As we enjoy the fireworks, gatherings, and festivities, let us remember the strength and resilience that unites us as a community. May this Independence Day be a symbol of unity, compassion, and support for one another. Wishing you a safe, joyful, and memorable 4th of July! #PKD

“Over the course of the years, we've been having ups and downs.” During childhood, Jonathan endured periods of increased #PKdeficiency symptoms and medical issues. After many tests and much uncertainty, his parents found a doctor who had experience with the #raredisease.

Achieving health equity is a multifaceted challenge because it intersects with race, socioeconomic status, class, and historical contexts. The causes of health inequity are deeply rooted in our society. Join our team in the pursuit of solutions. [email protected] #VolunteersNeeded

As the theme of World Mental Health Day highlights, ‘mental health is a universal human right.’ Let's talk about mental health and show everyone that mental health matters. #MentalHealthDay2023 #PKDeficiency #MentalHealthMatters

Clinical data strongly suggest that RP-L301 holds significant promise as a treatment option for individuals afflicted with severe Pyruvate Kinase Deficiency (PKD), including those who have previously found little benefit from existing therapies such as mitapivat. #PKDeficiency

The pediatric cohort's progress is particularly encouraging, showing enhanced hemoglobin levels relative to their pre-treatment baseline, although the follow-up period was relatively shorter at six months. #PKDeficiency

Among the noteworthy benefits observed in the Gene Therapy are hemoglobin normalization, a significant reduction in the need for blood transfusions, decreased hemolysis, and an improvement in the overall quality of life. #PKDeficiency

Notably, throughout this clinical evaluation, the safety profile of RP-L301 has remained favorable, further reinforcing its potential as a groundbreaking treatment for PKD patients. #PKDeficiency

As we gather with family and friends to give thanks during this special season, the PKD Foundation extends its deepest gratitude to you. #PKDeficiencycommunity #PKDF #PyruvateKinaseDeficiency #pkdeficiencyawareness #peoplewithpyruvatekinasedeficiency #thanksgiving2023

This Giving Tuesday, With our upcoming PKD conference in summer 2024 themed "Bridging Lives with PKD: Connecting, Sharing, and Learning," your support can make a difference. #BridgingLiveswithPKD #ConnectPKD #SharePKD #LearningPKD #PKDF Donate here 👇👇👇 donorbox.org/giving-tuesday…

Your financial support will allow you to become a vital part of a movement that connects, supports, and educates, creating a lasting impact on the PKD community. Donate here 👇👇👇donorbox.org/giving-tuesday… #BridgingLiveswithPKD #ConnectPKD #SharePKDeficiency #LearningPKDeficiency

As the festive season unfolds, the Pyruvate Kinase Deficiency Foundation (PKDF) extends you and your loved ones' warm wishes of joy, peace, and good health. #BridgingLiveswithPKD #ConnectlearnPKDeficiency #peoplewithpyruvatekinasedeficiency #PKDF #PyruvateKinaseDeficiency

Chances are high that you know someone affected by #raredisease! # PK deficiency affects people of all backgrounds and is thought to have affected people of all backgrounds#pyruvatekinasedeficiency developed as protection against malaria #rareanemias #pkdeficiency #RareDiseaseDay

The zebra is the mascot for rare disease patients because, in medicine, zebras represent uncommon answers. On February 29, #RareDiseaseDay, post a selfie with the hashtag #ShowYourStripes to share your rare story with others! #PKdeficiency #rareanemia #pyruvatekinasedeficiency

We need your help finding sponsors for our Second International PKD Conference! If you know of any potential sponsors or are willing to assist in reaching out to businesses and organizations, please let us know. Donate through this link: lnkd.in/gCnsJZAB #PKDConference

Registration is open for the 2nd International PK Deficiency Conference, "Bridging Lives with PKD!" Register here:  cvent.me/k03xGQ Travel assistance:  docs.google.com/forms/d/e/1FAI… #pyruvatekinasedeficiency #pkdeficiency #pkdconference #rareanemia #registernow #rarebutnotalone