Thought of the day We don't get used to it, we develop better self management skills and we learn what helps and what makes it worse. • • • • • #BNightsCRPS #CRPS #crpsawareness #crpswarrior #crpslife #crpssupport #chronicpain #CRPSisReal

Doctors don't understand or care about the effort 😡

Thought of the day Be proud of how you've been handling everything. All the silent battles you fight, the moments you humble yourself and wipe your own tears. None of this is easy. • • • • • #CRPS #crpsawareness #crpswarrior #crpslife #crpssupport #chronicpain #CRPSisReal

“Women are expected to have some type of pain,” says Dr. Kristen MacKenzie, citing experiences like periods, childbirth, and menopause. “For a long time, medicine didn’t have any sort of answers, so women were told things like, ‘You must be hormonal’ or ‘That’s just your lot in

“It’s silly. I know it is. But, I feel like a failure… Writing this isn’t going to offer me or you any help, other than to know #YouAreNotAlone. If you are struggling and your health is taking all of your available energy, just know I’m sitting here too.” buff.ly/IqTbDvn

Thought of the day If I cancel, it's not because I dont want to go, Its because I physically cannot function. • • • • • #BNightsCRPS #CRPS #crpsawareness #crpswarrior #crpslife #crpssupport #chronicpain #CRPSisReal

Thought of the day If I cancel, it's not because I dont want to go, Its because I physically cannot function. • • • • • #BNightsCRPS #CRPS #crpsawareness #crpswarrior #crpslife #crpssupport #chronicpain #CRPSisReal

Thought of the day There's a weird loneliness in feeling like you can't talk about it anymore, because no one wants to hear about the same pain again and again, and it becomes easier to pretend you're fine than to risk being too much again. • • #CRPS #crpsawareness #chronicpain

Thought of the day Chronic pain changes how you relate to others. It's hard to feel empathy for someones short term struggle when you've been stuck in a long term one. • • • • • #BNightsCRPS #CRPS #crpsawareness #crpswarrior #crpslife #crpssupport #chronicpain #CRPSisReal

Thought of the day Remember taking care of yourself is productive and not a waste of time. • • • • • #BNightsCRPS #CRPS #crpsawareness #crpswarrior #crpslife #crpssupport #chronicpain #CRPSisReal

Giving doesn’t always mean giving money 💡🧡 Explore all the unique ways you can support people with CRPS—from your phone, your workplace, or your next celebration! 🎁 buff.ly/LJ5vwR6 #CRPS #chronicpain #chronicpainawareness #CRPSawareness #CRPSSupport #Donation

“The thing about flares is they warp time. Did I miss a day? A week? It’s all a blur… I’m trying to “resume” life while still carrying that heavy backpack of #pain, #fatigue and a bunch of symptoms.” Emerging From a #ChronicIllness Flare buff.ly/4bhm82g @TheDisabledDiva

Thought of the day Doctor: What triggers your symptoms? Me: Waking up.

Burning Nights CRPS Many don’t understand this!

Burning Nights CRPS Also sleeping, cold water, barometric pressure changes, exercise, not exercising, cold air....

Even though the pain being managed with the spinal cord stimulator, I still get flare ups daily. After 4 years I know some activities that set a glare up off, but there are times that it randomly happens. Flare ups are intense pain in my toes, they turn red, the skin becomes

Thought of the day If you only see me on my good days, you don't really know me at all. • • • • • #BNightsCRPS #CRPS #crpsawareness #crpswarrior #crpslife #crpssupport #chronicpain #CRPSisReal

BamaGirlwx Burning Nights CRPS It's understandable to experience flare-ups even with a spinal cord stimulator in place. Chronic pain management can be a complex journey, and it's crucial to continuously assess and adapt your approach.

Take on the Summer Walk on the 23rd of August! 🚶 Walk for a good cause, enjoy iconic London views, and raise money for Burning Nights CRPS Support. 🧡 Sign up today: buff.ly/l601wKl #CRPS #Fundraising #CRPSsupport #BurningNights #LondonSummerWalk2025 ##BNightsCRPS

Thought of the day Having a chronic illness means that I don't have the luxury of waiting until l 'feel better' to live my life. • • • • • #BNightsCRPS #CRPS #crpsawareness #crpswarrior #crpslife #crpssupport #chronicpain #CRPSisReal