CENAs disease advocacy partners: Alstrom Syndrome Int @AXYSinfo JSRDF PXE International @NGF_Gaucher @HFIconnect IBC Research Fdn @DCOutreachInc MLD Foundation

Are we part of your morning routine yet?? Get coffee...VOTE AGAIN! #constantcontact conta.cc/1x8WPWz

100 days until Rare Disease Day - the website for #RareDisease Day 2015 launched today! Add your events now! thndr.it/14mDkAq

Amazon donates to Alstrom Syndrome International when you shop @AmazonSmile. smile.amazon.com/ch/01-0515187 #YouShopAmazonGives

The results are in! YOU DID IT!!!! You helped Alstrom Angels win $10,000! conta.cc/1sPINes Congratulations Alström Angels

50 days until #RareDiseaseDay 2015! Be heard, tell your story. bit.ly/RAREStory #HandprintsAcrossAmerica

Involve the patient: #raredisease registries accelerate treatment & address knowledge gap about patients' daily lives bit.ly/1ICTMLG

Genetic Alliance CEO Sharon F. Terry attends Barack Obama #PrecisionMedicine Initiative announcement. Watch it live: whitehouse.gov/live

The 2015 video is OUT - bring people #livingwith a #raredisease out of the shadows: ow.ly/J8oHn

A5 NIH Clinical Center is the largest hospital devoted to clinical research and a major resource for rare disease patients worldwide. #NIHChat