href="/US_FDA/">U.S. FDA</a> in Feb &amp; Sept 2019 many advocates, standing on the shoulders of ALS giants who came before, went to DC to get the #ALSGuidanceDocument across the finish line. @sairysays &amp; <a href="/ChrisSnowCGY/">Chris Snow</a> are living proof about taking risks hoping to #EndTheLegacyApproveTofersen
Matthew Bellina (@bellinamatthew) 's Twitter Profile Photo

That was yesterday. Today is worse. You would have to go all the way back to the cretaceous era to find a temperature as hot as today. Thankfully, dinosaur scientists kept thorough records.

That was yesterday. Today is worse. You would have to go all the way back to the cretaceous era to find a temperature as hot as today. Thankfully, dinosaur scientists kept thorough records.