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🧠 This #WorldBrainDay, we’re highlighting one of the most impactful ways to advance research in frontotemporal degeneration (FTD): brain donation. Brain tissue from people with and without FTD is essential to developing treatments and diagnostic tools. While the decision can be

Can FTD-linked genes shape brain development before symptoms appear? A new study is exploring this question in families affected by genetic #FTD. Now enrolling across Canada and Europe. ftdregistry.org/press/new-stud… #endFTD #FTDResearch

Joe, co-facilitator for a support group, first joined as a care partner for his wife, Jackie. 💝 With a gift today, you will join Joe and a community empowered to ensure resources like AFTD’s support group network are available to those who need them: bit.ly/45csi1X

After losing his wife Maria to FTD, AFTD Ambassador Dan Moser found a new purpose: advocating for dementia caregivers. In a recent interview, Dan shared how his experience as a caregiver and a social worker inspired his work supporting others impacted by FTD. Today, he leads a

Cuts to federal programs are putting crucial support at risk. Together, we can raise our voices to protect them. Join AFTD’s Advocacy Webinar on July 31 to learn how to connect with legislators and tell your story in a way that makes a difference. 📅 RSVP here:

🧬 On Genetic Testing Action Day, we’re sharing an important message: Genetic counseling and testing should be offered to anyone diagnosed with FTD. A new Neurology article co-authored by AFTD’s Kim Jenny underscores how understanding the genetic causes of FTD can lead to

An article summarizing the extensive discussions on #digitalhealth tools for #FTD that took place at AFTD’s 2022 Holloway Summit was published in Alzheimer's & Dementia Journals Click here to learn more: bit.ly/3IAubg9

Shana Dodge & Penny Dacks are on the ground at #AAIC2025! Visit Booth 521 to learn how the FTD Disorders Registry supports your research with data, cohort tools & recruitment resources. Let’s move #FTDResearch forward together! #EndFTD #FTD #DementiaResearch

Sam Leverson hosted a special “Dad Rock” themed Father’s Day fundraising spin class to honor his father, Sven, who is living with FTD. “Through the pain, I’ve found strength in sharing our story and turning that heartbreak into action. Riding with my community for a cause that

When Scott Oxarart lost his father Steve to FTD in August 2023, he transformed his grief into a powerful mission to help other families navigate the challenges he faced. Oxarart recently appeared on Washoe Life, a podcast, to speak about the deep fulfillment he finds in

⁦The AFTD⁩

Timely diagnosis is critical in FTD. This free webinar for healthcare professionals will review current diagnostic challenges and clinical strategies to improve detection and referral. Gain tools to better differentiate FTD from other neurodegenerative and psychiatric

The FTD Disorders Registry and The AFTD are back at Booth 521 today at #AAIC2025! Stop by! We look forward to connecting and sharing how we're working together to advance #FTDresearch. #EndFTD #FTD

Now Live: FTD Disorders Registry Researcher Portal Access secure, deidentified data from real-world lived experience of #FTD disorders. Design studies. Estimate recruitment. Accelerate progress. Learn more: ftdregistry.org/for-researcher… #FTDResearch #Neuroscience #EndFTD #AAIC2025

Every AFTD-Team member is driven by love. They join because their loved ones can’t cheer from the sidelines anymore, because future memories are stolen too soon, and because FTD made them change everything. Every step is personal, and every mile carries the weight of love, grief,

Tanisha found a need to bring together young adult children of individuals with FTD through a support group after her mom was diagnosed. ❤️ Give today to support AFTD’s mission and help connect people like Tanisha with others on this journey: bit.ly/45csi1X

It takes an average of 3.6 years to receive an FTD diagnosis. There are still no FDA-approved treatments. That’s why AFTD’s Strategic Plan prioritizes: ✅ Faster diagnosis ✅ Expanded support ✅ Increased awareness and advocacy ✅ Stronger infrastructure and sustainability

Navigating public spaces with FTD can be challenging. AFTD’s Awareness Cards are designed to make it easier. With two versions, one for care partners and one for individuals diagnosed with bvFTD or PPA, these discreet cards help explain the effects of FTD to servers,

In a powerful new Help & Hope guest feature, Jessica Powers shares the deeply personal journey of caring for her mother, Michelle, who is living with FTD. From heartbreak to hope, her words shine with love, strength, and the enduring bond between mother and daughter. 📖 Read

This month’s Message of Hope is a reminder that there’s strength in seeking support. Living with or caring for someone with FTD can feel overwhelming, but you don’t have to navigate it alone. ❤️ 📞 AFTD’s HelpLine is available at [email protected] or 1-866-507-7222.