juan
@juan23188549
Hard working, helpful, honest,
ID: 1390281690707267586
06-05-2021 12:26:46
11,11K Tweet
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ACT-UP AIDS movement founder Larry Kramer: "How long does it take before you get angry and fight back?" HOW MANY MORE HAVE TO DIE before the FDA Biologics & Dr. Robert M. Califf treat 100% FATAL #ALS with the same urgency/flexibility as cancer treatments? #FDAfailedALS #NurownWorks
what a pile of crap: we have people dying terrible #ALS deaths today, just like 10 years ago with NO HOPE IN SIGHT. The ALS Association, you should be disbanded! Dunked by your own crap and disbanded.
C Lebovits Everybody needs to know a more exact plan on how you are planning to pay for this trial.
Hey U.S. FDA & Dr. Robert M. Califf These results are mind-blowing for people with #Parkinsons. People with terminal diseases know when a drug or device IMPROVES how they live. #BelieveThem Members of Energy & Commerce Democrats Energy and Commerce Committee Senate HELP Committee GOP HELP Committee Dems Rep. Diana DeGette Rep. Doris Matsui
We can’t do it alone, so may we all come together in our hope for peace from neurodegenerative disease. #EndALS #ParkinsonsAwareness #MS #EndALZ #LetsTalkAboutHD #MND Synapticure michaeljfox.org ✌️
It does feel like a war against, where the FDA Biologics U.S. FDA keeps benefiting only big pharmaceutical co. There FDA Biologics can find analogies or even lower their standards. So sad the community has to straggle against its own regulatory system. #NurOwn
Matt Bellina was able to stand after second dose of Nurown, for ALS. Yet not one charity is publicly supporting, or offering grants to get this drug to New trial. A both sad and tragic loss. I AM ALS axeALSFoundation Hope4Cure Racing for ALS
ALS ACCESS I AM ALS axeALSFoundation Hope4Cure Racing for ALS I find it to be extraordinarily unexplainable that the Dr. Robert M. Califf will not approve#NurOwn based on data AND pALS REAL WORLD EVIDENCE of positive results, but WILL RECALL drugs based on patients REAL WORLD EVIDENCE of Negative results. BELIEVE THEM!!! #NurOwnNow
Dr. Robert M. Califf How about another top priority - approval of Nurown for thousands of ALS patients who want to live not less than you do?
Definitely important What happened to the EXTREMELY critical #PromisingPathwayAct from Senator Mike Braun & the #BENEFITact from Senator Roger Wicker Have we not learned from our failures? Can't I AM ALS Andrea Goodman work to prevent the next few #ALS generations from experiencing