Lynch Syndrome UK
@lynchsyndromeuk
Providing information and support for people with Lynch Syndrome. Raising public awareness of this genetic condition.
ID: 2709170899
http://www.lynch-syndrome-uk.org 05-08-2014 12:03:42
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#Lynchsyndrome survey for #Uk and Ireland LS carriers. Still looking for people to participate! I have 105 now (132 total but the ones not in Uk/Ireland I can’t use their responses).There’s an open text box at the end, I really value the commentary shared. qualtricsxm2t8gtw5xb.qualtrics.com/jfe/form/SV_7Q…
Lynch Syndrome UK lynch syndrome irl Bowel Cancer UK BowelCancerIrl will you please repost this link?
A topic close to my heart. Molecular classification in endometrial cancer. So good to see this brought to a wide audience of gynae cancer clinicians. No more type 1/2. Thank you Dr Cross Liverpool Women's BGCSConference
Delighted to be at #BGCS2024 representing Peaches Womb Cancer Trust 🧡
It is so good to see Vanitha Sivalingam ensuring #vulvalcancer is getting the attention it needs BGCSConference. A lot of learning including the benefit of VAC and impact of the groins study. Liverpool Women's
Fantastic talks on the ovarian cancer session Katie Baxter, Christophe Pomel, Sudha Sundar Claire Thompson #BGCS2024!! Can’t wait for tomorrow!!
You do not want to miss BJ, MScN BScN RN presentation at #EHTG2024! 🤩 Do #LynchSyndrome carriers feel they receive adaquate support when interacting with/accessing healthcare? 🤔 BJ did a fantastic job engaging the patient community to find out. 👀 #HereditaryCancer #PPI
🚀Excited to start work on the Endometrial Cancer Audit Pilot in collaboration with The Eve Appeal, Peaches Womb Cancer Trust, BGCS, and The BAGP! Focusing on raising awareness & assessing variation in the management & outcomes of endometrial cancer in England👉tinyurl.com/7axntdzw
Just seen another patient who (with their permission to discuss) has had a complete clinical response to immunotherapy we managed to get on compassionate use with their recurrent colorectal cancer in Lynch Syndrome. Lynch Syndrome UK lynch syndrome irl This treatment works! But
Great to see this NIHR alert increasing awareness on ovarian cancer symptoms following r paper from UKCTOCS Professor Usha Menon NIHR Evidence MRC Clinical Trials Unit at UCL Wolfson Institute of Population Health Cancer Screening, Prevention and Early Diagnosis Cancer Screening, Prevention & Early Diagnosis Women's Precision Prevention Ovacome - the ovarian cancer support charity Ovarian Cancer Action The Eve Appeal Target Ovarian Cancer Ovarcome BGCS ESGO
‼️🚨I am running a study looking at a urine based test for womb cancer to be used for gynaecological surveillance in #lynchsyndrome. If you have a womb & Lynch syndrome please email [email protected] to participate. We just need a couple of urine samples🚨‼️Lynch Syndrome UK
A remarkable team effort - led by Dr Esther Moss and DrJoMorrison on behalf of the BGCS. Guidance that is evidence based, accessible and implementable. Informs and empowers patients. Drives better practice from clinicians and health care mangers. Excellent
🎉Well done to Prof Emma Crosbie Emma Crosbie on winning ‘PhD Supervisor of the Year’ at the 2024 Postgrad Awards for exceptional enthusiasm, support & dedication to helping her students succeed while advocating for women’s health through innovative NHS screening campaigns🌟