I have 13 new followers from India, and more last week. See fedica.com/!22Q11_Ireland

Newborn screening saves lives! Expanding the heel prick test panel will save & improve the lives of many more babies born in Ireland each year.
Support our 2024 Get Rare Aware campaign and TAKE ACTION NOW. VISIT getrareaware.ie
#GetRareAware #NBS

Simon Harris TD Stephen Donnelly Bernard Gloster must step in to ensure safe care for Liam.

Direct Children's Health Ireland to intervene & ensure a clinical review of Liam is completed with a plan of care put in place.

Offering a date for surgery before clinical review is complete bull$h!t

#AgeInAction 🤗
Sage Health & Nursing Age Action

Shucks, in Univ Hosp Waterford this morning for launch of the National Inpatient Experience Survey but missed this bit! Did get to hear however about some of the fab work (like the patient info booklet) going on inside the hospital. Kudos to management & #QPS team, good to meet you!

If you missed this public lecture with TRiCC Director Professor Imelda coyne on promoting a child-centred care approach in healthcare, you can watch it back here
youtu.be/KmigduIqQaw

Does not bode well for building trust in our health system, both internally & externally 😓
Stephen Donnelly Simon Harris TD

'The Translational Genetics Research Collaborative is interested in doing research that applies a justice-oriented approach to advancing personalized medicine'
bcchr.ca/TGRC

This week in Nature: Exercise effects - Mapping the molecular changes induced by endurance

Browse the full issue: nature.com/nature/volumes…

Now available online: the full Genetics in Medicine May 2024 issue! Explore here: bit.ly/3NgKw98 #GIM #genetics #genomics

An unusual school celebrates its first century stanmed.stanford.edu/hospital-schoo… via @stanmedmag

Stanford Medicine magazine’s new issue explores the nation’s mental health crisis. Learn about advances in psychiatric research and the patient care offering hope for relief. stan.md/49YB0Ak

#MentalHealthResearch #MentalHealthAwarenessMonth

Mothering Special Needs.
'I sometimes see myself as an arrow or a thorn. You don't start that way. I just wanted to be a mother. I wasn't aiming at anything' - Kathy Sinnott
books.google.ie/books?id=0P4PB…

Try twice as isolating.
'My defence however was not only against allegations of child abuse. It was also against the social construct of motherhood'
books.google.ie/books?id=0P4PB…

#NursesRock

We welcome this news from DAERA and Minister Andrew Muir MLA. Single-use vapes are bad for the environment and bad for addicting non-smokers to nicotine.

There are many options for smokers looking to quit, beyond single-use vapes. Get help quitting at cancerfocusni.org/cancer-prevent….

The unacceptable continues to be accepted.
#ScoliosisScandal

The truth is that those who are needed need the needy more than the needy need the needed. Society, however, perpetuates the opposite story because there is an entire segment of the economy that commodifies human needs. This is a form of colonization, albeit a subtle one. In my…

Barnardos is hosting a free public parent webinars to assist parents to create an open dialogue with their children about online safety including sexting, grooming, gaming and how to encourage digital wellbeing.

When: Tuesday 7th May, 11am-12pm
Where: bit.ly/3UDvM8x

Sheenagh 🇮🇪 💙 Hildegarde Naughton Department of Education Anne Rabbitte TD Stephen Donnelly Simon Harris TD Réada Cronin TD Catherine Murphy James Lawless Bernard Durkan TD Lourdes SpecialSchools&ClassesIrl Down Syndrome IRL AsIAm Gareth Noble No. Unless I decided to try and find a teacher to do home provision but because he needs nursing care I would have to be there too, so not much point. The whole point for him and me is that he goes into school with his peers and has FUN. 😞
I just now tweeted explaining why. 🙏