Thanks to Anna Scanlan and the iEd Hub for hosting this podcast. Loved the conversation with Laura Sahm and Sarah Robinson— always so much to learn from their inspiring expertise! #digitalHealthLiteracy #healthLiteracy #DigComp2_2 youtube.com/watch?v=oAVTuv…

Is Telehealth taking over regular face to face consultations? - Free registration webinar on Wednesday 27 November 2024 at 12-00-13:00 CET - 11:00-12:00 UK time. More information on us02web.zoom.us/webinar/regist…

Ready set book! The webinar will be covering the below bitesize hot topics:   •PERT shortage update – Kerry-Lee Watson •Overview of UK CF Trust Standards of Care – Elizabeth Owen •Highlights of North American CF Conference 2024 – David Proud bda.uk.com/events/calenda…

Julie Bellew and the #Telehealth team shared a live demo of how a virtual ward works in the patients own home. #DigitalForCare #Virtualward @Jcwemyss Julie Bellew franthompson

CFI are proud to have been able to support our member Alice Ward & her incredible team, in making 'SALT' - a film exploring the role salt & the ocean have played in Alice's life. 'SALT' premiers tonight at the lonsurffilmfest & we wish Alice and her team the best of luck! 📽️🌊💜

We are running a global survey for #cysticfibrosis units to share their experience of #telehealth. The results will be used to create best practice guidelines for telehealth in #CF care. Open to all CF units, even those not using #telehealth. ucc.qualtrics.com/jfe/form/SV_72…

👀 CFI Signpost❗ Do you want to know more about the Cystic Fibrosis Registry in Ireland Cystic Fibrosis Registry of Ireland? Some of the aims of the CFRI are to: 👉 Provide CF specific info to the public 👉 Use data to help assess and plan health services for pwCF

Such a great initiative! For anyone attending Cork who are registered and have any questions about the registry or would like to know more, please share your questions below:

Delighted to share that our #realworld #ETI study has been accepted to #ERJOpen. This study looks at #ULD #CT, Inflammatory Markers, and #PROMS in 61 #PWCF and is #OpenAccess, check it out here: publications.ersnet.org/content/erjor/… #CysticFibrosis #CF

Le groupe ECFS Telehealth for Cystic Fibrosis organise des réunions d'échange de réflexions et d'expériences concernant la télésanté pour les personnes vivant avec la mucoviscidose. Prochaine réunion le 17/12 à 19h - Pour plus d'informations, consultez ecfs.eu/telehealth/mee…

Snow, ice & flooding: All non-urgent appointments at CUH, Bantry & Mallow Hospitals are canceled Mon, Jan 6. Community & mental health services also deferred. Urgent cases (e.g., dialysis) will be contacted. Avoid travel. Updates to follow.

And that's a wrap! The #INCFC2025 is now closed. Thank you to every speaker, every delegate and the organising committee - Prof Barry Plant, Prof Barry Linnane, Prof Ed McKone, CFRI and CFI for making this an insightful and informative meeting.

Delighted to the have Irish National CF meeting back in Ireland #INCFC2025 with our own Prof Barry Plant opening the meeting #CysticFibrosis #CF

Well done to our consultants Kevin + Hisham, and our Regs Noreen, Mairead and Seamus on their poster presentations last week at the #INCFC2025 👏

Well done to our pharmacist Sarah, physio Fiona, and research fellow Tamara on their poster presentations last week at #INCFC2025 #CF #CysticFibrosis 👏

Wooohooo, congratulations to Mairead O'Donnell for receiving third place at the #INCFC2025 conference last week. Well done Mairead! #research #CF #CysticFibrosis 👏👏🥳🎖️

The THCF have 3 surveys currently out exploring #telehealth within #CysticFibrosis. If you are a member of a #CF Registry, Patient Association, or CF Unit - please consider answering one of our surveys. All opinions and insights welcomed: ecfs.eu/telehealth/res…

We are interested in learning about the experiences of the #Irish #CF #community with using electronic tools to support their care. We are especially interested in what digital skills the Irish #CysticFibrosis community have and may need. ucc.qualtrics.com/jfe/form/SV_9v…

We want to hear from #cysticfibrosis #careteam members with experience using #telehealth on what #digitalCompetency proficiency levels are needed, to use telehealth safely and effectively. To find out more, click here: ucc.qualtrics.com/jfe/form/SV_9y…

📢 Calling all people with CF, and carers & families of pwCF! Can you give 8 to 10 short minutes to anonymously tell Tamara Vagg at 3CF what electronic tools you are using to support CF care, and if there are any skills or training you need to use these tools confidently?