Annabelles Challenge Vascular EDS Charity (@ajschallenge) 's Twitter Profile
Annabelles Challenge Vascular EDS Charity

@ajschallenge

We support patients & families touched by #VascularEDS working with NHS EDS Service. Proud recipients of The Queen’s Award. VascularEDS.org 🧬

ID: 1220001084

linkhttp://www.facebook.com/annabelleschallenge calendar_today25-02-2013 23:32:34

13,13K Tweet

2,2K Followers

1,1K Following

VASCERN (@vascern) 's Twitter Profile Photo

🔴 Today marks 10 years of #REDS4VEDS, a day to raise awareness for vascular #EhlersDanlos syndrome (vEDS), a rare genetic disorder that’s often diagnosed too late. Here’s why this matters 🧵

🔴 Today marks 10 years of #REDS4VEDS, a day to raise awareness for vascular #EhlersDanlos syndrome (vEDS), a rare genetic disorder that’s often diagnosed too late.

Here’s why this matters 🧵
TheMarfanFoundation (@marfanfdn) 's Twitter Profile Photo

Our staff team at the Foundation supports our friends at Annabelle's Challenge and the #Reds4VEDS Movement. We can't wait to wear our red again this October during VEDS Action Month! #VEDS #VEDSAwareness

Our staff team at the Foundation supports our friends at Annabelle's Challenge and the #Reds4VEDS Movement. We can't wait to wear our red again this October during VEDS Action Month! #VEDS #VEDSAwareness
Katie Wearing (@dinkykt) 's Twitter Profile Photo

Wearing red for #REDS4VEDS to raise awareness of Vascular Ehlers-Danlos Syndrome — a rare genetic condition that makes arteries & organs dangerously fragile. It’s invisible, but life-threatening. Awareness saves lives. ♥️ #VEDS #EDS #RareDisease #InvisibleIllness Annabelles Challenge Vascular EDS Charity

Wearing red for #REDS4VEDS to raise awareness of Vascular Ehlers-Danlos Syndrome — a rare genetic condition that makes arteries & organs dangerously fragile.

It’s invisible, but life-threatening.
Awareness saves lives. ♥️

#VEDS #EDS #RareDisease #InvisibleIllness
<a href="/AJsChallenge/">Annabelles Challenge Vascular EDS Charity</a>
JohnRitterFoundation (@johnritterfdn) 's Twitter Profile Photo

Join the Ritters in learning more about VEDS and share a picture of yourself in red! VEDS is a rare, genetic disorder caused by variants in the COL3A1 gene. Many with VEDS are undiagnosed until a life-threatening event occurs. That’s why awareness is key. #reds4veds #JohnRitter

Join the Ritters in learning more about VEDS and share a picture of yourself in red! VEDS is a rare, genetic disorder caused by variants in the COL3A1 gene. Many with VEDS are undiagnosed until a life-threatening event occurs. That’s why awareness is key. #reds4veds #JohnRitter
Zevra Therapeutics (@zevratx) 's Twitter Profile Photo

.Zevra Therapeutics stands with the VEDS community to raise awareness this #REDS4VEDS Day! Wear red, share your support, and help shine a light. #VEDSAwareness #RareDisease

TheMarfanFoundation (@marfanfdn) 's Twitter Profile Photo

Our team wore red today to honor Annabelles Challenge Vascular EDS Charity and #REDS4VEDS. We also want to remind you to go to marfan.org/calendar for free webinars, support groups, and in-person events. Learn more about VEDS at thevedsmovement.org And join us for VEDS Action Month in October - mark

Our team wore red today to honor <a href="/AJsChallenge/">Annabelles Challenge Vascular EDS Charity</a> and #REDS4VEDS. We also want to remind you to go to marfan.org/calendar for free webinars, support groups, and in-person events. Learn more about VEDS at thevedsmovement.org And join us for VEDS Action Month in October - mark
Penny lcfc 💙 (@pennypitstop72) 's Twitter Profile Photo

My friend Broughton Astley is fundraising for Annabelles Challenge. Check out their JustGiving page and please donate if you can. Thank you! #JustGiving justgiving.com/page/balcwolfr… Annabelles Challenge Vascular EDS Charity

Annabelles Challenge Vascular EDS Charity (@ajschallenge) 's Twitter Profile Photo

Today we celebrate 7 years since proudly receiving The Queens Award for Voluntary Service on behalf of all our amazing volunteers. We support patients & families affected by #vascularEDS, a rare genetic disorder. #VolunteersWeek NCVO Andy Burnham GM Lieutenancy

Today we celebrate 7 years since proudly receiving The Queens Award for Voluntary Service on behalf of all our amazing volunteers. 

We support patients &amp; families affected by #vascularEDS, a rare genetic disorder. #VolunteersWeek <a href="/NCVO/">NCVO</a> <a href="/AndyBurnhamGM/">Andy Burnham</a> <a href="/GMLO_UK/">GM Lieutenancy</a>
Annabelles Challenge Vascular EDS Charity (@ajschallenge) 's Twitter Profile Photo

Christina has been volunteering with us for 12 years since Annabelle's Challenge was established in January 2013. Thank you Christina, we appreciate everything you do for us. #VolunteersWeek NCVO

Christina has been volunteering with us for 12 years since Annabelle's Challenge was established in January 2013. Thank you Christina, we appreciate everything you do for us. #VolunteersWeek <a href="/NCVO/">NCVO</a>
Annabelles Challenge Vascular EDS Charity (@ajschallenge) 's Twitter Profile Photo

Happy birthday Danika! 🎉 On your special day, we want you to know how much your hard work and kindness mean to us at Annabelle's Challenge. You truly make a difference for our vEDS community, and we're lucky to have you on our team. 💜

Happy birthday Danika! 🎉

On your special day, we want you to know how much your hard work and kindness mean to us at Annabelle's Challenge. You truly make a difference for our vEDS community, and we're lucky to have you on our team. 💜