Aortic Dissection Awareness UK & Ireland (@aorticdissectuk) 's Twitter Profile
Aortic Dissection Awareness UK & Ireland

@aorticdissectuk

The national patient charity for #AorticDissection. Raising awareness, providing support, improving care, enabling research. Registered charity number: 1198617

ID: 4736801963

linkhttp://www.aorticdissectionawareness.org calendar_today07-01-2016 18:08:16

2,2K Tweet

2,2K Followers

2,2K Following

Aortic Dissection Awareness UK & Ireland (@aorticdissectuk) 's Twitter Profile Photo

If you want to understand #AorticDissection patients and their experience of this condition, watch/listen to the #THINKAORTA podcast. Episode 1 available on all platforms now. Episode 2 coming this week. #AortaEd

THINK AORTA Global (@think__aorta) 's Twitter Profile Photo

Episode 2, Part 1 of the #THINKAORTA podcast is here! Patient leaders Lindsey Rusche & Gareth Owens chat with Simon Rose of School of Health Sciences UEA about #Marfan syndrome, #AorticDissection & patient leadership of our global campaign. Part 2 next week. #AortaEd youtube.com/watch?v=KQnxAo…

Aortic Dissection Awareness UK & Ireland (@aorticdissectuk) 's Twitter Profile Photo

Our Chair Gareth Owens sharing stories from his life with Marfan syndrome about how to get the best care for Eyes-Heart-Joints-Aorta at the TheMarfanFoundation Marfan Trust Patient Symposium in London yesterday. Some great contributions to the day from Royal Brompton Hospital & Moorfields Eye Hospital NHS Foundation Trust too.

Aortic Dissection Awareness UK & Ireland (@aorticdissectuk) 's Twitter Profile Photo

In Ep2 Pt2 of the #THINKAORTA podcast, our Chair Gareth Owens talks about the impact of our life-saving #THINKAORTA campaign, which we launched in partnership with Royal College of Emergency Medicine, SCTS UK and Heart Research UK in 2018. #AortaEd #patientsafety

Aortic Dissection Awareness UK & Ireland (@aorticdissectuk) 's Twitter Profile Photo

Excitement is building ahead of the 9th annual #AorticDissection Awareness Day UK #ADADUK24 hosted by The Royal College of Surgeons of Edinburgh on 19-Sep & sponsored by Terumo Aortic, where we have FIVE surgeon/patient duos from around the world speaking. The first is Joe Bavaria, MD and his patient Allison Seed #AortaEd

Excitement is building ahead of the 9th annual #AorticDissection Awareness Day UK #ADADUK24 hosted by <a href="/RCSEd/">The Royal College of Surgeons of Edinburgh</a> on 19-Sep &amp; sponsored by <a href="/TerumoAortic/">Terumo Aortic</a>, where we have FIVE surgeon/patient duos from around the world speaking. The first is <a href="/BavariaMd/">Joe Bavaria, MD</a> and his patient <a href="/AllisSeed/">Allison Seed</a> #AortaEd
Aortic Dissection Awareness UK & Ireland (@aorticdissectuk) 's Twitter Profile Photo

#Arabic is the UK's fifth most-spoken language. It is also spoken by 422 million people around the world. So today we're making our life-saving #THINKAORTA poster available in #Arabic, courtesy of our THINK AORTA Egypt campaign team. فكر في الشريان الأورطي RCEMLearning SCTS UK

Aortic Dissection Awareness UK & Ireland (@aorticdissectuk) 's Twitter Profile Photo

First-up, it's standing room only as Rachel Bell presents an update on the NHS England Acute #AorticDissection toolkit. Key message: "It is definitely safer to be an #AorticDissection patient in 2024 than it was in 2022". ❤️

First-up, it's standing room only as <a href="/rebellvascular/">Rachel Bell</a> presents an update on the <a href="/NHSEngland/">NHS England</a> Acute #AorticDissection toolkit. Key message: "It is definitely safer to be an #AorticDissection patient in 2024 than it was in 2022". ❤️
Vascular News (@vascularnews) 's Twitter Profile Photo

“Don’t underestimate the power of talking and raising awareness,” says Rachel Bell, speaking on the Aortic Dissection Toolkit. Highlights progress since 2022 launch as well as areas for improvement, including reliable image transfer and data collection IADS #aortaed

“Don’t underestimate the power of talking and raising awareness,” says <a href="/rebellvascular/">Rachel Bell</a>, speaking on the Aortic Dissection Toolkit. Highlights progress since 2022 launch as well as areas for improvement, including reliable image transfer and data collection <a href="/IADSymposium/">IADS</a> #aortaed
Aortic Dissection Awareness UK & Ireland (@aorticdissectuk) 's Twitter Profile Photo

Stephen Cheng from Hong Kong presents a comprehensive review of acute Type B #AorticDissection disease patterns in Asia. Onset of this disease in #China occurs 10 years earlier than in the West. IADS #AortaEd

Stephen Cheng from Hong Kong presents a comprehensive review of acute Type B #AorticDissection disease patterns in Asia. Onset of this disease in #China occurs 10 years earlier than in the West. <a href="/IADSymposium/">IADS</a> #AortaEd
Aortic Dissection Awareness UK & Ireland (@aorticdissectuk) 's Twitter Profile Photo

Lively panel discussion about management of #AorticDissection patients. Panel agrees patients do better when cared for by #Aortic multidisciplinary teams in specialist #Aortic centres. IADS Vascular Society Vascular News #AortaEd

Lively panel discussion about management of #AorticDissection patients. Panel agrees patients do better when cared for by #Aortic multidisciplinary teams in specialist #Aortic centres. <a href="/IADSymposium/">IADS</a> <a href="/VSGBI/">Vascular Society</a> <a href="/VascularNews/">Vascular News</a> #AortaEd
Aortic Dissection Awareness UK & Ireland (@aorticdissectuk) 's Twitter Profile Photo

Risk of paraplegia during #Aortic repair is a significant concern for patients. Tim Resch from Copenhagen leads a discussion on this thorny issue. "Don't cover more #Aorta than you need". "Technique is more important than device design". IADS Endovascular Today

Risk of paraplegia during #Aortic repair is a significant concern for patients. Tim Resch from Copenhagen leads a discussion on this thorny issue. "Don't cover more #Aorta than you need". "Technique is more important than device design". <a href="/IADSymposium/">IADS</a> <a href="/EVToday/">Endovascular Today</a>
Aortic Dissection Awareness UK & Ireland (@aorticdissectuk) 's Twitter Profile Photo

Debate: "Frozen Elephant Trunk (FET) should be used more selectively in acute Type A #AorticDissection". Amit Modi of University Hospital Southampton 💙 & Aung Oo of Barts Aortic Surgery agree the answer is "No". "Current practice inadequately addresses the fate of the distal #Aorta". IADS UK-AS

Debate: "Frozen Elephant Trunk  (FET) should be used more selectively in acute Type A #AorticDissection". Amit Modi of <a href="/UHSFT/">University Hospital Southampton 💙</a> &amp; <a href="/mraungoo/">Aung Oo</a> of <a href="/BartsAorta/">Barts Aortic Surgery</a> agree the answer is "No". "Current practice inadequately addresses the fate of the distal #Aorta". <a href="/IADSymposium/">IADS</a> <a href="/UK_Aorta/">UK-AS</a>
Aortic Dissection Awareness UK & Ireland (@aorticdissectuk) 's Twitter Profile Photo

Medical management or #TEVAR in chronic uncomplicated Type B #AorticDissection. Which is best? We don't know, so we have 3 global clinical trials: IMPROVE-AD (US); SUNDAY (Scandinavia) & EARNEST (UK). It will be interesting to see how they fare. IADS Firas F Mussa فراس ف موسى #AortaEd

Medical management or #TEVAR in chronic uncomplicated Type B #AorticDissection. Which is best? We don't know, so we have 3 global clinical trials: IMPROVE-AD (US); SUNDAY (Scandinavia) &amp; EARNEST (UK). It will be interesting to see how they fare. <a href="/IADSymposium/">IADS</a> <a href="/UnTBAD/">Firas F Mussa فراس ف موسى</a> #AortaEd
Aortic Dissection Awareness UK & Ireland (@aorticdissectuk) 's Twitter Profile Photo

And that's a wrap! Bijan Modarai closes an excellent first IADS in London and announces that we'll get to do it all again next year. 🙂 Save the date: Thursday 11th September 2025. Thanks for following and sharing our live-tweets from the event. #THINKAORTA

And that's a wrap! <a href="/b_modarai/">Bijan Modarai</a> closes an excellent first <a href="/IADSymposium/">IADS</a> in London and announces that we'll get to do it all again next year. 🙂  Save the date: Thursday 11th September 2025. Thanks for following and sharing our live-tweets from the event. #THINKAORTA