In the latest episode of our OnRare podcast, Jonathan Fox, M.D., Ph.D., President and CMO of BridgeBio Cardiorenal, explains the causes of transthyretin amyloidosis (ATTR), and what happens to people living with it. Listen to the full episode here: bit.ly/3PO8qtU

🚨NASHVILLE🚨
Amyloidosis Caregiver Support Group Meeting
April 13 from 1-3pm
St Stephens Catholic Church
14544 Lebanon Rd, Old Hickory, TN 37138
Speaker: Joy McDaniel w/MASA Transportation Servicen(Emergency Transport)
Please RSVP to Adrienne Molteni at 615-443-6202.

🧬🧬🧬APRIL WEBINAR🧬🧬🧬
What's new and exciting in ATTR cardiac amyloidosis in 2024
TO REGISTER, CLICK THIS LINK: bit.ly/AFSpringWebina…
OR USE THE QR CODE.
April 29th, 3:00 pm ET
Presenters: Dr. Frederick Ruberg and Dr. Omar Siddiqi

Our ATTR team is heading to ATL for #ACC24 , hosted by @ACCTouch. We will be sharing a moderated poster and supporting a Symposium with Medscape. Come visit our booth or check out our website to learn about our latest news: bridgebio.com/what-is-attr

Excited to be back at #DAVAWhistlerHEME !!! Looks like another great agenda this year! A whole session on #amyloidosis and #waldenstroms on Thursday? Sign me up!

Seeking a new option to help manage your ATTR-CM?
Check out the DepleTTR-CM Study, which evaluates an amyloid depleter investigational medication that may help improve ATTR-CM symptoms and overall heart health.
To learn more, visit DepleTTRCMStudy.com

Thank you BridgeBio Pharma for raising awareness for #amyloidosis !

There is an urgent unmet need for therapies that address both the amyloid circulating and deposited in vital organs for those living with AL #amyloidosis . Learn more about our work in this area by visiting our pipeline: bit.ly/3x06KXT
#AmyloidosisAwarenessMonth

In honor of #AmyloidosisAwarenessMonth , read as Amyloidosis President Mary O’Donnell discusses the organization’s work in AL #amyloidosis and why this awareness month matters: bit.ly/490dCll

#ATTR News: Intellia doses the first patient in its Phase 3 MAGNITUDE study of NTLA-2001 for the potential treatment of #transthyretinamyloidosis with cardiomyopathy: ir.intelliatx.com/news-releases/…

#GeneEditing #CRISPR

🌟 #AmyloidosisAwareness 🌟

Did you know that Amyloidosis affects multiple organs, including the heart? Misfolded proteins deposit in tissues, causing damage. Cardiac Amyloidosis (CA) can lead to dysfunction and heart failure.
#HeartHealth #NuclearCardiology #HealthAwareness

In the US, hereditary ATTR disproportionately afflicts Black Americans. Some signs and symptoms should raise suspicion for the potential diagnosis in people of color.

March is #AmyloidosisAwarenessMonth ! We’re joining the Amyloidosis in their “Light the Night for Amyloidosis” campaign by illuminating our global headquarters red to help raise awareness of #amyloidosis .

*** NEW LOCATIONS ***
Light the Night for Amyloidosis has new locations as of today! More are expected later today also. We will keep you posted!

One of our staff members will be at #RareDiseaseWeek on Capitol Hill next week (EveryLife Foundation ) and #RareDiseaseDay at NIH
We would love to meet members of our community - and advocate together! If you'll be there as well, let us know! #RareDC2024 #Amyloidosis

Many symptoms may seem unrelated to the heart, such as bilateral carpal tunnel or torn biceps tendon, but the reality is that these may be warning signs for ATTR-CM causing heart failure. Learn about the facts through the HFSA: bit.ly/3OclLvx #HFWeek2024

🤞🏼SAVE THE DATE 🤞🏼

March 2, 2024
Tennessee In-person Support Group Meeting

🚨🚨🚨 List of sites for 'Light the Night for Amyloidosis' 🚨🚨🚨
Sites are being added almost daily! Check back often to see if there's one near you!
amyloidosis.org/event/466/2024…