juan (@juan23188549) 's Twitter Profile
juan

@juan23188549

Hard working, helpful, honest,

ID: 1390281690707267586

calendar_today06-05-2021 12:26:46

11,11K Tweet

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juan (@juan23188549) 's Twitter Profile Photo

alsHATER Agree 100%. I firmly believe NurOwn works specially on recent diagnosed patients, but C Lebovits is not the right CEO to bring NurOwn approved. A smart move would be to resign as CEO.

Shah Minokadeh, M.D. (@minoshah) 's Twitter Profile Photo

ACT-UP AIDS movement founder Larry Kramer: "How long does it take before you get angry and fight back?" HOW MANY MORE HAVE TO DIE before the FDA Biologics & Dr. Robert M. Califf treat 100% FATAL #ALS with the same urgency/flexibility as cancer treatments? #FDAfailedALS #NurownWorks

ACT-UP AIDS movement founder Larry Kramer: "How long does it take before you get angry and fight back?"

HOW MANY MORE HAVE TO DIE before the <a href="/FDACBER/">FDA Biologics</a> &amp; <a href="/DrCaliff_FDA/">Dr. Robert M. Califf</a> treat 100% FATAL #ALS with the same urgency/flexibility as cancer treatments?
#FDAfailedALS #NurownWorks
alsHATER (@haterals) 's Twitter Profile Photo

what a pile of crap: we have people dying terrible #ALS deaths today, just like 10 years ago with NO HOPE IN SIGHT. The ALS Association, you should be disbanded! Dunked by your own crap and disbanded.

AZ Latina ☮️🌊🟦 (@avoice4als) 's Twitter Profile Photo

Acyn If we believe in #MyBodyMyChoice for women, surely we must also believe in humanity for terminally ill patients. We don't need the FDA telling people with 100% terminal diseases like #ALS that it won't approve a #stemcell treatment when they & their world class neurologists

<a href="/Acyn/">Acyn</a> If we believe in #MyBodyMyChoice for women, surely we must also believe in humanity for terminally ill patients. 

We don't need the FDA telling people with 100% terminal diseases like #ALS that it won't approve a #stemcell treatment when they &amp; their world class neurologists
Girl Travelin Alone (@cathystandish) 's Twitter Profile Photo

We can’t do it alone, so may we all come together in our hope for peace from neurodegenerative disease. #EndALS #ParkinsonsAwareness #MS #EndALZ #LetsTalkAboutHD #MND Synapticure michaeljfox.org ✌️

We can’t do it alone, so may we all come together in our hope for peace from neurodegenerative disease.  

#EndALS #ParkinsonsAwareness #MS #EndALZ #LetsTalkAboutHD #MND <a href="/synapticure/">Synapticure</a> <a href="/MichaelJFoxOrg/">michaeljfox.org</a> ✌️
juan (@juan23188549) 's Twitter Profile Photo

It does feel like a war against, where the FDA Biologics U.S. FDA keeps benefiting only big pharmaceutical co. There FDA Biologics can find analogies or even lower their standards. So sad the community has to straggle against its own regulatory system. #NurOwn

ALS ACCESS (@brainmatters10) 's Twitter Profile Photo

So many asked/wanted more data, and a new trial for Nurown. Heartbreaking, that we are not seeing, grants or even support from Charities. The fact that they are ready to go to trial, but do not have funding, is tragic, so many had great results from this drug. What a horrible

ALS ACCESS (@brainmatters10) 's Twitter Profile Photo

Matt Bellina was able to stand after second dose of Nurown, for ALS. Yet not one charity is publicly supporting, or offering grants to get this drug to New trial. A both sad and tragic loss. I AM ALS axeALSFoundation Hope4Cure Racing for ALS

Matt Bellina was able to stand after second dose of Nurown, for ALS. Yet not one charity is publicly supporting, or offering grants to get this drug to New trial. A both sad and tragic loss. <a href="/iamalsorg/">I AM ALS</a> <a href="/stevens_nation/">axeALSFoundation</a> <a href="/Hope4Curenow/">Hope4Cure</a> <a href="/racing_als/">Racing for ALS</a>
gina Gibson (@ginagib68993499) 's Twitter Profile Photo

ALS ACCESS I AM ALS axeALSFoundation Hope4Cure Racing for ALS I find it to be extraordinarily unexplainable that the Dr. Robert M. Califf will not approve#NurOwn based on data AND pALS REAL WORLD EVIDENCE of positive results, but WILL RECALL drugs based on patients REAL WORLD EVIDENCE of Negative results. BELIEVE THEM!!! #NurOwnNow

AZ Latina ☮️🌊🟦 (@avoice4als) 's Twitter Profile Photo

Listen to this moving recording of #Broadway for ALS - by Aaron Lazar: The Impossible Dream youtu.be/-c0_XeFW52M?si… via YouTube "To bear the unbearable sorrow..." This is ALS but it doesn't have to be. In the #NurOwn stem cell trials, people with #ALS halted their

Shah Minokadeh, M.D. (@minoshah) 's Twitter Profile Photo

#ALS advocacy is nonexistent We're failing future generations of #ALS patients & their families. MANY more are being given this DEATH SENTENCE EVERY DAY 1st documented case of HIV 1959- treatable 1st documented case of ALS 1869-100% FATAL in 2024 HIV movement founder Larry

AZ Latina ☮️🌊🟦 (@avoice4als) 's Twitter Profile Photo

Agree. The other thing that is unfair is the FDA failed to approve a #stemcell treatment for people with #ALS -- despite having evidence that it slowed progression, improved function & survival for the 1st time in the 160+ yr history of this 100% terminal disease. Imagine a

Agree.  The other thing that is unfair is the FDA failed to approve a #stemcell treatment for people with #ALS -- despite having evidence that it slowed progression, improved function &amp; survival for the 1st time in the 160+ yr history of this 100% terminal disease.  Imagine a
Shah Minokadeh, M.D. (@minoshah) 's Twitter Profile Photo

Definitely important What happened to the EXTREMELY critical #PromisingPathwayAct from Senator Mike Braun & the #BENEFITact from Senator Roger Wicker Have we not learned from our failures? Can't I AM ALS Andrea Goodman work to prevent the next few #ALS generations from experiencing