🌟 THANK YOU! 🌟

As #WorldPIWeek comes to a close, we want to extend our heartfelt gratitude to everyone who participated, supported, and raised awareness for primary immunodeficiency disorders.

🙏 Martine Pergent, President of #IPOPI , shares her closing thoughts in this…

The IPOPI Board Members couldn't be left out of the #WorldPIWeek !

They got together to strike the Y pose to raise awareness for #primaryimmunodeficiency .

Join them in spreading #PICtureAwareness !💙

#IPOPI

#NeonatalScreeningMatters as it can mitigate the health, psychological and socioeconomic burden of rare diseases across the world

Focus should be on treatable conditions where it is clear that early detection results in significantly improved outcomes

👉bit.ly/3je9JW6

The IPOPI staff couldn't be left out of the #WorldPIWeek !

We all got 'together' to strike the Y pose to raise awareness for #primaryimmunodeficiency .

Join us in spreading #PICtureAwareness !💙

#IPOPI

🗺 #WorldPIWeek Map of Advancements:

🇲🇩PIDETECT program aims to address the underdiagnoses of #PID through intensive trainings in low- & middle-income countries, empowering doctors to recognize and diagnose PIDs effectively.

More examples here: bit.ly/49O97KX

🌍 #WorldPIWeek 's Global Policy Calls:

Let's craft policies & allocate resources to boost specialist professionals' skills and continuous medical education in PID recognition, diagnosis, and management.

Access to care for all PID patients, everywhere.

🌍 #WorldPIWeek 's Global Policy Calls:

Let's back national & international initiatives, including robust training programs, to enhance healthcare providers' expertise of PIDs and to improve early detection & quality of care.

Access to care for all PID patients, everywhere.

🌟Join IPOPI for the third video of our celebration of the World PI Week 2024! 🌎

In this video, we'll hear from Maria Charalambous, a representative from our patient organisation: Cyprus Primary Association and Friends.

The challenges and developments in accessing specialised…

🗺️ #WorldPIWeek Map of Advancements:

Delve into the UNITAR & IPOPI partnership spanning 🇦🇷Argentina and 🇲🇾Malaysia dedicated to enhancing global access to plasma-derived therapies.

👉 More examples here: bit.ly/49O97KX

🌟IPOPI's second video of our celebration of the World PI Week 2024! 🎥🌎

In this second video, we'll hear from Giang Houng, a representative from our patient organisation in Vietnam ( #VietPIPS ), sharing their journey on the challenges and developments in accessing early…

🌍 #WorldPIWeek 's Global Policy Calls:

Innovation thrives on collaboration. Let's spearhead initiatives fostering research, global partnerships, and the open sharing of findings in the realm of PIDs.

Access to care for all PID patients, everywhere.

🌟 Join IPOPI for the first video of our celebration of the World PI Week 2024! 🎥🌍

In this first video, we'll hear from Islam Mansouri, a representative from our patient organisation in #Morocco (Hajar Association), sharing their journey on the challenges and developments in…

🌍 #WorldPIWeek 's Global Policy Calls:

Collaboration drives progress in #PrimaryImmunodeficiency diagnosis, treatment & care. Let's advocate for the establishment & upkeep of global databases and registries.

Access to care for all PID patients, everywhere.

🌍 #WorldPIWeek 's Global Policy Calls:

Governments play a pivotal role in advancing #PID care. Let's encourage them to establish & fund specialized Centers of Expertise for diagnosing and managing #PrimaryImmunodeficiency .

Access to care for all PID patients, everywhere.

🌍 #WorldPIWeek 's Global Policy Calls:

Let's champion policies to guarantee everyone has access to vital diagnostic tools, essential medications, and therapies for #PrimaryImmunodeficiency .

Access to care for all PID patients, everywhere

We look forward to the evaluation report on #SCID and call for a swift and effective implementation at national level.

Babies born with SCID can have their lives significantly changed with #NBS

🤝IPOPI Board Meeting took place in Athens today!

It was a fantastic opportunity for our board members to come together, discuss key initiatives, and strategize for the future of our organization.

The vibrant atmosphere of Athens provided the perfect backdrop for productive…

With just 4️⃣ days left until World PI Week, it's time to amplify our message!

🌏 Let's unite as a community to share and spread the importance of #primaryimmunodeficiency awareness.

Campaign materials: bit.ly/3Uiq37X

Comic book: bit.ly/3Uiq4Zz

It is great to see Belgium supporting the creation of a European action plan for rare diseases 🇧🇪

We urge EU policymakers to make #neonatalscreening a central part of any #raredisease initiative.

Alexander De Croo 🇧🇪🇪🇺
Belgian Presidency of the Council of the EU 2024

euractiv.com/section/health…

🌍 IPOPI at #IPPC2024 in Athens!

Johan Prevot, IPOPI's Executive Director, participated in a crucial panel discussion on the need for a more consistent approach to IgG use in Europe.

'The world and patients will benefit from more regionally balanced plasma collection,'…