AngelmanSyndrome (@angelmanire) 's Twitter Profile
AngelmanSyndrome

@angelmanire

Rare Disorder 1 in 20,000. Information & support for families, caregivers & service providers. Collaborate with international scientists to advance treatments.

ID: 330667768

linkhttp://angelman.ie calendar_today06-07-2011 23:50:37

1,1K Tweet

1,1K Followers

409 Following

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Emails asking for us to keep your details and send you updates making their way. I appreciate everyone has full inboxes but its the EU law and we have to make contact. Replies appreciated and required.

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For latest summary of alliance research kindly put together by Annette in more family friendly terms see web site - angleman.ie angleman.ie

AngelmanSyndrome (@angelmanire) 's Twitter Profile Photo

350,000 EURO FOR RESEARCH ON ANGELMAN SYNDROME Call for Applications for Research Grants into Angelman Syndrome Deadline 4th January 2019 Angelman Syndrome is a rare neurogenetic disorder, resulting from the loss of function of a single gene,... angelmanalliance.org

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Hi can you take time to vote for Angelman uk film which the very talented lotti fox has made. A quick register to vote then scroll down charities to Angelman uk. That’s it. facebook.com/angelmansyndro…

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Gentle reminder - Sunday IAD family meet up in playground. Closest entrance is the one on Whitechurch road - parking etc. Main entrance takes you closer to Market, coffee shops. All welcome 1-3. visitdublin.com/see-do/details…

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We are kindly beneficiaries of Saturdays gala ball. As a lot of our families are also supported by Jack & Jill all funds raised will be helping our children. Please support our fundraising goals which will be ensuring our participation in exciting... gofundme.com/6urdyao?pc=ot_…