Ataxia and Me CIO 1184030
@Ataxia_and_Me
#Ataxia is a #raredisease
affecting #Balance #Speech and #Coordination
#Patients Helping Patients
#MovementDisorder
#Health #Medical #pharma
ID:768749061759438848
https://www.ataxia-and-me.org 25-08-2016 09:57:14
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Get paid for your opinion via
Rare Patient Voice
#Patients and Caregiversof any #Disability#disease, or
#condition via surveys and interviews to improve #Medical products and
services.
#RareDisease #Ataxia -- #Zebra
Sign Up Today!
rarepatientvoice.com/ataxiaandme/
We’re excited to showcase Prime’s posters at the 20th Annual Meeting of ISMPP! Check out our posters in the poster hall. Want to learn more? View these posters in detail here – reach.primeglobalpeople.com/ismppus2024 #ISMPPAnnual2024 #PrimeAtISMPP #MedicalPublications #Posters
A quantitative and qualitative analysis of patient group narratives suggests common biopsychosocial red flags of #undiagnosed #RareDisease
link.springer.com/article/10.118…
via Medics4RareDiseases Dr Sondra Butterworth. Community Psychologist University of Salford
People living with #RareDisease must often manage their own care. The burden of care coordination can create pressures across the lives of patients, their families and carers.
Help us #ElevateCareForRare #IAmNumber17
Check out
iamnumber17.org.uk
cc
Wales Gene Park
You can’t collect meaningful patient experience data without patient engagement #ISMPPAnnual2024 Made WITH Patients Envision the Patient
The power of language… as medical communication professionals, we need to ensure we use language that promotes dignity, mutual respect, and humanity. #ISMPPAnnual2024
KAPOW!! Superhero Tri is approaching fast. does your charity have your community of Superheroes at the ready? Join our ever-growing Charity Friends to display what’s possible given the right opportunity! #CharityTuesday [email protected]