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Thank you, axeALSFoundation, for speaking out today regarding Eric's experience with #NurOwn stating that "Without NurOwn, he has declined" and "NurOwn enhances his quality of life."

Thank you for sharing Kade's response to what he felt while receiving the therapy in the #NurOwn ad comm. You stated,"He felt good but needed to adjust to his new-found strength on his left side."That is a good problem to have & not one a "typical" ALS patient has. #NurOwnWorks

I 100% stand with this statement! The PIs who have first-hand experience with patients receiving the treatment should carry more weight than the “experts” looking at numbers on a computer.

Sandra, I 100% agree with you! Mike died waiting. Mike’s Mayo neurologist spoke at the ad com discussing its unprecedented benefits and yet it was voted down. ALS Advocacy please stop hurting the communities chances for #NurOwn.

Cost recovery doesn't work for cell therapy, where you must scale up. If BrainStorm’s #NurOwn is not approved & if the $ is found to do another trial w/out approval by the time that trial is complete, everyone living today & the next 2 generations will be DEAD!

I am with you, Sandra, Brian & the rest of the community who would like to have the opportunity to try @BrainStorm’s #NurOwn.We need approval for a phase 4 trial.

Cathy why don't you lean in and help BrainStorm figure out this path if you think it would work?Remember they are a small bio-pharma country from Israel who I'm sure would appreciate assistance.I’ve worked on RTT & EAP & the FDA never mentioned this.Who has succeeded w/ it?

#Act4ALS is having a real impact on the ALS community getting drugs into bodies for those PLWALS who don't qualify for a trial. Here is 1/3 trials funded by the law that was announced at the NEALS conference today. Take a look! reporter.nih.gov/project-detail…

Here is another EAP brought to you by #Act4ALS. Thank you to the many ALS community members who fought diligently to pass this in Congress in 2021. If you don't qualify for an ALS trial you might be fortunate enough to get into this EAP. Learn more here. #EveryPointMatters

Would you like to participate in an ALS clinical trial & have been turned away? Are you interested in changing the trajectory of ALS? If so you may qualify for Prilenia Pridopidine expanded access program brought to you by #Act4ALS. Check this out 👇! Glen Rouse Garrett May

#DiabetesAwarenessMonth life as a Type 1 diabetic is hard, trying to keep that A1C in a “normal” range. It’s like managing a 2nd job. This awesome kid of mine has been managing this since she was 8. Learn more 👇 instagram.com/reel/CzI5pX2IZ…

It has been a whirlwind of a month. There have been a couple of amazing ALS events in the past 2 weeks, like the GrooveSubaru Share the Love event & the Denver premier of #LoveandLifeNoOrdinaryCampaign, along with a little speech prep for the upcoming @IAMALS inaugural summit.

I so appreciate #LouGehrigDay and a handful of people like Phil Green who brought it to fruition! In this pic, those peeps, Phil, Jennifer & Kylan Morris, have been a force in bringing about #ALSAwareness. Thank you so much for all that you do & sacrifices made for this work.

Thank you BrainStorm, for rooting for #LouGehrigDay! We must come together & everyone in this ALS disease space join in on this valuable day! Thank you for all the hard work put in by Bryan Wayne Phil Green Steve Haberstroh & Adam Wilson the OGs.