#PBC news #Diagnostic
#RareLiverDisease International #PBC Day #PBC AwarenessMonth EASLnews EU Health - #HealthUnion EPHA Aleksander Krag Marko WHO/Europe PBCers Organization @AutoImmuneLiver EURORDIS-Rare Diseases Europe Rare Diseases Day EUPATI

I'm attending #PEOF 2023 going #virtual on April 25 & 27 🗓️ Let's bring our energy into focus with key topics discussing #patientengagement in the development of #medicaldevices & #ESG . Register ➡️ bit.ly/3LamiNq

Led by Made WITH Patients EUPATI EUPATIforum

#PBC news #PBC Day
#RareLiverDisease International #PBC AwarenessMonth EASLnews EU One Health EPHA Aleksander Krag Marko WHO/Europe PBCers Organization @AutoImmuneLiver EURORDIS-Rare Diseases Europe Rare Diseases Day EUPATI

October, and it is #LiverCancerAwarenessMonth . #LoveYourliver : Take a short break and get your liver screened for free! EU Health - #HealthUnion European Commission European Parliament Stella Kyriakides Aleksander Krag Marko EASLnews Liver4Life EPHA WHO/Europe Hans Kluge EUPATI

#RareDiseaseDay 🇲🇰🇺🇳🇪🇺 #RareLiverDiseases #LifeWithChallenges #LocalGovernment Milan🇪🇺🇺🇳
SOU 'Josip Broz Tito' High school European Liver Patients' Association EURORDIS-Rare Diseases Europe Rare Disease Day EUPATI EUPATIforum EU Health - #HealthUnion WHO/Europe Hans Kluge EASLnews EASL Education Aleksander Krag Marko

Day 2 of #PEOF is underway! Excited to shape the future of patient engagement with all the wonderful people here!
Made WITH Patients European Patients' Forum @eupatients

Thanks to NECRET NorthEast Cancer Research & Education Trust for inviting Patient Voice in Cancer to join yesterday’s #LivingWithCancer event CityNorth Hotel & Conference Centre launched by Mairead McGuinness. Inspiring. 🌈🌍European Patients' Forum @eupatients #EUMissions #BeatingCancer All-Island Cancer Research Institute (AICRI)

I was a collaborator in this paper, trying to set a strategic neurological research agenda for Europe.
European Academy of Neurology PPI Ignite Network Ireland MS Ireland theMSguide.com 🧠 PPI Ignite Network @ University of Galway NUI Galway Medicine IPPOSI EUPATI EUPATIforum Made WITH Patients
onlinelibrary.wiley.com/doi/10.1111/en…

Ahead of the plenary vote on 24.04.24, EUPATI calls on the European Parliament to adopt the provisional agreement on the #EHDS agreed with the EU Council. The agreement strengthens individual rights and enables secure data re-use for research. #vote4patients

Free course for #patientadvocates to write scientific papers. EUPATI #CreatingChange WPC 2023 Parkinson's Europe 🌷

ChristineFenton in conversation with Bernard Gloster at #patientpartnershipconference to discuss how we can create a better tomorrow, together. IPPOSI HSE Ireland European Patients' Forum @eupatients #PPI #nothingaboutuswithoutus

📣 Open Classroom got a new look! 📣

We have improved the user experience, enhanced security and optimised performance, as well as boosting its overall design🌟
Come see our changes at learning.eupati.eu
#EUPATI #OpenClassroom #Upgrade #Learning

Awesome training! Looking forward to Madrid in October! #PETP #Cohort7 #alwayslearning #EUPATI #advocacy #SWOGonc SWOG Cancer Research Network The Hope Foundation for Cancer Research Thank You!! EUPATI

Step into the world of patient advocacy w/ Leda Bresnov. We discuss her journey following an NMO dx, from her work at The Sumaira Foundation to how EUPATI Patient Academy is giving her the tools to shape the future of healthcare. #neurotwitter #nmo Genentech

podcasts.apple.com/us/podcast/epi…

Massive congratulations to the organisers of today's BioBANC Symposium - it really delivered on its aims with a wide range of speakers especially around INCLUDING the socially excluded Cliona Ni Cheallaigh St James's Hospital echoed by Joan Jordan EUPATI #JustAsk #PatientsAsPartners
#BnaG23

Extraordinary week, we started at local and national level last weekend, #RareDiseaseDay #RareLiverDiseases #LifeWithChallenges #LocalGovernment HeparCentarBitola♂️♀️ SOU 'Josip Broz Tito' High school EURORDIS-Rare Diseases Europe European Liver Patients' Association Rare Disease Day EUPATI EUPATIforum EU Health - #HealthUnion

Hashtag surprise - first use of #PatientInvestigator ? Publications related to patient investigators/patient-led research are (rightly) surging - what hashtag(s) should we use?
MAPS The Patient-Centered Outcomes Research Institute ISMPP #PxP23 #PPI #PatientAuthor FDA Patient Affairs EUPATI Dr. Amy Price

One reminder: not all memory problems are Alzheimer...Parkinson's Europe 🌷 European Patients' Forum @eupatients

Great to see the #Parkinsons community represented at EUPATI training in Prague with Joy Milne & myself graduating as #EUPATIFellows & Amelia Hursey of Parkinson's Europe 🌷 on the board of EUPATI #CreatingChange