Watch and wait!! Is a lonely place living with #cancer wondering if the disease inside is killing me between scans. Patient perspective is important to finding a better solution and we have a voice so use it! #letscometogether #lifeonextratime #speaker #patientvoice #organsonatio

Great day at The Royal College of Surgeons of England in London with the Sentinel Skin flap team, & to see Professor Peter Friend who led my #transplant and share a beer with Henk Giele who transplanted my Abdominal wall. #lifeonextratime #pseudomyxoma #organdonation #cancer

What an honour to be selected for Macmillan Cancer Support Race of their lives 2024. Amateur rider to professional #jockey in just 6 months. See you at York Racecourse in June PMI Basingstoke #cancer #pseudomyxoma #organtransplant #HorseRacing #charity

I’ve done some crazy stuff over the last few years but this is my biggest challenge yet ! ⁦Macmillan Cancer Support⁩ held my hand through my #cancer journey. Now I’m taking on the Ride of their lives challenge #horseracing #jockey #pseudomyxoma #transplant yorkpress.co.uk/news/23994287.…

Training for the Macmillan Cancer Support Ride of their lives is coming together. Now I’m on the gallops with a better position and feeling confident 👍🏻TopSpec York Racecourse Jedd O'Keeffe PMI Basingstoke Peritoneal Surface Oncology Group International Oxford Transplant Research #pseudomyxoma #transplant NHS Organ Donation💗🫀🫁 #lifeonextratime

Great night training IJF Jack Berry House with our Jockey coach. I go to Racing collage next week to get some intense training ahead of Macmillan Cancer Support Ride of their lives York Racecourse #lifeonextratime #cancer #transplant #pseudomyxoma #HorseRacing #jockey

Did you know my abdominal wall skin graft gives me information of any early rejection ? Now with the team Oxford Transplant Research we look to see if skin grafts do the same in heart and lung patients #interesting #organdonation #organtransplant #surgery #medicalresearch PMI Basingstoke

I’m proud to be part of the team who saved my life Nuffield Department of Surgical Sciences and Henk Giele who did my abdominal wall graft surgery almost 9years ago. PMI Basingstoke Oxford Transplant Research Pelican Cancer Foundation Macmillan Cancer Support Peritoneal Surface Oncology Group International ESOTtransplant bbc.co.uk/news/health-68…

I’m not sure the side effects of long term steroids for Anti Rejection are worth it 🤦🏻‍♂️ Its worth saying I’m an absolute idiot and I don’t take life too seriously 👍🏻 #lifeonextratime #pseudomyxoma #cancer #organdonation #organtransplant #yaks #lifesforlaughing #patientadvocate

25 years ago I met my wife Laura. Together we worked together to never give up and do all it takes to keep me alive and us together. Now we face the same fight but know how to beat it ! The support of our partners is everything #cancer #transplant #Pseudomyxoma #patientadvocate

Having a Sentinal Skin Flap as part of a solid organ transplant might seem daunting to pre surgery patients, but just look how the skin settles in its new home. This allows patients to identify any early rejection and seek treatment. #lifeonextratime #organdonation #surgery

This Sunday I’m in the Mail on Sunday sharing my life with multi visceral transplant & #Pseudomyxoma from struggling to start a family after treatment to receiving a letter from me #Donor family. It’s emotional so grab a copy PMI Basingstoke NHS Organ Donation💗🫀🫁 #cancer #organdonation

Really excited to have collaborated with NTH Solutions to drive my dream of an epic Patient Clothing brand Yaks #Yaks together with the team we’re about to shake up the fashion industry 👍🏻 #ostomy #stoma #patientfashion #insulinpump #forthebrave

As a patient living rural, it can take a community #nurse an hours drive back to base. Community Kit Bag ensures they have what they need,when they need it elevating down time and patient discomfort. #communitynursing #getyourbootbag NTH Solutions #gppractice #Innovation

I’ve never shared openly I have lived with a #stoma for almost 11years until now. Speaking with Ostique on their inspirational Podcast - Chatting Shit with Ostique share my thoughts and emotions of life with an Ostomy #forthebrave #Yakslife open.spotify.com/episode/1A3bJ2…

The Yaks team were out at Stockton-on-Tees Employment & training hub making connections and seeking out opportunities yesterday. A really insightful & informative discussion for small business concepts and innovation to reach its potential. Edge Innovation NTH Solutions

This Saturday I’m riding a pink Princess Bike made for a 4 year old girl, 30 miles through the Yorkshire Dales for Science and Innovation at Cancer Research UK proudly sponsored by HECK! showing that living with #cancer doesn’t mean we stop living ITV News BBC News (UK) PMI Basingstoke #lifeonextratime

It’s subtle but it’s there ! After a rough night I’ve noticed a rash on my donor abdominal wall which could be a sign of early solid organ rejection. Now I wait to see if I need biopsies or intervention to stop it. TTS PMI Basingstoke Henk Giele #lifeonextratime #PMP #cancer