Twitter Beğeni Hilesi

Our hearts go out to #RobBurrows family and his amazing friend #KevinSinfield. Rob has lost his battle against #MND #ALS but the fight goes on thanks to the $20 million they fundraised together! Amazing collection of photos and videos with The Prince and Princess of Wales courtesy of

As preparations for Prilenia's planned #European MAA submission for #pridopidine reach fever pitch, the hard work, dedication and resilience of the team in Israel was recognized by CEO, Michael Hayden, during his trip to Israel this week - keep watching this space for updates

Inspiring and motivating to see the rare disease advocacy community using their collective voice to advocate for meaningful change. Together we are strong. EveryLife Foundation everylifefoundation.org/center-of-exce…

Health isn’t just about the things you can see. During June’s #MensHealthMonth we want to recognize all the men whose mental health may be equally impacted dealing with #HD, #ALS, or other rare neurodegenerative diseases.  #HuntingtonsDisease

This Father's Day we send our love to all the dads, both past and present, who have or are dealing with #HD or #ALS for themselves or a loved one. Learn more: hdyo.org/a/62-living-in…

Excited to be at #ENCALS 2024 in Stockholm, Sweden, June 17-20. Our CMO, Dr. Jina Swartz, and Medical Director of Clinical Development, Andrés Cruz-Herranz will both be attending, come say hi if you spot them. #ALS #ALSAwareness

Global ALS Awareness Day is a day where we recognize everyone impacted by ALS/MND. Thank you to those in the ALS community who continue to drive research and awareness for this rare disease. #ALSMNDWithoutBorders #ALS

‘Alone we are rare, together we are strong.’ Getting together for a great cause like the HDSA Boston Team Hope Walk helps make us stronger! #HuntingtonsDisease

With an upcoming planned #EU #MAA in #HD and a Phase 3 study in #ALS (#MND) in preparation, Prilenia is proud to be presenting its latest data European Academy of Neurology #EAN2024 in Helsinki!

The NINDS sponsored ACT for ALS Expanded Access to Pridopidine Protocol (#EAP), led by the @MassGenNews Sean M. Healey & AMG Center for ALS, is available at treating sites across the U.S. for up to 200 #ALS individuals who are not eligible for other clinical trials. Those

In honor of families and caregivers of those living with #Huntingtondisease, throughout July we will be sharing insights from caregiver Sarina.  You can read her #LifeWithHD story here: prilenia.com/patient-storie… #HD

A first for the region! Honored to be part of this initiative to raise awareness and bring innovative new treatments to people with #Huntingtondisease in the #UAE and #MENA region. Thank you to دائرة الصحة - أبوظبي Chairman, His Excellency Mansoor Ibrahim Al Mansouri, Dr. Asma Ibrahim Al

The The ALS Association #ALS NEXUS 2024 Conference starts on the 14th July! Proud to be there. als.org/als-nexus

LIFE WITH #HD: Sarina is using her voice to raise awareness of the family impact of #Huntingtondisease. Read her story here: prilenia.com/patient-storie…

Sarina wants those in the #HuntingtonDisease community to know they are not alone. Read her story here: prilenia.com/patient-storie… #HD

Sarina’s family journey with #Huntingtondisease inspired her to pursue a career in #science. Read her story here. prilenia.com/patient-storie…  #HD

Delighted to be supporting HDF efforts in transformative research in #Huntingtonsdisease

Community and Connections can make all the difference. We are proud to support  HDYO North American HD Young Person Camp that starts today hdyo.org/a/771-2024-nor…

Looking forward to our Q&A discussion with Help4HD’s CEO, Katie Jackson, at the Chicago HIPE event on August 24th!

Prilenia is delighted to announce the acceptance for review of its #European Marketing Authorisation Application (MAA) for #pridopidine for the treatment of adults with #Huntingtondisease (#HD) by EU Medicines Agency. Read the Prilenia PR: tinyurl.com/3xhr99y3