Is your teen or young adult more suited for a paid job, or volunteering at the moment? Check out... understood.org/en/friends-fee…

What do we know about teeth in people with 22q11 deletion syndrome? While I don't have a range of ages of when baby teeth fall out or when adult teeth come in I did rediscover a nice meaty paper about teeth from Dr.... maxappeal.org.uk/knowledge/earl…

Medica... medicalhomeportal.org/living-with-ch…

The Prep program is for pediatric residents and pediatricians preparing for Board exams. Try out the question in my daily email! Prep Question 202 A 1-year-old girl transfers care to your practice after moving... facebook.com/MGH22q11.2Clin…

Depression can occur any time of the year You may have heard of "winter blues," without much motivation to go out, feeling down. Yet we can have the blues at any time. Graduation and important life events can... facebook.com/MGH22q11.2Clin…

NICU, CICU, PICU—many babies with 22q11 conditions get their start in critical care, which is pretty intimidating for parents! Here are some suggestions from The Mighty. themighty.com/2017/09/ways-t…

Has the information you have seen on the Mass General Hospital 22q11.2 Clinic helped you or someone you know? Did you know that this site is providing support to families all over the world? Will you help us continue our... massgeneral.org/children/give/…

Dating is a challenge for all teens. Here is an article from Understood.org about dating for parents of teens with learning disabilities and attention (eg executive function) issues. understood.org/en/friends-fee…

Mental illness. Schizophrenia. Nearly every family we meet knows about the increased risk of schizophrenia in people that have the 22q11 deletion. Every family we know is concerned and wants to know if anything can be done... nami.org/Learn-More/Kno…

Dating is a challenge for all teens. Here is an article from Understood.org about dating for parents of teens with learning disabilities and attention (eg executive function) issues. understood.org/en/friends-fee…

International Consensus 22q11 deletion syndrome (DiGeorge, VCFS) Health Care Guidelines We have parents and patients from all over the world asking for health care advice and health care recommendations. We are happy to report that... ncbi.nlm.nih.gov/pubmed/21570089

Here are the adult health care guidelines recently out in 2015 ncbi.nlm.nih.gov/pmc/articles/P… ncbi.nlm.nih.gov/pmc/articles/P…

After parents and family, the next most powerful adult in a child's life is their teacher. Here are some secrets for how to build a partnering relationship with your child's teacher. understood.org/en/school-lear…

Here is a suggestion about medical care needs for people with 22q11 DUPLICATION syndrome. The CHOP 22q and You Center wrote a paper about an elevated risk of autism spectrum disorder in 37 people with 22q11 DUPLICATION.... ncbi.nlm.nih.gov/pmc/articles/P…

What should I explain to my child’s school about 22q? Children with 22q can have academic strengths in reading, spelling, and memory but some struggle with math, nonverbal understanding, and attention. Ask teachers to... gemssforschools.org/conditions/22q…

Why do fetuses have a PDA? PDA stands for Patent Ductus Arteriosus. PDA (Picture 2) is normal fetal vasculature which normally completely closes shut on its own at 2-3 weeks of life. In a fetus the right side... facebook.com/MGH22q11.2Clin…

Many children and teens with chromosome 22 conditions experience bullying. Learn more from Dr. Alice Newton at MGH giving.massgeneral.org/bullying-preve…

Special thank you to my 3 new followers from USA, and more last week. tweepsmap.com/!22q11Clinic

Man Raising Awareness For 22Q Syndrome Receives Messages From Around The World #MerryChristmasJustin boston.cbslocal.com/2019/11/26/mer…

Congrats Justin for your amazing awareness campaign!! Great work, keep it going! #MerryChristmasJustin #22q11clinic #MGH22q11