Ken's ALS FAQ's, Q: What the heck is AAC, Eyegaze, and BCI and why are they helpful for you? A: Without doing a "TED talk", here's the scoop... After spending nearly a year in hospital 2011-2012, I realized that my condition had radically changed. gofundme.com/ALS-Survivor

I'm doin' the Dead every day this November. Take the 30 Days Of Dead Challenge 💀🎸🎶 dead.net/30daysofdead?c… via Grateful Dead #ALSsurvivor #hope4kowALSki

#ALSsurvivor #hope4kowALSki

#ALSsurvivor #hope4kowALSki

Please contact your Representative today and tell them to support veterans living with ALS and their families by co-sponsoring H.R. 6001 – the Veterans with ALS Reporting Act. als.quorum.us/campaign/150898

Charlie Brown & the Peanuts Gang Playing La Grange - it sidetracked me from my search for them singing "Christmastime" yesterday- Too Cool !!!! 🤘😎youtu.be/ai1G9FH6LCM?si… via YouTube #ALSsurvivor #hope4kowALSki

The new bed is funded (thank you!), the spare vent is approved, and I’m beta-testing a new Eyegaze PC that’s 4x faster than my current rig. 💻✨Just gotta finish these IV meds so I can get "well enough to go to the hospital"! gofund.me/d3f56a60

Use the Force 🖖or Naqi Logix Inc. earbuds: tomsguide.com/ai/i-just-trie… #AAC #ALSsurvivor

Back in hospital after almost 14 years gofundme.com/ALS-Survivor

Help Ken Stay at His Home Support an ALS Survivor! givesendgo.com/ALSsurvivorKen…

Help Ken Stay at His Home Support an ALS Survivor! givesendgo.com/ALSsurvivorKen… #ALSsurvivor #hope4kowALSki

Yeah, it was a simple office visit to my pulmonary doc and it wound up being a three week " vacation " in the ICU! We found some underlying issues that needed to be fixed Thanks for reading, and please share or even donate! gofund.me/e1df84d6e

I took action to support people with ALS and their families in Arizona. HB 2433 would guarantee access to Medigap coverage for those under 65 with ALS at no cost to the state. Join me in asking lawmakers to support this important bill. #ALSsurvivor als.quorum.us/campaign/157628

Join me in helping raise awareness for ALS, also known as Lou Gehrig’s disease, a progressive condition that affects mobility, speech, and the ability to breathe. By supporting ALS Awareness Month, we can educate the public, honor families living with ALS als.quorum.us/campaign/ALS-A…

Huge update: IV treatment done and the catheter is out! I am one step away from surgery. Your support is getting me closer to my goal of being back at a Dbacks game by July. Please donate and share to help me keep momentum. gofundme.com/ALS-Survivor

U of U and Meta Launch Research to Enable TetraSki and Smart Home Control via Accessible EMG Wristband - The John and Marcia Price College of Engineering at the University of Utah price.utah.edu/2026/01/06/u-o… via John and Marcia Price College of Engineering #ALSsurvivor #ALS #MND

19 years. 80,000 diagnoses. 1 cure still missing. I was diagnosed with #ALS in 2007. Today, I’m a long-term survivor still fighting for a future where this disease is history. Will you help me "go the distance"? 👇 Learn more & support: gofundme.com/ALS-Survivor #ALSsurvivor

Help Ken Stay at Home Support an #ALSsurvivor ! 19 years. 80,000 diagnoses. 1 cure missing.Diagnosed with #ALS in 2007. I’m a long-term survivor still fighting for a future where this disease is history.Will you help me "go the distance"?👇 Learn more: givesendgo.com/ALSsurvivorKen

Ken’s ALS FAQs: Post diagnosis, "expert" advice was: “Spend all your money to qualify for Medicaid.”I had a better idea. 10 days later, I finished my final triathlon, finishing “ALS Strong,” 19 years later, the fight continues. Share or donate to help: gofundme.com/ALS-Survivor

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