Acromegaly Community (@acrocommunity) 's Twitter Profile
Acromegaly Community

@acrocommunity

Please visit our website at AcromegalyCommunity.org. Membership, info & support always free!

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linkhttp://www.AcromegalyCommunity.org calendar_today04-09-2009 17:43:48

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Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

Congress can pass meaningful #PBM reform right now.   Delinking drug prices from PBM income and requiring rebate pass through to patients will lower out-of-pocket patient costs. Markwayne Mullin Congressman Kevin Hern #S1542 #S2474 #HR5376

CheckRare (@checkrare) 's Twitter Profile Photo

In the quest for an effective and convenient acromegaly treatment option, Crinetics Pharmaceuticals has developed paltusotine, an oral, once-daily investigational compound #checkrare #acromegaly AcromegalyCanada Acromegaly Community checkrare.com/a-possible-bre…

CheckRare (@checkrare) 's Twitter Profile Photo

Patrick Lewis, PharmD, Senior Director, Medical Affairs at Amryt Pharma provides an overview of acromegaly and why diagnostic delays for this rare disease are so common #checkrare #acromegaly Acromegaly Community AcromegalyCanada checkrare.com/acromegaly-and…

Dr. Maria Fleseriu (@mariafleseriu) 's Twitter Profile Photo

Free SharedIt link: rdcu.be/dJ6TP Read our collab international review led by Dr. Daniela Esposito. #Complications in #acromegaly are numerous &important to treat simultaneously. Personalized medical RX should consider all comorbidities. OHSU Brain Institute Acromegaly Community WAPO

Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

The Acromegaly Community: An international haven for people living with acromegaly rarerevolutionmagazine.com/the-acromegaly… #RareRevolution

Crinetics Pharmaceuticals (@crinetics) 's Twitter Profile Photo

On #AcromegalyAwarenessDay, we collectively raise awareness and offer hope to the acromegaly community. At Crinetics, we’re proud to work alongside patient-centered organizations like Acromegaly Community, AcromegalyCanada, Pituitary Network, and The Pituitary Foundation.

On #AcromegalyAwarenessDay, we collectively raise awareness and offer hope to the acromegaly community. 

At Crinetics, we’re proud to work alongside patient-centered organizations like <a href="/AcroCommunity/">Acromegaly Community</a>, <a href="/AcromegalyCAN/">AcromegalyCanada</a>, <a href="/pituitaryorg/">Pituitary Network</a>, and <a href="/Pituitary_org/">The Pituitary Foundation</a>.
Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

Pharmacy benefit managers list hundreds of prices for the same drug, some that are 51 times as much as others.   It's time for #PBMReform Congressman Kevin Hern ohiocapitaljournal.com/2024/07/26/dru…

Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

Pharmacy benefit managers control 80% of insured drug transactions in the U.S.   #PBMReform is needed to hold PBMs accountable. Congressman Kevin Hern ohiocapitaljournal.com/2024/07/26/dru…

Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

90% of U.S. prescriptions are pills. The “pill penalty” puts those at risk, leading to fewer treatments and less access.    Rep. Vern Buchanan Congressman Greg Steube Congressman Kevin Hern, please support the bipartisan #EPICAct to fix this harmful penalty.

Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

Small-molecule medicines treat cancer, heart disease & more, but they face harmful obstacles under the "pill penalty."   Patients deserve better. Rep. Vern Buchanan Congressman Greg Steube Congressman Kevin Hern, please stand up for health access and innovation. Support the #EPICAct to protect patients

Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

Large healthcare entities say the 340B Program wasn’t meant to lower patient costs, yet they pocket millions while vulnerable patients are left behind.   Markwayne Mullin please help to #Fix340B. help.senate.gov/rep/newsroom/p…

Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

Governor Jeff Landry, Louisiana patients need reform that tackles the root cause of high drug costs: PBMs’ profits tied to inflated prices. We need to bring transparency and fairness to the system to lower out of pocket costs for patients. #LALeg

Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

The 340B Program’s rapid expansion has been linked to insurance premium increases of $22 billion a year, costing families $415/year. This was never the goal.   Markwayne Mullin please support #340BReform to restore integrity & reinvest savings in care. nationalalliancehealth.org/wp-content/upl…