We are delighted to announce Andrea L. Rideout is our new Science Director! With over 20 yrs of experience in genetic counselling, clinical care, research, & education, Andrea brings extensive expertise and leadership to GADA’s mission. Read more here: gadacanada.ca/news/2025/2/6/…

Support a special fundraiser! Morgan Story is hosting a Marfan Syndrome Awareness & Fundraising Event on Saturday, March 1st, from 12:00–3:00 PM at Karma Yoga Studio in Guelph. We hope to see you there! facebook.com/profile.php?id… #marfanawareness

Feb 28th marks the anniversary of the aorta being officially recognized as an organ! This monumental decision highlights the incredible complexity of our bodies and advances in medical understanding. Learn more here: gadacanada.ca/news/2024/3/12… #RareDiseaseDay

#RareDiseaseAwareness: Marfan syndrome (MFS) affects 1 in 3,000–5,000 people, impacting connective tissue across multiple systems. Awareness can save lives. Learn more: gadacanada.ca/marfan-syndrome #MarfanSyndrome #RareDiseaseAwareness

#RareDiseaseAwareness: Loeys-Dietz Syndrome (LDS) affects *1 in 50,000 people* and increases the risk of aortic dissection. Awareness can save lives. Learn more: gadacanada.ca/loeys-dietz-sy… #LoeysDietzSyndrome #RareDiseaseAwareness

#RareDiseaseAwareness: Vascular Ehlers-Danlos Syndrome (vEDS) affects 1 in 50,000–200,000 people and increases aortic dissection risk. Learn more: gadacanada.ca/about-htad-gad #EhlersDanlosSyndrome #aortaed

#RareDiseaseAwareness: Isolated HTAD affects 3–4 cases per 100,000 per year, increasing aortic dissection risk. Awareness is key. Learn more: gadacanada.ca/n-s-ftaad #HTAD #RareDiseaseAwareness

#RareDiseaseAwareness: Bicuspid Aortic Valve (BAV) occurs in 1–2% of the population, leading to aortic valve degeneration. Learn more: gadacanada.ca/about-htad-gad #BicuspidAorticValveDisease #RareDiseaseAwareness

#RareDiseaseAwareness: Arterial Tortuosity Syndrome (ATS) causes abnormal artery twisting and increases aneurysm risk. ~100 cases reported. Learn more: gadacanada.ca/slc2a10 #ArterialTortuositySyndrome #RareDiseaseAwareness

GADA Canada is hosting a Transitional Care Webinar to guide teens and families with aortic disorders on making the important shift from pediatric to adult care. Register here: us06web.zoom.us/webinar/regist… #aortaed #aorticdisorders

Transitioning from pediatric to adult care is a crucial step for teens with aortic disorders, both physically and emotionally. Learn more here. iwkhealth.ca/sites/default/… #AorticDisorders #TeenHealth #TransitionalCare #aortaed

Transitioning from pediatric to adult healthcare is a significant milestone for teenagers with #AorticDisorders. Understanding the differences between these care systems can empower you to take charge of your health effectively. More info here: iwkhealth.ca/sites/default/… #aortaed

Remember to register for GADA Canada's Transitional Care Webinar. This webinar will guide teens and families with aortic disorders on making the important shift from pediatric to adult care. Sign up today: us06web.zoom.us/webinar/regist… #aortaed #aorticdisorders

An important step in transitional care is building independence in health management day to day. Here are some tips on what you can do every day to stay on top of your health: facebook.com/share/p/16N8Kc… #aortaed #transitionalcare #aorticdisorders

Did you know there is a Transitional Care App designed to prepare patients between the ages of 12 and 18 to begin taking charge of their health care? More info here:  canchild.ca/en/research-in…

Join us tomorrow for a free Transitional Care webinar! Register now: us06web.zoom.us/webinar/regist… #aortaed #aorticdisorders

Watch our latest webinar on Transitional Care, providing guidance for teens and families with aortic disorders on making the important shift from pediatric to adult care: youtu.be/qwkgTYIKoBg?fe… #aortaed #aorticdisorders #transitionalcare

In 2013, GADA Canada called for an international meeting that led to the formation of the Montalcino Aortic Consortium and a global patient registry. On May 21-25, MAC hosted its 4th meeting to advance care for heritable thoracic #aorticdisease. Thank you to our researchers!

Congratulations to Dr. Alvarez, Cardiologist, a pioneer in the field of aortic care, who was awarded the Tirone David Lifetime Achievement award for her outstanding and sustained contributions to the care, science, and advocacy related to #HTAD and #cardiovasculardisorders!

At the 2025 Montalcino Aortic Consortium (MAC) Summit, Clinical Geneticist, Dr. David Murdock, MD shared his groundbreaking research on how facial recognition technology may help identify Genetic Aortic Disorders 🧬 #GAD #GeneticResearch