Ammar Al-Chalabi
@AmmarAlChalabi
Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.
28-10-2015 09:58:22
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Tofersen is an effective therapy for the 2% of people with #ALS #MND who carry a genetic variation in their SOD1 gene. Whether it is available in the UK depends on a cost threshold and assessment by NICE. The system is outdated:
theguardian.com/society/2024/a…
UK MND Research Institute MND Association