Take note #VoterSeekers

Love this.... #ResearchIsCare #CareIsResearch
Health Research Charities Ireland - HRCI HSE QPS HSE Research & Development Dr Colm Henry, CCO HSE Ireland Bernard Gloster HSE Ireland

“Fear is a reaction. Courage is a decision.” ~ Winston S. Churchill

Individually rare collectively common #RareDiseases #7RedFlags
'A quantitative and qualitative analysis of patient group narratives suggests common biopsychosocial red flags of undiagnosed rare disease'
ow.ly/OLkH50RQXox

I have 10 new followers from Ireland, and more last week. See fedica.com/!22Q11_Ireland

If you want an overall understanding of Children’s Disability Network Teams & Progressing Disability Services (PDS) - important watch.

Need for evidence based practice is crucial, what has worked well & building from that.

Research is evidence, evidence is powerful.

'The challenge in Ireland is – and this isn’t just Ireland – we have policies that never get translated into implementation. And often there are loads of reasons for that, but one of them is funding.'
#ImplementationSyndrome

'The practice of giving asylum, helping people seeking refuge and protecting them from danger, has a long history. It was originally a religious obligation, common to many religions, to help strangers in need.'
asyluminsight.com/history-of-asy…

Tune in to Today FM 💛's Matt Cooper show at 545PM this evening to hear more about IPPOSI's citizens' jury on Artificial Intelligence in Healthcare. You can apply to be a juror before June 21st here bit.ly/juryform1. For more details: bit.ly/aijury #citizensjuryAI

#NursesRock

Care -Coordination, what is it? Wesley Mulcahy Children's Health Ireland is explaining the concept in detail 22Q11 Ireland Rare Diseases Ireland RARE Ireland EURORDIS-Rare Diseases Europe University College Dublin QUB Public Health

I just co-chaired the RAiN webinar with Melissa Kinch, an enlightening webinar on care coordination across #Europe , #Ireland , and #UK ! Rare diseases' multisystemic nature adds complexity, but we can navigate and improve care coordination with better strategies.

Always in awe of what we have achieved together with Wesley Mulcahy & suzanne kelleher
for #22q families in Ireland.
A transferable model of care #RareDiseases
#BetterTogether
Children's Health Ireland HSE QPS QPS TalkTime
EURORDIS-Rare Diseases Europe

Photovoice
Beyond Public and Patient Involvement, Participatory Action, and Co-Production in Research
journals.lww.com/wpsy/fulltext/…

👇This is what we want for our children in schools all over Ireland. Tell us, and Government how you think we should invest in inclusion here - surveymonkey.com/r/Budget25. Thanks for the inspirational words Julie Holmes during our webinar on Friday with AsIAm!

'....allows the child to see its classmates without itself being seen. The class is transmitted to the ill child in the form of sound and images and the child can be heard but not seen'
Children's Health Ireland Children in Hospital Ombudsman for Children
meduniwien.ac.at/web/en/about-u…

'public research is a political choice and as such it is affected by the political institutional environment in which it takes place'
#FoodForThought 🤔
sciencedirect.com/science/articl…

Mostly not factored in for patients either.
e.g. children are not treated holistically in the context of their families(all parent carers know this as fact)
*cost* seen in purely financial terms. Cost to both HSCP's & public's mental&physical health is enormous.

'Your children are not your children.
They are the sons and daughters of Life’s longing for itself.
     They come through you but not from you,
     And though they are with you yet they belong not to you'
poets.org/poem/children-1
Jacob Vorstman 🇺🇦