
Alpha-1 Foundation Ireland
@alpha1_ireland
Dedicated to improving the lives of people with Alpha-1. Find us at alpha1.ie or on Facebook (@alpha1ireland). CHY22304. #Alpha1Awareness
ID: 855425097921855488
http://www.alpha1.ie 21-04-2017 14:16:51
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๐น Could #Alpha1AntitrypsinDeficiency (AATD) be part of your ๐ฝ๐๐๐๐๐ ๐๐๐๐๐๐๐๐? This rare genetic condition affects lungs & liver โ and often goes undiagnosed. โ A simple blood test can detect it early. ๐ก๏ธ Learn more: alpha1awarenessday.org #TheVikingLegacy




A busy day to start the summer with Alpha-1 Foundation Ireland visits to Carlow #COPD Support and Kilkenny #COPD Support groups. Thanks to Rosaleen MacUistin HSE Ireland for organising. To find your nearest support group visit COPD Support Ireland website copd.ie #Alpha1Awareness

Is it asthma or ๐ ๐๐๐๐กโ๐๐๐ ๐๐๐๐? ๐ค #Asthma and #Alpha1 (#AATD) share symptoms like wheezing & shortness of breath โ but missing an Alpha-1 diagnosis can lead to serious lung damage. ๐ฉธA simple blood test can help. Ask your doctor. โ The right diagnosis = the right


๐โโ๏ธ Raise your hand if you think you know what the Vikings left behind as a legacy... Weโre pretty sure thereโs at least one fact that will surprise you. And trust usโthe last one is something everyone should know. ๐ก๏ธ ๐ Discover the surprising connection between Viking history


At the American Thoracic Society (ATS) conference in San Francisco this week, there was an inspiring presentation by Len Geiger about his diagnosis of #AATD at the age of 35. By sharing his story, Len raise #Alpha1Awareness among the thousands of respiratory HCPs present. tinyurl.com/msbbbsee


Could AATD trace back to our ๐ฝ๐๐๐๐๐ ๐๐๐๐๐? ๐ก๏ธ In AATD, abnormal proteins can damage the liver โ even in infants. โ ๏ธEarly signs may include: jaundice, poor growth, swelling, diarrhoea. Timely detection of hepatic diseases is essential and possible with a simple blood


๐ญ A1EA supports ๐๐จ๐ซ๐ฅ๐ ๐๐จ ๐๐จ๐๐๐๐๐จ ๐๐๐ฒ ๐๐๐๐! ๐ญ This year, World Health Organization (WHO) is exposing the harmful tactics of the tobacco and nicotine industries, which continue to target young people with appealing flavors, sleek designs, and deceptive marketing. ๐ Did you know? ๐


The 500th person with severe Alpha-1 caused by the ZZ genotype has been diagnosed in Ireland. The national detection programme for Alpha-1, funded by HSE Ireland, began in 2004 and is the only programme of its kind in the world. Thanks to RCSI & Alpha-1 Foundation for their support.

Detecting reduced levels of the Alpha -1 protein is performed in Medical Labs all over the country, robust reflexing pathways for typing means samples reach the foundation to detect these patients Academy of Clinical Science & Laboratory Medicine

๐ฃThe Alpha-1 Europe Alliance just held its ๐ฏ๐ฟ๐ฑ ๐๐ป๐ป๐๐ฎ๐น ๐๐๐๐ฒ๐บ๐ฏ๐น๐ - a moment to reflect, connect, and look ahead. Together, we reviewed 2024 activities, approved finance reports, and adopted our 2025 roadmap โ renewing our united commitment to the Alpha-1


As a member of the Future of Registries Taskforce (FoRT), Alpha-1 Foundation Ireland helped shape a new report โSustaining Patient Registries in Irelandโ. More than just collections of data, registries are vital for delivering better healthcare. More at tinyurl.com/4s7s2dbf
