Alpha-1 Foundation Ireland (@alpha1_ireland) 's Twitter Profile
Alpha-1 Foundation Ireland

@alpha1_ireland

Dedicated to improving the lives of people with Alpha-1. Find us at alpha1.ie or on Facebook (@alpha1ireland). CHY22304. #Alpha1Awareness

ID: 855425097921855488

linkhttp://www.alpha1.ie calendar_today21-04-2017 14:16:51

1,1K Tweet

624 Followers

171 Following

Alpha-1 Europe Alliance asbl (@alpha1europe) 's Twitter Profile Photo

๐Ÿงฌ#WorldLiverDay Your liver does 500+ vital jobs. Donโ€™t take it for granted! For people with Alpha-1 Antitrypsin Deficiency, liver disease can be serious & silent. ๐Ÿฉบ Early detection matters. Ask your doctor about AATD. #LiverHealth #Alpha1 #Alpha1awareness

๐Ÿงฌ#WorldLiverDay Your liver does 500+ vital jobs. Donโ€™t take it for granted!
For people with Alpha-1 Antitrypsin Deficiency, liver disease can be serious & silent.
๐Ÿฉบ Early detection matters. Ask your doctor about AATD. #LiverHealth #Alpha1 #Alpha1awareness
Alpha-1 Europe Alliance asbl (@alpha1europe) 's Twitter Profile Photo

๐Ÿ›ก๏ธ The Viking leader shares a powerful truth from the past: a genetic legacy some of us still carry today. ๐Ÿงฌ Early recognition is key. ๐Ÿ” Discover more: alpha1awarenessday.org #TheVikingLegacy #UnitedForAlpha1

Alpha-1 Europe Alliance asbl (@alpha1europe) 's Twitter Profile Photo

Today is European Alpha-1 Awareness Day! #April25๐Ÿ›ก๏ธ What if the Viking legacy left you more than bravery? Alpha-1 is a hereditary condition that can affect your lungs & liver. ๐Ÿฉธ Early diagnosis saves lives. Learn more: alpha1awarenessday.org #Alpha1 #TheVikingLegacy

Today is European Alpha-1 Awareness Day! #April25๐Ÿ›ก๏ธ What if the Viking legacy left you more than bravery? Alpha-1 is a hereditary condition that can affect your lungs & liver. ๐Ÿฉธ Early diagnosis saves lives.
Learn more: alpha1awarenessday.org #Alpha1 #TheVikingLegacy
Alpha-1 Europe Alliance asbl (@alpha1europe) 's Twitter Profile Photo

Alpha-1 Antitrypsin Deficiency is a hidden legacy - traced back to the Vikings- that can lead to serious lung & liver disease. Early detection through a simple blood test can change lives. โš”๏ธKnow the signs. ๐Ÿ”— alpha1awarenessday.org #April25 #Alpha1AwarenessDay #UnitedForAlpha1

Alpha-1 Antitrypsin Deficiency is a hidden legacy - traced back to the Vikings- that can lead to serious lung & liver disease. Early detection through a simple blood test can change lives. โš”๏ธKnow the signs.
๐Ÿ”— alpha1awarenessday.org
#April25 #Alpha1AwarenessDay #UnitedForAlpha1
Alpha-1 Europe Alliance asbl (@alpha1europe) 's Twitter Profile Photo

๐Ÿน Could #Alpha1AntitrypsinDeficiency (AATD) be part of your ๐‘ฝ๐’Š๐’Œ๐’Š๐’๐’ˆ ๐’‰๐’†๐’“๐’Š๐’•๐’‚๐’ˆ๐’†? This rare genetic condition affects lungs & liver โ€” and often goes undiagnosed. โœ… A simple blood test can detect it early. ๐Ÿ›ก๏ธ Learn more: alpha1awarenessday.org #TheVikingLegacy

๐Ÿน Could #Alpha1AntitrypsinDeficiency (AATD) be part of your ๐‘ฝ๐’Š๐’Œ๐’Š๐’๐’ˆ ๐’‰๐’†๐’“๐’Š๐’•๐’‚๐’ˆ๐’†?
This rare genetic condition affects lungs & liver โ€” and often goes undiagnosed.

โœ… A simple blood test can detect it early.
๐Ÿ›ก๏ธ Learn more: alpha1awarenessday.org

#TheVikingLegacy
Alpha-1 Europe Alliance asbl (@alpha1europe) 's Twitter Profile Photo

๐Ÿ”ฅ The Viking leader returns with a vital message: an ancient legacy still carried in our genes today. โš”๏ธ Early recognition can save lives. ๐Ÿ“œ Uncover the full story: alpha1awarenessday.org #TheVikingLegacy #UnitedForAlpha1 #Alpha1Europe

Rare Diseases Ireland (@rarediseasesie) 's Twitter Profile Photo

Share your experiences of the challenges faced by a family when a child is diagnosed with a #RareDisease tinyurl.com/bdhwd2az Help us to understand what matters most for people living with rare diseases.

Share your experiences of the challenges faced by a family when a child is diagnosed with a #RareDisease
 tinyurl.com/bdhwd2az
Help us to understand what matters most for people living with rare diseases.
Alpha-1 Foundation Ireland (@alpha1_ireland) 's Twitter Profile Photo

A busy day to start the summer with Alpha-1 Foundation Ireland visits to Carlow #COPD Support and Kilkenny #COPD Support groups. Thanks to Rosaleen MacUistin HSE Ireland for organising. To find your nearest support group visit COPD Support Ireland website copd.ie #Alpha1Awareness

Alpha-1 Europe Alliance asbl (@alpha1europe) 's Twitter Profile Photo

Is it asthma or ๐‘ ๐‘œ๐‘š๐‘’๐‘กโ„Ž๐‘–๐‘›๐‘” ๐‘š๐‘œ๐‘Ÿ๐‘’? ๐Ÿค” #Asthma and #Alpha1 (#AATD) share symptoms like wheezing & shortness of breath โ€” but missing an Alpha-1 diagnosis can lead to serious lung damage. ๐ŸฉธA simple blood test can help. Ask your doctor. โœ…The right diagnosis = the right

Is it asthma or ๐‘ ๐‘œ๐‘š๐‘’๐‘กโ„Ž๐‘–๐‘›๐‘” ๐‘š๐‘œ๐‘Ÿ๐‘’? ๐Ÿค”
#Asthma and #Alpha1 (#AATD) share symptoms like wheezing & shortness of breath โ€” but missing an Alpha-1 diagnosis can lead to serious lung damage.

๐ŸฉธA simple blood test can help. Ask your doctor. 
โœ…The right diagnosis = the right
Alpha-1 Europe Alliance asbl (@alpha1europe) 's Twitter Profile Photo

๐Ÿ™‹โ€โ™€๏ธ Raise your hand if you think you know what the Vikings left behind as a legacy... Weโ€™re pretty sure thereโ€™s at least one fact that will surprise you. And trust usโ€”the last one is something everyone should know. ๐Ÿ›ก๏ธ ๐Ÿ‘‰ Discover the surprising connection between Viking history

Alpha-1 Europe Alliance asbl (@alpha1europe) 's Twitter Profile Photo

๐Ÿ›ก๏ธ Did you know Alpha-1 Antitrypsin Deficiency (AATD) might trace back to our #Viking heritage? When AAT protein misfolds, it can harm the liver. Symptoms in adults may include: โš ๏ธ Jaundice โš ๏ธ Swelling/pain โš ๏ธ Itching โš ๏ธ Fatigue A simple blood test can help. ๐Ÿงฌ Could it be

๐Ÿ›ก๏ธ Did you know Alpha-1 Antitrypsin Deficiency (AATD) might trace back to our #Viking heritage?
When AAT protein misfolds, it can harm the liver. Symptoms in adults may include:
 โš ๏ธ Jaundice
 โš ๏ธ Swelling/pain
 โš ๏ธ Itching
 โš ๏ธ Fatigue
A simple blood test can help.
 ๐Ÿงฌ Could it be
Alpha-1 Foundation (@alphafriend) 's Twitter Profile Photo

From scientific discovery to the therapies of tomorrowโ€”clinical trials move us forward. This Clinical Trials Day ๐Ÿ”ฌ, find out how research is transforming the future for the Alpha-1 community: alpha1.org/clinical-trialโ€ฆ

From scientific discovery to the therapies of tomorrowโ€”clinical trials move us forward. This Clinical Trials Day ๐Ÿ”ฌ, find out how research is transforming the future for the Alpha-1 community: alpha1.org/clinical-trialโ€ฆ
Alpha-1 Foundation Ireland (@alpha1_ireland) 's Twitter Profile Photo

At the American Thoracic Society (ATS) conference in San Francisco this week, there was an inspiring presentation by Len Geiger about his diagnosis of #AATD at the age of 35. By sharing his story, Len raise #Alpha1Awareness among the thousands of respiratory HCPs present. tinyurl.com/msbbbsee

HSE QUIT Team (@hsequitteam) 's Twitter Profile Photo

Vaping can harm your heart, lungs, and overall organ function. Avoid it as a way to quit smoking. The safest and most effective way to stop is by seeking support from a stop smoking advisor. Learn more about quitting vaping at: pulse.ly/fnvi1xxk9o #QuitVaping

Alpha-1 Europe Alliance asbl (@alpha1europe) 's Twitter Profile Photo

Could AATD trace back to our ๐‘ฝ๐’Š๐’Œ๐’Š๐’๐’ˆ ๐’“๐’๐’๐’•๐’”? ๐Ÿ›ก๏ธ In AATD, abnormal proteins can damage the liver โ€” even in infants. โš ๏ธEarly signs may include: jaundice, poor growth, swelling, diarrhoea. Timely detection of hepatic diseases is essential and possible with a simple blood

Could AATD trace back to our ๐‘ฝ๐’Š๐’Œ๐’Š๐’๐’ˆ ๐’“๐’๐’๐’•๐’”? ๐Ÿ›ก๏ธ
In AATD, abnormal proteins can damage the liver โ€” even in infants. โš ๏ธEarly signs may include: jaundice, poor growth, swelling, diarrhoea. 
Timely detection of hepatic diseases is essential and possible with a simple blood
Alpha-1 Europe Alliance asbl (@alpha1europe) 's Twitter Profile Photo

๐Ÿšญ A1EA supports ๐–๐จ๐ซ๐ฅ๐ ๐๐จ ๐“๐จ๐›๐š๐œ๐œ๐จ ๐ƒ๐š๐ฒ ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ“! ๐Ÿšญ This year, World Health Organization (WHO) is exposing the harmful tactics of the tobacco and nicotine industries, which continue to target young people with appealing flavors, sleek designs, and deceptive marketing. ๐Ÿ”Ž Did you know? ๐Ÿ“Œ

๐Ÿšญ A1EA supports ๐–๐จ๐ซ๐ฅ๐ ๐๐จ ๐“๐จ๐›๐š๐œ๐œ๐จ ๐ƒ๐š๐ฒ ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ“! ๐Ÿšญ

This year, <a href="/WHO/">World Health Organization (WHO)</a> is exposing the harmful tactics of the tobacco and nicotine industries, which continue to target young people with appealing flavors, sleek designs, and deceptive marketing.

๐Ÿ”Ž Did you know?
๐Ÿ“Œ
Alpha-1 Foundation Ireland (@alpha1_ireland) 's Twitter Profile Photo

The 500th person with severe Alpha-1 caused by the ZZ genotype has been diagnosed in Ireland. The national detection programme for Alpha-1, funded by HSE Ireland, began in 2004 and is the only programme of its kind in the world. Thanks to RCSI & Alpha-1 Foundation for their support.

Miriam Shinners (@miriamshinners) 's Twitter Profile Photo

Detecting reduced levels of the Alpha -1 protein is performed in Medical Labs all over the country, robust reflexing pathways for typing means samples reach the foundation to detect these patients Academy of Clinical Science & Laboratory Medicine

Alpha-1 Europe Alliance asbl (@alpha1europe) 's Twitter Profile Photo

๐Ÿ“ฃThe Alpha-1 Europe Alliance just held its ๐Ÿฏ๐—ฟ๐—ฑ ๐—”๐—ป๐—ป๐˜‚๐—ฎ๐—น ๐—”๐˜€๐˜€๐—ฒ๐—บ๐—ฏ๐—น๐˜† - a moment to reflect, connect, and look ahead. Together, we reviewed 2024 activities, approved finance reports, and adopted our 2025 roadmap โ€” renewing our united commitment to the Alpha-1

๐Ÿ“ฃThe Alpha-1 Europe Alliance just held its ๐Ÿฏ๐—ฟ๐—ฑ ๐—”๐—ป๐—ป๐˜‚๐—ฎ๐—น ๐—”๐˜€๐˜€๐—ฒ๐—บ๐—ฏ๐—น๐˜† - a moment to reflect, connect, and look ahead.

Together, we reviewed 2024 activities, approved finance reports, and adopted our 2025 roadmap โ€” renewing our united commitment to the Alpha-1
Alpha-1 Foundation Ireland (@alpha1_ireland) 's Twitter Profile Photo

As a member of the Future of Registries Taskforce (FoRT), Alpha-1 Foundation Ireland helped shape a new report โ€œSustaining Patient Registries in Irelandโ€. More than just collections of data, registries are vital for delivering better healthcare. More at tinyurl.com/4s7s2dbf

As a member of the Future of Registries Taskforce (FoRT), <a href="/Alpha1_Ireland/">Alpha-1 Foundation Ireland</a> helped shape a new report โ€œSustaining Patient Registries in Irelandโ€. More than just collections of data, registries are vital for delivering better healthcare. More at tinyurl.com/4s7s2dbf