A little visitor in her 👖 visiting today #TDAF #RareDiseaseDay

The #ACD families from around the world are so grateful to you all! Thank you! #RareDiseaseDay #TDAF

Love you & miss you always my precious boy - 9 years & I ache for you today as much as I did the last time I kissed you goodnight - love from your mummy xxx #ForDavid #raredisease #ACD ACDA

Our small UK #charity TheDavidAshwellFoundation along with ACDA has funded a new research grant through National Organization for Rare Disorders (NORD) into #ACD ACD is a #raredisease affecting #newborns and took our eldest son David aged only 15 days rarediseases.org/nord-awards-el…

Our charity along with ACDA has awarded a #research study into #ACD through National Organization for Rare Disorders (NORD) #ThankYou for all your fundraising contributions 💙#ForDavid rarediseases.org/nord-awards-el…

Little Imogen has the same #raredisease (ACD) as our son David. Imogen is unusual in that she’s a survivor & youngest lung #transplant recipient in UK This week she started school! Incredible ❤️ ⁦TheDavidAshwellFoundation⁩ Rose Lock theargus.co.uk/news/18705898.…

Perfect 🌈 this morning in school run for #BabyLossAwarenessWeek #ForDavid💙 ACDA #acd #RareDisease

Our amazing president Eliza has put this together for this year’s #BabyLossAwarenessWeek #Grief is.... acdassociation.org/2020/10/14/wri… #WaveOfLight #ACDAWaveOfLight

One of our UK families #10forDavid

Ten years today since our eldest baby boy David died aged 15 days Ten years of trying to raise awareness & funds in his memory through this charity & ACDA for #ACD #Research This year, I’ve run every day for the 15days of his turbulent life uk.virginmoneygiving.com/SomeoneSpecial…

Thinking of so many incredible mothers I know who have experienced the loss of a child or children 🦋 #babyloss #ACDC (Image from ACDA)

This group received a grant fundraised by families like us who lost their baby to a deadly #raredisease #ACDMPV Overwhelmed to see the science moving towards a treatment for this fatal disease that affected our son David ACDA

This group received a grant fundraised by families like us around the world who lost their baby to a deadly #raredisease #ACDMPV It’s incredible to see the science progress at this rate

In the UK Prof Amelia A Lake is talking to children today about #RareDiseaseDay & #ACD Amelia runs TheDavidAshwellFoundation in memory of baby David who had ACD Schools are supporting us by wearing 👖 for genes! wonderful.org/fundraisers/384

They’ve got their 👖 on! Raising money & awareness on #RareDiseaseDay for #ACD in memory of their big brother David. #jeansforgenes #ForDavid ACDA (Yes that’s a cricket bat 🏏 😵‍💫)

Why am I wearing “jeans” today? (technically, a Jean dress!). And on a BOE meeting night? Because of my niece Phoebe & nephew Ronan, gone too soon due to the rare disease ACDA TheDavidAshwellFoundation National Organization for Rare Disorders (NORD) Rare Disease Day US #always #jeansforgenes #RareDiseaseDay2022 #miched

Tomorrow morning I will be chatting to Antony on the amazing #localradio BBC Tees 📻 Talking about #rarediseaseday2023 & what our small charity TheDavidAshwellFoundation does to raise funds & awareness for #ACD #research ACDA

I’m wearing my 👖 for #RareDiseaseDay2023 Are you?

#waveoflight2023 remembering David & too many precious babies taken too soon #babylossawareness #raredisease ACDA

It’s rare disease day on Thur 29th Feb Please support our charity & wear jeans (or blue) to school or work raising awareness of rare diseases & heping us fundraise for research into this rare disease that took our newborn baby David. 👖💙 wonderful.org/fundraisers/Nl…