ALSUnitedGNY (@alsofgny) 's Twitter Profile
ALSUnitedGNY

@alsofgny

ALS United Greater New York. Care. Serving those living with ALS and their families in NYC, Long Island, Lower & Mid-Hudson Valley, and Northern & Central NJ.

ID: 15459234

linkhttp://als-ny.org calendar_today16-07-2008 20:25:22

6,6K Tweet

2,2K Followers

1,1K Following

ALSUnitedGNY (@alsofgny) 's Twitter Profile Photo

We salute our service members & stand with veterans battling ALS. Support the #JusticeforALSVeteransAct to ensure fair compensation for families. Let's address the 8-year eligibility rule for ALS-related benefits. House Veterans Affairs Subcommittee, pass HR 3790/SB 1590 swiftly!

We salute our service members & stand with veterans battling ALS. Support the #JusticeforALSVeteransAct to ensure fair compensation for families. Let's address the 8-year eligibility rule for ALS-related benefits. House Veterans Affairs Subcommittee, pass HR 3790/SB 1590 swiftly!
ALSUnitedGNY (@alsofgny) 's Twitter Profile Photo

Thank you, Governor Kathy Hochul for including funding for #ALS Research in the New York State of the State! Your proposed investments will enable further innovation, research, and drug development. #ALSResearch #NewYork

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We are deeply disappointed by the news that Relyvrio, in its Phase 3 clinical trial, didn't reach its desired outcome. Like many in the ALS community, we remain hopeful that this setback will lead to valuable insights & lead closer to finding a cure.

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SAVE THE DATE! 2-day virtual Education & Resource Summit 5/16 - 5/17. Topics include Genetics & ALS, Perspectives in Caregiving, Palliative Care, Drug Therapies, Living w/ ALS Patient Perspective, Voice Banking, & more! Free! Open to #ALS community. Email [email protected]

SAVE THE DATE! 2-day virtual Education & Resource Summit 5/16 - 5/17. Topics include Genetics & ALS, Perspectives in Caregiving, Palliative Care, Drug Therapies, Living w/ ALS Patient Perspective, Voice Banking, & more! Free! Open to #ALS community. Email events@als-ny.org
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Excited to participate AMP® ALS program, along with Foundation for the National Institutes of Health, NIH’s NINDS, industry & nonprofit partners to accelerate progress in #ALS research #AMPALS #MND #BridgesToBreakthroughs #ALSUnited youtu.be/vjeR6JnL-dw?si… via YouTube

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We are hopeful the legislature will reinstate these cuts and the governor will pass them. ‘Shocked and distraught’: N.J. Governor Phil Murphy proposed state spending plan slashes funding for #ALS services whyy.org/articles/als-s…

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Join us at New York Yankees Game on July 4th to honor the legacy of #LouGehrig. Portion of every ticket sold through this offer only will benefit ALS United Greater New York. Tickets at bit.ly/YankeesALSDay #ALSUnited

Join us at <a href="/Yankees/">New York Yankees</a> Game on July 4th to honor the legacy of #LouGehrig. Portion of every ticket sold through this offer only will benefit ALS United Greater New York. Tickets at bit.ly/YankeesALSDay #ALSUnited
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ALS United GNY proud to be part of ALS United, a community dedicated to supporting those affected by ALS. Name may be new, but roots run deep – some member organizations have served their communities for over 40 yrs. alsunited.org. #TogetherWeEndALS #ALSUnited #ALS

ALS United GNY proud to be part of ALS United, a community dedicated to supporting those affected by ALS. Name may be new, but roots run deep – some member organizations have served their communities for over 40 yrs. alsunited.org. #TogetherWeEndALS #ALSUnited #ALS
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Thanks to Melanie for sharing her journey with Today.com. "ALS has killed multiple people in my family. Now it's coming for me." #ALS #ALSResearch today.com/health/essay/f… via TODAY

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A heartfelt thank you to Aaron Lazar and the Broadway community for their incredible efforts in raising awareness & support for our ALS United partner, ALS Network. youtu.be/-c0_XeFW52M?si… #ALSUnited #Broadway #TogetherWeEndALS

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Proudly announce that one of our three Lou Gehrig Sports Awards will be presented to Thomas Morstead at The Lou Gehrig Legacy Gala 11/12. Join us as we honor Thomas, Dan Doctoroff, David Lubars, Adam Graves, and John Sterling. Tickets available ➡ALSGala.givesmart.com #ALS

Proudly announce that one of our three Lou Gehrig Sports Awards will be presented to <a href="/thomasmorstead/">Thomas Morstead</a>  at The Lou Gehrig Legacy Gala 11/12.  Join us as we honor Thomas, <a href="/DanDoctoroff/">Dan Doctoroff</a>, David Lubars,  Adam Graves, and John Sterling. Tickets available ➡ALSGala.givesmart.com #ALS
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Your advocacy matters! The bipartisan Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act has officially passed the House! It's time for the Senate to pass this crucial legislation to ensure veterans receive the care and support they deserve #ALS

Your advocacy matters! The bipartisan Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act has officially passed the House! It's time for the Senate to pass this crucial legislation to ensure veterans receive the care and support they deserve #ALS